WORLD DIABETES DAY
My story In MENS HEALTH.CO.UK
Thursday, November 5, 2009
70 year award
went to the hospital again!!.. but meet a gentleman who had just received his award for having diabetes for 70 years.. i mean wow... just totally inspiring.. what he had to deal with back then is just amazing... makes you think how lucky were are now...
Tuesday, November 3, 2009
The Diving bell and the butterfly
Inspiring.... man who learned how to communicate with just one eye after being paralysed due to a stroke... he wrote a book!!!!!... They made it into a film as well as the book... you have to see it.....
Monday, November 2, 2009
well what can i say
well. you know when u know the answer but dont wanna hear it.. well went to see my stomach doc today n basically asked is there anything that can be done.. lets b straight now.. and he said NO.... well i kinda knew.. but to hear it.. well to realise the main problem i have..my stomach issues aint gonna change.. well..........mmmmmmm.. its hard i guess... no cure.. n meds.... 35!.... oh joy...great life ahead.. look i know there are worse probs out there but its all relative.. so much is driven by your mind... when will i feel poorly.. when will i waana need the toilet... if it were visible i feel i would look like the elephant man.... hard.....talkin crap i know... but hey its my blog ;)
Thursday, October 29, 2009
Message from someone who`s story was simliar to mine
Hi ya,
Just had a quick look at your blog and the magazine article. You've had a really rough time but im glad to see that despite this you are still optimistic!
Looking at your symptons I had them all too, but unlike you I did go the doctors. Not that it helped as each time they prescribed me something different - including anti-depressants, Quini for cramp and Sleeping tablets. I didnt actually take any of them as I knew that it wouldnt solve the problem. I also went to to the opticians and was prescribed glasses about two months before diagnosis. Luckily eyes are back perfect now but for 8 weeks I was convinced I was going blind. To the point I could no longer drive or read and could only make out outlines of shapes. At this point, like you I still carried on thinking that I was suffering somekind of breakdown! In the week leading up to diagnosis I spent a night out with old Uni friends in London and drank copius amounts of wine. That night I was up for about 4 hours with the worst cramp ever. I collapsed at shopping and had to get the assistant to pack my bags, looking back, I can laugh about it now but I spent about £40 on liquids alone! I then drove home! I also had to get my husband to come and collect me when I was out on my horse in the middle of nowhere as I didnt have the enerdgy to continue...the list goes on...Oh and I had lost two stone and was down to 8stone11, which at 5'11 is not good either.
Finally I was taken to hospital by my Grandparents who had visited and found me in a complete mess as my Mum and Husband had both tried contacting me and couldnt get through. On admission my sugars were at 39.8!!!! No wonder I felt like crap. The most annoying thing was that 10 days before this I had had a bloodtests when my sugars were at 18 and my doctor called me to say they couldnt confirm the problem but I would need to go back for further tests to prove what they suspected but to not worry! He then called when I was in hospital for 4 days t ask why I hadnt turned up for a second bloodtest!
Oh well, enough about the ranting, suppose we just have to get on with it. Its good to have read about other peoples experiences though as all the press mentiones is about Type 2 and I do think the impact of Type 1 is a lot more difficult to do with!
Louise Xx
Just had a quick look at your blog and the magazine article. You've had a really rough time but im glad to see that despite this you are still optimistic!
Looking at your symptons I had them all too, but unlike you I did go the doctors. Not that it helped as each time they prescribed me something different - including anti-depressants, Quini for cramp and Sleeping tablets. I didnt actually take any of them as I knew that it wouldnt solve the problem. I also went to to the opticians and was prescribed glasses about two months before diagnosis. Luckily eyes are back perfect now but for 8 weeks I was convinced I was going blind. To the point I could no longer drive or read and could only make out outlines of shapes. At this point, like you I still carried on thinking that I was suffering somekind of breakdown! In the week leading up to diagnosis I spent a night out with old Uni friends in London and drank copius amounts of wine. That night I was up for about 4 hours with the worst cramp ever. I collapsed at shopping and had to get the assistant to pack my bags, looking back, I can laugh about it now but I spent about £40 on liquids alone! I then drove home! I also had to get my husband to come and collect me when I was out on my horse in the middle of nowhere as I didnt have the enerdgy to continue...the list goes on...Oh and I had lost two stone and was down to 8stone11, which at 5'11 is not good either.
Finally I was taken to hospital by my Grandparents who had visited and found me in a complete mess as my Mum and Husband had both tried contacting me and couldnt get through. On admission my sugars were at 39.8!!!! No wonder I felt like crap. The most annoying thing was that 10 days before this I had had a bloodtests when my sugars were at 18 and my doctor called me to say they couldnt confirm the problem but I would need to go back for further tests to prove what they suspected but to not worry! He then called when I was in hospital for 4 days t ask why I hadnt turned up for a second bloodtest!
Oh well, enough about the ranting, suppose we just have to get on with it. Its good to have read about other peoples experiences though as all the press mentiones is about Type 2 and I do think the impact of Type 1 is a lot more difficult to do with!
Louise Xx
Sativex
Had a another productive meet with my consultant... he is going to see if i can get Sativex cannabis based product to help with the pain relief as the tramadol and pregablin arent really having much affect now.. been on them for a while.. so will se how that goes.. you have to get it as a named patient and there is alot of red tape involved in getting in .. funding etc..
he asked if i would speak to a patient about the pump which i jumped at the chance to.. that went really well. we got on the subject of support groups and i gained some more support about getting one started around here.. the hard thing is getting people to know its happening... mmmmmm watch this space...
he asked if i would speak to a patient about the pump which i jumped at the chance to.. that went really well. we got on the subject of support groups and i gained some more support about getting one started around here.. the hard thing is getting people to know its happening... mmmmmm watch this space...
Documentry
had a good meeting with the students who are doing the documentry on me, so that is going forward.. they are using the angle of me and my photography so we will see how that goes..
Monday, October 19, 2009
Friday, October 16, 2009
really bad!
been up since 3... my stomach.. well i did panic at one point... but rode the storm.... feel ok now i have been to the toilet.. but at the time... how can i explain... well i am used to it now... but last year i would have called an ambulance...
Thursday, October 15, 2009
Support Groups
Had a letter from the POOLE diabetes uk support group... tea mornings and skittle evenings wasnt something i had in mind.... If i was a young person with diabetes it would exactly entice me to attend.... one of the most asked questions i see on forums is.. can i meet with others like me... where is the support group... i really does make a difference when you meet up with someone else with diabetes and you realise that your not alone trying to control this condition.... my aim is to create a support group for younger people in my area... if your reading and have an idea please get in touch... feel a bit like a one man band at the mo....
WORLD DIABETES DAY
Well.. feeling a bit down.. trying to get something going ... local school already supporting a charity... Bournemouth Balloon which would have been amazing cant fund it.. diabetes uk wont help with funding on this either.. back to square one...
Saturday, October 3, 2009
L.A.D.A
Can you believe that i have found out what type of diabetes and the explanation of why i am so ill now through my story being written about!.. I had never heard of L.A.D.A .. a type 1.5 diabetes... had you?.. this explains why i was so ill for such a long period and didnt need insulin straight away!!.. click on the link to find out more.. believe me i will be doing more research into this... but can you believe o have never been told this????????????...
Friday, October 2, 2009
They put my story in a Mens Health Mag
I gave my Story to Diabetes UK press office a while ago and they gave my story to a mens health online magazine.. Check it out and pass it on..
www.menshealth.co.uk
www.menshealth.co.uk
Thursday, October 1, 2009
World Diabetes Day
I have been trying to get support form my local "support" groups and i use that term very loosely as i received very little support from them. One had suspended their activities until the end of the year, (it is october now) and the other did not know about The world diabetes day campain.. so there aint much hope really is there!!... Surely if one person see`s the Blue lights and is made aware of Diabetes then that is the purpose of it all, educating the younger generation in my mind is key, as for the the two local support groups i have spoken to, if i were a young adult i would not feel motivated to attend these meetings if i thought it was run by my Grandparents.. surely if we are not motivated as diabetics to raise awareness then there aint much hope else where... so this has motivated even more to do something for world diabetes day so i thank you for your negativity .. you have motivated me...
Thursday, September 24, 2009
Seen my doc
Went to see my consultant yesterday.. talked about the how there is no support network for neuropathy sufferers.. he gave me a few pointers and has given me more motivation to get something started for people like me..
I also went to see a gastroenterology doc today..i am on 2 diff sets of antibiotics for the next month to see if that can ease the stomach problems.. sometimes when the stomach does not empty properly bacteria grows and adds to the situation... there is a common theme though when i see a consultant...
"its difficult to test for that" or we dont have a test for that" "or there is not much we can do about that"
but i am not giving up just yet anyway!!
I also went to see a gastroenterology doc today..i am on 2 diff sets of antibiotics for the next month to see if that can ease the stomach problems.. sometimes when the stomach does not empty properly bacteria grows and adds to the situation... there is a common theme though when i see a consultant...
"its difficult to test for that" or we dont have a test for that" "or there is not much we can do about that"
but i am not giving up just yet anyway!!
Wednesday, September 16, 2009
Let me entertain you!
I have the honour of having a condition that affects my Nerves.. you cant see them... but boy is it here!!.. It is not a very well known condition so when people ask what is up with me i tell them, there always seems to be a blank look on their face. I mean it cant be that bad can it otherwise i would of heard of it wouldn`t i.. so i go on to explain what it is.. and as i do i feel like i am seeking sympathy .. which i am not just education.. but the list is so exhaustive.. as you are aware as you have read my blog and seen me rant about it time and time again...
My outlook on life has changed.. i am so much more aware of how people look at me no and judge me..
Sometimes i use a wheel chair.. i can walk... yes... but if i walk for any amount of time my feet hurt.. or my stomach cramps.. or i feel sick...or tired... but i have good days/hours and not so good ones... so too look at me i look "normal" .. but inside i am crying with pain..or anxiety of when or what will hit me next or will it come at once or will it just be the one part..or will it let me off for a few moments..i have given up trying to put a pattern to it all..but yes i can stand up out the wheel chair without help. and yes i can walk, and talk at the same time too... when you stare i can see... and that hurts too... kids i can handle and i expect it from.. but adults that stop and turn their heads and look down their noses...
i sprayed my mobility scooter for you as well so you have something else to look at when you stop n stare... i was thinking of putting a number plate on it.. but am not sure what to put on it yet.. answers on a postcard..;)...
When i get out of a disabled parking space i can here your eyes too you know,, and i put on a show for you and limp that little but more for you to rate me worthy enough to use the space..
I use a stick.. somedays i need it.. somedays i dont.. but i am here to entertain you and you pay me to live so i put on a show for you. The question what do you do for a living is in the top 3 questions you ask someone when you 1st meet them.. so when i say i am sick.. i can hear you...oh yeah.. so thats where my money goes then.. you look fine to me.. or lazy git...so now i have learned to try not to ask you what you do so you wont ask me.. well not straight away anyway..and when you ask now i say i do photography and volunteer.. then i say i am ill.. it softens the blow a bit and i feel a bit more accpeted ...
We all judge.. whether it be the colour of someones skin their weight, male female, tall short... its something that we all either have done or do..
Treat others how you would like to be treated
i must go now as i need to practise getting in and out of my whhel chair, walking with a limp with my walking stick and my scooter needs a re-spray... thats if my body will allow me... the one pattern i have found is it never allows me to have to much fun!
My outlook on life has changed.. i am so much more aware of how people look at me no and judge me..
Sometimes i use a wheel chair.. i can walk... yes... but if i walk for any amount of time my feet hurt.. or my stomach cramps.. or i feel sick...or tired... but i have good days/hours and not so good ones... so too look at me i look "normal" .. but inside i am crying with pain..or anxiety of when or what will hit me next or will it come at once or will it just be the one part..or will it let me off for a few moments..i have given up trying to put a pattern to it all..but yes i can stand up out the wheel chair without help. and yes i can walk, and talk at the same time too... when you stare i can see... and that hurts too... kids i can handle and i expect it from.. but adults that stop and turn their heads and look down their noses...
i sprayed my mobility scooter for you as well so you have something else to look at when you stop n stare... i was thinking of putting a number plate on it.. but am not sure what to put on it yet.. answers on a postcard..;)...
When i get out of a disabled parking space i can here your eyes too you know,, and i put on a show for you and limp that little but more for you to rate me worthy enough to use the space..
I use a stick.. somedays i need it.. somedays i dont.. but i am here to entertain you and you pay me to live so i put on a show for you. The question what do you do for a living is in the top 3 questions you ask someone when you 1st meet them.. so when i say i am sick.. i can hear you...oh yeah.. so thats where my money goes then.. you look fine to me.. or lazy git...so now i have learned to try not to ask you what you do so you wont ask me.. well not straight away anyway..and when you ask now i say i do photography and volunteer.. then i say i am ill.. it softens the blow a bit and i feel a bit more accpeted ...
We all judge.. whether it be the colour of someones skin their weight, male female, tall short... its something that we all either have done or do..
Treat others how you would like to be treated
i must go now as i need to practise getting in and out of my whhel chair, walking with a limp with my walking stick and my scooter needs a re-spray... thats if my body will allow me... the one pattern i have found is it never allows me to have to much fun!
Tuesday, September 15, 2009
Prof C Mathias
My consultant has referred me to the top Prof in the country regrading Autonomic function.. Prof C Mathias .. had a letter from the NHS today saying they are busy and the wait to see him is very long.. I.e several months... so we will see what he can do to help...
Friday, September 11, 2009
Dads had his liver transplant
So DAD had the call at the weekend and went in for the op on saturday, all went well me and my sister went back for the week to make sure all was ok... He is doing so well and will be back to his old self in no time..
on a shit note... i have had one of the worst weeks ever with my stomach... so bloated.. has made me very angry and upset this week,,, leaving me feeling so useless... tired... pissed off with being pissed of.... went to see dad and for an hour of the 2 hours i was there i just wanted to be somewhere else... god some days i would do ANYTHING to get ride of this...it cant be much worse... its now.. 12.30 i ate at 6 so for six and a half hours now i hve been bloated, feel sick need to go to the toilet but cant..... i know it wouldnt help but i feel like getting a knife and punching a hole in my stomach to get some relief....heart rate increases.... aggitated,,,,
on a shit note... i have had one of the worst weeks ever with my stomach... so bloated.. has made me very angry and upset this week,,, leaving me feeling so useless... tired... pissed off with being pissed of.... went to see dad and for an hour of the 2 hours i was there i just wanted to be somewhere else... god some days i would do ANYTHING to get ride of this...it cant be much worse... its now.. 12.30 i ate at 6 so for six and a half hours now i hve been bloated, feel sick need to go to the toilet but cant..... i know it wouldnt help but i feel like getting a knife and punching a hole in my stomach to get some relief....heart rate increases.... aggitated,,,,
Thursday, September 3, 2009
Wednesday, August 26, 2009
nice guys dont come first!!!!
went to see my consultant today... had a cry and kicked off a bit about it all... why do i only see him every 4 months or so.. why do i never get told whats going on... why why why why why why.. so i am seeing him in a months time... and he has said he will communicate better with me... it just upsets me that you have to shout cry or lose your temper to get anything.. please and thank you does not always work... he is going to refer me to a top london doc so will see from there....
oh had a bad stomach last night.... so not feeling great today... whoppi do da.... guess i am just having one of THOSE days.....
oh had a bad stomach last night.... so not feeling great today... whoppi do da.... guess i am just having one of THOSE days.....
Wednesday, August 5, 2009
Got myself a geetar!
Well after pondering for a while i decided to get myself a guitar again.. and what a great idea it was... well so far anyway!!... want you back want you back want you for good.. sorry learning back for good, by take that, and must have played the intro a thousand times!! but i have relaxed and not thought about shite and the day has gone quite fast too... cool... still raining and still not summer!!!oh and i feel happy!!
Saturday, August 1, 2009
pain pain go away
pain pain go away come back another day!!!!
PPPPPPPPLLLLLLLLLLLLLLLLLEEEEEEEEEAAAAAAAAAAASSSSSSSSSEEEEEEEEEEEEE!!!!!
when will there will a cure?
when will it go?
why oh why oh why?
yes its 3.13 in the morning...
yes i am in pain
yes i am sooooooo tired
no i cant sleep
i have bought a new guitar though.. maybe it will help keep my mind off it...
PPPPPPPPLLLLLLLLLLLLLLLLLEEEEEEEEEAAAAAAAAAAASSSSSSSSSEEEEEEEEEEEEE!!!!!
when will there will a cure?
when will it go?
why oh why oh why?
yes its 3.13 in the morning...
yes i am in pain
yes i am sooooooo tired
no i cant sleep
i have bought a new guitar though.. maybe it will help keep my mind off it...
Tuesday, July 28, 2009
Pop 4 Diabetes
check out the site.. the venue is in bournemouth on teh 17th of october with various stars.. help people with diabetes and have some fun to...
Commissioning Group Workshop
Am attending a meeting with top officals to do with the NHS and diabetes, including DR Rowan Hllison MBE, and Anna Morton Director of NHS Diabetes.. looking forward to it.. had loads of information to read today... its all go at the mo!
NHS Diabetes service user group
attended a meeting with about 17 other diabetics/careers/parents... to see if we can help improve change add to how diabetics are treated in the NHS... it will run for 18 months and we will meet x4 every year.. if you have anything you want me to add or any ideas then please let me know.. i have been wanting to do something like this ever since i was diagnosed and sitting in my hospital bed which seems like yesterday!!... maybe i CAN MAKE A DIFFERENCE after all....
Saturday, July 18, 2009
caverjet
blimey.. things i do hey!!
Click to follow the link on how to use caverjet... better than viagra.. just a bit more painful!! yes its an injection where... well where do you think!
Click to follow the link on how to use caverjet... better than viagra.. just a bit more painful!! yes its an injection where... well where do you think!
Monday, July 6, 2009
Sunday, July 5, 2009
hypo
having a hypo.. had a few stomach issues.. feet were hurting,,, feeling a bit tired.. its 4.30...heartbbeat increases, sweats.. feel weird... dizzy... sorry just explaining the hypo as it happens.. very hungry like ravenous.. bt i know from experience this this is like a "phantom" hunger it aint real if i eat now i iwll feel sick later and my sugars will explode... oh but the temptation is there............ i pack of go ahead snacks and a couple of slurps of lucazade is cool... after a while it will pass...
Monday, June 29, 2009
trigeminal neuralgia
just been given some advice about the glands in my face...
thankyou so much lisa xx this descibes my condition down to a tee!! i will be getting on the case to my doctor 1st thing in the morningx
silent hero
MOM...
My Mom came to see me twice a day every day for the 6 or so weeks i was in hospital.. and when i went home was my carer.. making sure i ate... helped wash me.. took all the abuse i threw at here.. and that was alot... i have a temper those who know me at the best of times... and now she is doing it all for my dad.. so the past years instead of enjoyinh life she has been looking after us... i love her so much...
Liver transplant
Not sure if i said or not but dad is going to have a liver transplant.. he has had all the tests and is waiting for "the call"... he has such a hard time over the past year or so.. diagnosed with diabetes, neuropathy, and if you know anything about it.. water retention is a big problem.. he has put on about 9 stone!! yes 9 stone in water... imagine that... well he went in today to get it drained off... fingers crossed... he will be fine i know it..
Sunday, June 28, 2009
bad feet
feet really hurt today... only thing i can relate it to is having massive brusing all over your feet.. so hard to walk... ;( but i suppose i had a good day yesterday so you take the rough with the smooth
Thursday, June 25, 2009
I wrote down a list of my issues for when i last talked to my consultant
Issues with my body by Lee Nevitt
I find that when I see a doctor I sometimes forget one of my many issues or cant explain properly what I go through. So please see below a list of my daily problems
Stomach
Bloating…not able to eat large meals, have to eat small and offen, I.e cous cous, soup, low fibre food nothing stodgy.
My heart rate increases, misses a beat makes me feel nauseous, having to lay down and let it pass.. Having t pass wind to ease the pain, stomach increases in size, bloated..
Sometimes I will be able to go to the toilet and this helps but sometimes it stays there.. Having diahorria or constipation
This is one of the main challenges I have as the inly way to egt over this is to lay down and let it pass
Also not being able to get myself up without holding onto something, feels like I have no stomach muscles, not able to get up off the floor without pushing up or holding onto to something
Bladder
I have small empties not a clear out so small and often I did self cathatorise for a while but I do not have to do this anymore
Feet pain
This is all the time, I have a constant pain, some days/hours/minutes are worse than others, it realy does sometimes change that quick, one minute I can be fine, the next aftera few steps the pain is unbearable, having to use a walking stick for balance, wheel chair/scooter for longer journeys or when I am out for a perod of time. This affects my sleep, I find moving my feet, walking and massging them helps, and trying to relax.
Burning/electric shocks/ice blocks/sun burn/numb!/ walking on glass/pins and needles/
Sweats
Mostly at night, but I have to take to towel to bed as I pespire so much, sometimes during the day but mostly at night
Glands
When I eat I get a shhotong electric shock type pain in the side of my cheeks when I eat something, once my glands get goung the pain goes.. This is a short VERY sharp pain
Erectile disfunction
Not able to get an erection at all, have tried a viagra and another drug, these have not worked, this affects my personal life.. Not being able t have sex and also mentally HELP!
Sugar levels
My sugars affect the pain I am in, if my sugars are high then the pain is bad.. If I keep my sugars at a consistant level. This helps with the pain
Eyes
In the daylight somedays are worse than others but I have blurred vision, not beimng able to rad roas signs for example,
pump problem
went out for a drink.. only for my pump to start flashing.. low insulin!! then no insulin.. after a few drinks not a good sign... then trying to change the bloody thing at midnight, drunk!!! erm well wasted a line and got the insulin everywhere.. ahem... the woke up this morning at 4.. with a well stmoach issue!! turtle heads away lol... checked my pump.. and whoopi the bloody battery had died!!... so had to turn the light on and change that... now i am awake... toilet stops now... so tired.. stumbling to the bog... and watching the sun rise... its now 6 and prob stay up now... oh happy days!!
helpless
Feeling a little let down by the system really, not sure what i expect to happen....altough my consultant seems good.. i only see him once evry few months.. take the last visit.. i focused on my stomach issues AGAIN!.. so i was told to do a sample.. and the results would be done the following week... well 3/4 weeks lateri had to call my GP who then wrote to my consulant for me to get a letter in the post saying the test was negative and see you next time.. great thanks.. but this stull leaves me with no answer or light at then end of teh tunnel when it comes to my stomach problems... which i have managed over the past few months by my diet... no bread or heavy foods and tryin to eat as light as possible.. but i still get the bad days.. still the comstipation... still the diahorria.. still the sweats, still the palputaions.... oh he did give me a drug that was should have helped with my sweats... yes you guessed.. it didnt work....so i shall wait in anticipation for the next visit... IN NOVEMBER so i can tell him again about my stomach and agaon for another test.. and again for a negative result... dont wanna come across negative but it is what it is... and i have come to terms with the system and doctors.. and the idea of teh doctor knows best and is always right is a thought long out of my head...if you want anything done you have to do it yourself.. research reseacrh research... then check that.. then tell your doc about it.. for nothung to get done!
Wednesday, June 10, 2009
Tuesday, June 9, 2009
what you looking at!
Yes i have a mobility scooter!!..
NO i am not 64 i am 34
I feel like a circus freak sometimes when i use my scooter... so many stares, or even laughter at a young bloke on a mobility scooter.. do you not think that if i was able to get about without it i would!... i suppose its like anything really when something is different people will stare or have an opinion..
i suppose its justn the way it is... but just have a quick think when your head turns at the person who is different to you and remember that they like you have feelings...
Sunday, May 31, 2009
insulin pump
All going well with the insulin pump, gettingused to it and not really aware of it now, although does sting a bit when it 1st goes in... still early doors though... my stomach is still the biggest issue i have, not knowing when and where its gonna hit... waitin to see if there is another wonder drug that may help out.... not holding out though!!
Friday, May 29, 2009
Saturday, May 16, 2009
docs docs and more docs!!
Went to see my consultant in the week, and we talked about my stomach issues, he is looking into a wonder pill that may help.. i need to do a poah sample!! and go from there.. somethin to do with the the other aspects of waht the pancreas does.. which is helping with digestion..i think.. x so we will see.. gettin the insulin for the pump on monday... so the next chapter of controling the diabetes starts!!...
Sunday, May 10, 2009
mornin!
Not a great night... havent really slept too much... pump starts next week... and seeing dr kerr as well... wanna talk about my stmoach issues.. is there anthing else that can be done other than laxatives and the bullets up the bum lol... hopefully the pump will help and we will go from there...
Tuesday, February 10, 2009
Pregablin gabapentin now more!!
After seeing the consultant the other day i now on a new pain killer called pregablin so we will see how that goes.....
Saturday, January 31, 2009
the pump
oh yeah seen a doc the other day.. yet another one... so how can we help you... fuck me if i had a penny for every time i was asked that.. maybe i will get a recording and send it to them they may get the picture then .....
well gonna change my pain meds as they arent any good.. pain at the mo is just .. well and bag of shite"""
hopefully the pump will hlep level out my sugars and in turn help with the pain that seems neverending....
but where is the wondering drug.. the operation or the magic words....
well gonna change my pain meds as they arent any good.. pain at the mo is just .. well and bag of shite"""
hopefully the pump will hlep level out my sugars and in turn help with the pain that seems neverending....
but where is the wondering drug.. the operation or the magic words....
here we go again!!
And so it begins.. tears heartache.. questions why...listening to sad songs and watching soppy dvds.... oh well
no blaming the illness but you did pay a part of it... the sleepness nights, the unlimted daily pain, the inability to have sex, the messing the bed, the bloated stomach, the weeing through a straw, using a mobilty scooter, nessun dorma is on the i-pod... reaching its peak..... which is what the relationship had got to............................................................................................. oh that was the ending bit......
so we will see now where the next chapter will take me!
not drunk just tired!! been a good boy not letting the demon drink take hold and ruin the mind.. and body!!
no blaming the illness but you did pay a part of it... the sleepness nights, the unlimted daily pain, the inability to have sex, the messing the bed, the bloated stomach, the weeing through a straw, using a mobilty scooter, nessun dorma is on the i-pod... reaching its peak..... which is what the relationship had got to............................................................................................. oh that was the ending bit......
so we will see now where the next chapter will take me!
not drunk just tired!! been a good boy not letting the demon drink take hold and ruin the mind.. and body!!
Friday, January 2, 2009
Happy new xmas year and all that
Well another year gone...
Its not been too bad pan wise.. although last night was a bit of a mare.. no sleep until about 6/7 this morning ... feet were playing up!!! not nice... but Dawn is so good.. tha massgaes really help on my feet when they are bad.. so if you are reading and have bad feet like mine.... massages are better than any drug i have taken so far...
there seems to be a break through on the food side.. i have food that Cous Cous is the way forward... low gi and all that gluten free.. seems not to affect me after eating so my stomach had not been as bad a s usual,, yipeeeeeee....... and at 4 packs for a £1 from asda.. can fault it lol
Life is good....
i am slowly coming to terms witn the illness and am making it apart of my life rather than try to fight it and get upset and angry over it all the time...
just gotta get on with it...
Its not been too bad pan wise.. although last night was a bit of a mare.. no sleep until about 6/7 this morning ... feet were playing up!!! not nice... but Dawn is so good.. tha massgaes really help on my feet when they are bad.. so if you are reading and have bad feet like mine.... massages are better than any drug i have taken so far...
there seems to be a break through on the food side.. i have food that Cous Cous is the way forward... low gi and all that gluten free.. seems not to affect me after eating so my stomach had not been as bad a s usual,, yipeeeeeee....... and at 4 packs for a £1 from asda.. can fault it lol
Life is good....
i am slowly coming to terms witn the illness and am making it apart of my life rather than try to fight it and get upset and angry over it all the time...
just gotta get on with it...
Friday, November 21, 2008
progress
Well...
Have met with another Doctor who had come across with a differnt perpective, i am on a monitor at the moment looking at my bllod sugars for the next 3 days, then looks like i will be going on the pump.. which means no more injetions.. and should help keep my sugars down.. and if they are down it helps with the pain.. so cant be bad...
ohh but having an endoscope next week .. you know the one where they stick a metal tube thinf down your throat!!! grrrrreat!!
taking asmaple thinga s well for celiac disease?? but he talked about my pain killers nd stuff as well and is open to change on that as well which is good news... so fingers crossed maybe a brighter future ahead after all
until next time xx
Have met with another Doctor who had come across with a differnt perpective, i am on a monitor at the moment looking at my bllod sugars for the next 3 days, then looks like i will be going on the pump.. which means no more injetions.. and should help keep my sugars down.. and if they are down it helps with the pain.. so cant be bad...
ohh but having an endoscope next week .. you know the one where they stick a metal tube thinf down your throat!!! grrrrreat!!
taking asmaple thinga s well for celiac disease?? but he talked about my pain killers nd stuff as well and is open to change on that as well which is good news... so fingers crossed maybe a brighter future ahead after all
until next time xx
Monday, October 20, 2008
Friday, September 5, 2008
My daily issues
wanted to write on here what i go thorugh on a daily basis, somwtimes i wish it was a visible disease, but then again if it were it would be the worst kind of disfigurment imaginable!
1. Feel sick every day , more do after i eat, kinda like haveing a hangover everyday
2. Painful feet like having a bruise on teh sole of your feet but x100,
3. pain in the side of my cheek like having an electric shcok every time i eat
$. increased heart rate, missing a beat.. hard to explain but the only way to beat it is to sit it out or lay down
4. hypos if your diabetic youy know,
5. gastrophroisis, constiptated, and diahorria hard to think about having both but it happens, not nice
These are just NORMAL every day issues i have to deal with
oh and then theres my head!!!! how would you cope!!
1. Feel sick every day , more do after i eat, kinda like haveing a hangover everyday
2. Painful feet like having a bruise on teh sole of your feet but x100,
3. pain in the side of my cheek like having an electric shcok every time i eat
$. increased heart rate, missing a beat.. hard to explain but the only way to beat it is to sit it out or lay down
4. hypos if your diabetic youy know,
5. gastrophroisis, constiptated, and diahorria hard to think about having both but it happens, not nice
These are just NORMAL every day issues i have to deal with
oh and then theres my head!!!! how would you cope!!
Sunday, August 24, 2008
wheelchair
Well.....
Imade the decison to purchase a wheelchair to help me get out n about more, the pain in my feet was getting too much to walk about for any length of time, so now rather than being out for an hour and feeling grumpy and in pain, i now can stay out for a couple of hours and be ok for the evening as well, i suppose it was more of a pride thing than anything else but once you get over that then it aint to bad, i suppose its about weighing it all up and it has helped so what the hell!!
i also had a call from a consultant in sheffield about my gastrophrosis and they are trialing a drug so i shall be putting myself down for that amd will let you know..
love n farts
me
Imade the decison to purchase a wheelchair to help me get out n about more, the pain in my feet was getting too much to walk about for any length of time, so now rather than being out for an hour and feeling grumpy and in pain, i now can stay out for a couple of hours and be ok for the evening as well, i suppose it was more of a pride thing than anything else but once you get over that then it aint to bad, i suppose its about weighing it all up and it has helped so what the hell!!
i also had a call from a consultant in sheffield about my gastrophrosis and they are trialing a drug so i shall be putting myself down for that amd will let you know..
love n farts
me
Thursday, July 17, 2008
Deal with the pain!
Can you manage your mind to deal with the pain.... there are investigations that show pain can be "shut" off using your brain. I am believer in this.. so what is the trick and how do you do it.. well i have made it my mission to give you a daily diary of what i have done to deal with it.... yes i will be your guinea pig!! if you have and ideas let me know...
;)
;)
Wednesday, June 18, 2008
Friday, June 6, 2008
Awful dreadful nightmare ...........
What a night.... sweating hot and cold... aching muscles... terrible back pain.... toilet issues.. and so tired!!!... just when you think its getting better it comes and bites you in the ass!!!
my feet have been giving me a lot of shite recently as well very painful and hard to walk on..i am doing well with my diet.. keeping away from stodgy stuff and lower carbs.....
still trial and error really.....
have reduced my nightly dose of glargin so i am have less hypos in the morning.. thank god.. not nice way to start the day.....
my feet have been giving me a lot of shite recently as well very painful and hard to walk on..i am doing well with my diet.. keeping away from stodgy stuff and lower carbs.....
still trial and error really.....
have reduced my nightly dose of glargin so i am have less hypos in the morning.. thank god.. not nice way to start the day.....
Thursday, May 22, 2008
Hi
I have just drawn up a leaflet to try and get some more awareness of the site and diabetes in general so if you are on here because of the door drop then thankyou for taking a look
Wednesday, May 14, 2008
nuclear test!!!
Had to go to the nuclear test lab in selly oak hospital the other day.. sounded bloody scary lol... but basically its all about my stomach.. as you know i have issues with it so i had to eat so egg with some chemical in it.. and some toast and orange juice.. then had like an xray done every 30 mins!!! for about 3 hours!! felt a bit sick n dizzy to start but was ok.....
i dont mind the tests if they are going to help me out.... but not for doing its sake.. if you know what i mean
AT LAST!!!!!!
well i have finally met with a doctor/professor that actually knows about NEUROPATHY... granted i had go to sheffield to see him but it was worth it.. none of this ummmm ahhh.. you know like what the builder does when he comes to do a quote!!
he understood what it was all about.. i am going for a few tests for half a day and he also wants me up there for a week.. so loads of proding and poking ... oh i have missed that!!!
Prof Soloman Tesfaye is his name look him up on the net.....
he understood what it was all about.. i am going for a few tests for half a day and he also wants me up there for a week.. so loads of proding and poking ... oh i have missed that!!!
Prof Soloman Tesfaye is his name look him up on the net.....
Tuesday, April 22, 2008
My diet
i have been looking into how i can help the sickness i feel after most meals and it looks like low fibre meals is the way forward so i am looking into what i can get..... i dont want to be fed by a tube....!!!!!! no very attractive!!
Sunday, April 13, 2008
DRUGS good or bad
is it good to take so many drugs!! i mean what are the real side effects!! short term ok,,, long term nit so sure!!
will it end!!
DO YOU THINK I WILL GET ANY BETTER AND BE ABLE TO LIVE A SORT OF NORMAL LIFE!!!
ANSWERS ON A POSTCARD!!!
will it end!!
DO YOU THINK I WILL GET ANY BETTER AND BE ABLE TO LIVE A SORT OF NORMAL LIFE!!!
ANSWERS ON A POSTCARD!!!
ANSWERS ON A POSTCARD!!!
Appointment muck up
had an appoinment to test my guts!! see how it is going on in my intestines and stuff but they sent out the wrong letter, didnt state that i had to not take tramadol 24 hours before and fast the night before!! so not only was i feling pants that i had to go in a car to get there but i now have to come back which screwed me up for the day.. felt sick all day as i travelled in too short a space of time!! so re booked to have the test in a couple of weeks...
see how it goes but it will tell me what i already know ehich is that i have issues with the digestive system.. hopefully hey will be able to help me outy with it by giving me some sort of drug.... nit nice wanting to throw up evry day or after a short car ride!!
oh joy of joys!!1
see how it goes but it will tell me what i already know ehich is that i have issues with the digestive system.. hopefully hey will be able to help me outy with it by giving me some sort of drug.... nit nice wanting to throw up evry day or after a short car ride!!
oh joy of joys!!1
Thursday, March 13, 2008
i flipped!!
Yesterday everything got on top of me.. frustrated with it all ... pains sickness sadness!!!! so iwent out side and started smashing the walking frame i nicked from hospital !!! and it felt great.. shouting and screaming .. the neighbours must have thought i was loopy!!! dad came out all frlustered sayong what was going on but i had to tell him to go away and it werent to do with them it was me and i needed to vent my anger!!!
Mom is fantasic though she knows me so well what to say when to say and when to listem.. she is AMAZING!!!!
We are lookign for a punch bag for outside for me... rocky watch out lol
but i tell u it fekt great!!!!!1
Mom is fantasic though she knows me so well what to say when to say and when to listem.. she is AMAZING!!!!
We are lookign for a punch bag for outside for me... rocky watch out lol
but i tell u it fekt great!!!!!1
Wednesday, March 5, 2008
Monday, February 25, 2008
sick
Evening all,
Got a call from my doc today he wants to see me on wednesday morning for4 some tests, so i gotta fast the night before, i have had a few bad day recently... feeling sick alot.. knowing that when i eat that i am going to feel sick after is not a pleasent thought, but i suppose you gotta eat.. this dont help really when i want to put weight on but not being able to eat alot.. not really able to have the drinks the dietican gaver me as they make me feel sick... i dunno if its not one thing its another ...
Got a call from my doc today he wants to see me on wednesday morning for4 some tests, so i gotta fast the night before, i have had a few bad day recently... feeling sick alot.. knowing that when i eat that i am going to feel sick after is not a pleasent thought, but i suppose you gotta eat.. this dont help really when i want to put weight on but not being able to eat alot.. not really able to have the drinks the dietican gaver me as they make me feel sick... i dunno if its not one thing its another ...
Friday, February 22, 2008
reply from kerry
Hi Lee,It's Kerry here, we've swapped a couple of emails recently!I've been through your whole blog - I can relate to everything you've mentioned, from the pain in the legs and feet, being unable to take a bath because it feels like acid on your legs, to the tingly pain in the glands in the side of your mouth!!!Please hang in there, things will improve. Although I've just had a transplant, my neuropathy did improve to a certain extent through time and strict glucose control. It's not easy, you get fed up with the pain, discomfort and the imposition of the intrusive treatments, but you CAN make some improvement. It sounds like your glucose is doing a similar thing to mine! Gastroparisis mucks up your absorbtion, so you can't really predict what effect the carb/ sugars will have on your levels. It's to do with erratic stomach emptying, apparently! Have you had a stomach emptying test yet? It's not very pleasant, involves eating scrambled egg on toast and drinking milk laced with radioactive ions!! Not what you fancy when you're suffering with Gastro! Then you have to sit on a scanning machine, in the same position for at least a couple of hours!! But, you do get an idea of how well your Pyloric Sphincter (valve at the bottom of the stomach) is working. Mine ws pretty useless, so they gave me Pyloric Botox. Worth asking about, I believe that it helped me. They inject Botox into your Pyloric Sphincter, using an endoscopy procedure, so it may not involve a hospital stay, it can be done as a day case. Botox has the opposite effect on the Pyloric Sphincter, than it does on the faces of paranoid women!! It causes the valve to relax and therefore allows food to be digested more consistently and quicker than before treatment, relieving bloatedness and feelings of fullness, nausea etc. Might be worth a go, it has no adverse effects and if it doessn't work it just gets absorbed by the body. It's not permament and wears off after a few months, but it can help your body to heal, leaving you in a better place after treatment, than before!oh yeah, before I forget, a drug, similar to Amitrptyline, called Duloxotine (I think that's the right spelling!) Has been found effective for controling neuropathic pain. I couldn't take it because of the nightmares and hallucinations!! But if you can take Amitriptyline, Duloxotine shouldn't be a problem! Sorry I've gone on a bit! I'm so glad to have found another autonomic neuropathy sufferer. I thought you might be interested to hear that my friend Jane, who also suffered from Autonomic Neuropathy, died recently from her diabetic neuropthy. She also had 'Diabulimia', but never got over it, she continues to withold insulin etc right up until her death. She was only 23 years old. This condition is serious, people die, why isn't there more awareness???Anyway, I'd better leave it at that!!!!Take care of yourself and hang in there!!!Kerryxxx
February 6, 2008 2:59 PM
February 6, 2008 2:59 PM
Monday, February 18, 2008
Thursday, February 14, 2008
Cut down on carbs
Went to the docs and they have increased my blood pressure tablet to x3 a day instead of 1, but i have to go back and check my eyes as the drug has affects on your eyes. whoppi......... not feeling to great got a bit of a cold.. not feeling to bad stomach wise .. i had my toilet day last week week so i am waiting for that yet.. but i have cut down on the carbs which has seemed to have helped... and i am feeling less bloated.. rice seems to be o atthe mo.. so will see how it goes..
Wednesday, February 6, 2008
Monday, February 4, 2008
Podcast!!
DJ diabetic lee...... i have discovered a way of creating a podcast... i have looked around and the market seems to be dominated by the americans.. and i do want to simplify it.. kinda like this but on a podcast.. well will see how it goes and of course i will let you know,,,,
I am doing a website
well to be honest its the same as this but just in a different format...
here be the link
http://diabetes-neuropathy.magix.net/website/
here be the link
http://diabetes-neuropathy.magix.net/website/
Sunday, February 3, 2008
Pregnancy and diabetes
i have recently meet/spoken to a few people who have had gestational diabetes... quite common now which i did not realise so if you are reading this and what to know a little more then read below......
Gestational Diabetes
Gestational Diabetes
Finding out you have gestational diabetes can be very frightening. Not only do you have to deal with all the emotions (the ups and the downs) and the questions that come with being pregnant, but also the uncertainty of this new-found condition. Fortunately, as with all types of diabetes, there are many well-informed health professionals to help answer your questions and to guide you through this very important time in your life. The more you know, the easier it is to accept and make the necessary changes for a successful and happy pregnancy. Let’s first review how you got here.
Somewhere between 24 and 28 weeks into your pregnancy your doctor most likely sent you to be screened for the presence of gestational diabetes. (If you were at greater risk for getting gestational diabetes, your doctor may have sent you earlier, at 16 weeks.) You may think this is too late in your pregnancy to be finding out about such a problem, but in most cases, screening before this time would be of little value. It is the hormonal changes (hormones made by the placenta that resist insulin) in the second and third trimesters of pregnancy, along with the growth demands of the fetus, that increase a pregnant woman's insulin needs by two to three times that of normal.
Insulin is needed to take the sugar from your blood and move it into your cells for energy. If your body cannot make this amount of insulin, sugar from the foods you eat will stay in your blood stream and cause high blood sugars. This is gestational diabetes.
Gestational diabetes means diabetes mellitus (high blood sugar) first found during pregnancy. It occurs in three to five percent of all pregnancies (in other words, one in 20 pregnant women will develop gestational diabetes); so, you can take comfort in the fact that you are not alone.
In most cases, gestational diabetes is managed by diet and exercise and goes away after the baby is born. Very few women with gestational diabetes require insulin to control this type of diabetes. If you do need insulin, it will ensure blood glucose stays in the acceptable range, thereby reducing the risks to you and your baby.
Gestational diabetes should not be taken lightly. Immediate risks to the mom and the fetus are very real; however, these risks can be minimized with good care and follow up.
Ante-natal Care
Ante-natal care should be hospital-based, from a multi-disciplinary team
Individualise insulin regimens and recommend 4-times daily glucose monitoring.
Aim to maintain glucose 4-7 mmol/L and HbA1c within the normal non-diabetic range.
Remember insulin requirements increase progressively from the 2nd trimester until the last month of gestation, when a slight fall-off may be noted
Hypoglycaemia and loss of awareness is common in early pregnancy. Hypoglycaemia does not appear to have long-term adverse effects on fetal development
Ketoacidosis can cause fetal death at any stage. All women should test urine for ketones if blood glucose is high, if vomiting occurs or if they are unwell.
Delivery
The timing of delivery is individualised; in women with good diabetes control and no complications, the pregnancy may be continued to 39-40 weeks.
Caesarian section rates are often higher than in non-diabetic women.
Post-natal Care
Insulin requirements fall dramatically after delivery, therefore reduce insulin doses.immediately to pre-pregnancy levels, to avoid hypoglycaemia.
Encourage slightly higher blood glucose levels than during pregnancy.
In breast-feeding mothers, reduce insulin dose further once lactation is established.
Discuss contraception while the patient is still in hospital.
All women should be seen by the diabetes pregnancy care team six weeks after delivery.
More Information
Gestational Diabetes
Gestational Diabetes
Finding out you have gestational diabetes can be very frightening. Not only do you have to deal with all the emotions (the ups and the downs) and the questions that come with being pregnant, but also the uncertainty of this new-found condition. Fortunately, as with all types of diabetes, there are many well-informed health professionals to help answer your questions and to guide you through this very important time in your life. The more you know, the easier it is to accept and make the necessary changes for a successful and happy pregnancy. Let’s first review how you got here.
Somewhere between 24 and 28 weeks into your pregnancy your doctor most likely sent you to be screened for the presence of gestational diabetes. (If you were at greater risk for getting gestational diabetes, your doctor may have sent you earlier, at 16 weeks.) You may think this is too late in your pregnancy to be finding out about such a problem, but in most cases, screening before this time would be of little value. It is the hormonal changes (hormones made by the placenta that resist insulin) in the second and third trimesters of pregnancy, along with the growth demands of the fetus, that increase a pregnant woman's insulin needs by two to three times that of normal.
Insulin is needed to take the sugar from your blood and move it into your cells for energy. If your body cannot make this amount of insulin, sugar from the foods you eat will stay in your blood stream and cause high blood sugars. This is gestational diabetes.
Gestational diabetes means diabetes mellitus (high blood sugar) first found during pregnancy. It occurs in three to five percent of all pregnancies (in other words, one in 20 pregnant women will develop gestational diabetes); so, you can take comfort in the fact that you are not alone.
In most cases, gestational diabetes is managed by diet and exercise and goes away after the baby is born. Very few women with gestational diabetes require insulin to control this type of diabetes. If you do need insulin, it will ensure blood glucose stays in the acceptable range, thereby reducing the risks to you and your baby.
Gestational diabetes should not be taken lightly. Immediate risks to the mom and the fetus are very real; however, these risks can be minimized with good care and follow up.
Ante-natal Care
Ante-natal care should be hospital-based, from a multi-disciplinary team
Individualise insulin regimens and recommend 4-times daily glucose monitoring.
Aim to maintain glucose 4-7 mmol/L and HbA1c within the normal non-diabetic range.
Remember insulin requirements increase progressively from the 2nd trimester until the last month of gestation, when a slight fall-off may be noted
Hypoglycaemia and loss of awareness is common in early pregnancy. Hypoglycaemia does not appear to have long-term adverse effects on fetal development
Ketoacidosis can cause fetal death at any stage. All women should test urine for ketones if blood glucose is high, if vomiting occurs or if they are unwell.
Delivery
The timing of delivery is individualised; in women with good diabetes control and no complications, the pregnancy may be continued to 39-40 weeks.
Caesarian section rates are often higher than in non-diabetic women.
Post-natal Care
Insulin requirements fall dramatically after delivery, therefore reduce insulin doses.immediately to pre-pregnancy levels, to avoid hypoglycaemia.
Encourage slightly higher blood glucose levels than during pregnancy.
In breast-feeding mothers, reduce insulin dose further once lactation is established.
Discuss contraception while the patient is still in hospital.
All women should be seen by the diabetes pregnancy care team six weeks after delivery.
More Information
Finding out you have gestational diabetes can be very frightening. Not only do you have to deal with all the emotions (the ups and the downs) and the questions that come with being pregnant, but also the uncertainty of this new-found condition. Fortunately, as with all types of diabetes, there are many well-informed health professionals to help answer your questions and to guide you through this very important time in your life. The more you know, the easier it is to accept and make the necessary changes for a successful and happy pregnancy. Let’s first review how you got here.
Somewhere between 24 and 28 weeks into your pregnancy your doctor most likely sent you to be screened for the presence of gestational diabetes. (If you were at greater risk for getting gestational diabetes, your doctor may have sent you earlier, at 16 weeks.) You may think this is too late in your pregnancy to be finding out about such a problem, but in most cases, screening before this time would be of little value. It is the hormonal changes (hormones made by the placenta that resist insulin) in the second and third trimesters of pregnancy, along with the growth demands of the fetus, that increase a pregnant woman's insulin needs by two to three times that of normal.
Insulin is needed to take the sugar from your blood and move it into your cells for energy. If your body cannot make this amount of insulin, sugar from the foods you eat will stay in your blood stream and cause high blood sugars. This is gestational diabetes.
Gestational diabetes means diabetes mellitus (high blood sugar) first found during pregnancy. It occurs in three to five percent of all pregnancies (in other words, one in 20 pregnant women will develop gestational diabetes); so, you can take comfort in the fact that you are not alone.
In most cases, gestational diabetes is managed by diet and exercise and goes away after the baby is born. Very few women with gestational diabetes require insulin to control this type of diabetes. If you do need insulin, it will ensure blood glucose stays in the acceptable range, thereby reducing the risks to you and your baby.
Gestational diabetes should not be taken lightly. Immediate risks to the mom and the fetus are very real; however, these risks can be minimized with good care and follow up.
Ante-natal Care
Ante-natal care should be hospital-based, from a multi-disciplinary team
Individualise insulin regimens and recommend 4-times daily glucose monitoring.
Aim to maintain glucose 4-7 mmol/L and HbA1c within the normal non-diabetic range.
Remember insulin requirements increase progressively from the 2nd trimester until the last month of gestation, when a slight fall-off may be noted
Hypoglycaemia and loss of awareness is common in early pregnancy. Hypoglycaemia does not appear to have long-term adverse effects on fetal development
Ketoacidosis can cause fetal death at any stage. All women should test urine for ketones if blood glucose is high, if vomiting occurs or if they are unwell.
Delivery
The timing of delivery is individualised; in women with good diabetes control and no complications, the pregnancy may be continued to 39-40 weeks.
Caesarian section rates are often higher than in non-diabetic women.
Post-natal Care
Insulin requirements fall dramatically after delivery, therefore reduce insulin doses.immediately to pre-pregnancy levels, to avoid hypoglycaemia.
Encourage slightly higher blood glucose levels than during pregnancy.
In breast-feeding mothers, reduce insulin dose further once lactation is established.
Discuss contraception while the patient is still in hospital.
All women should be seen by the diabetes pregnancy care team six weeks after delivery.
More Information
Wednesday, January 23, 2008
Dr Tony Woolfson
Hi Lee,
Thanks for taking the trouble to reply and your offer of help.
Sorry not to get back to you sooner, but I've had a lot of replies around this, and I do a day job!
I have read your entire blog and was very moved by it. Not only do you have a bloody awful condition (the autonomic neuropathy is the pits), but you have courage not only to deal with it honestly but to share your emotions in public. I will certainly put a link to your blog on the site once it is up and running.
If I can ever be helpful to you as a resource to check things out, please feel free to contact me. Any time.
Any further thoughts you may have would be useful. I am also looking for an "advisory board" of some sort, who I can use to make sure I'm doing the best I can re site contact etc. Would you be interested?
Keep in touch - more in due course.
All good wishes,
Tony W
Dr Tony Woolfson MB BS DM MRCP(UK)www.tony.woolfson.net
Thanks for taking the trouble to reply and your offer of help.
Sorry not to get back to you sooner, but I've had a lot of replies around this, and I do a day job!
I have read your entire blog and was very moved by it. Not only do you have a bloody awful condition (the autonomic neuropathy is the pits), but you have courage not only to deal with it honestly but to share your emotions in public. I will certainly put a link to your blog on the site once it is up and running.
If I can ever be helpful to you as a resource to check things out, please feel free to contact me. Any time.
Any further thoughts you may have would be useful. I am also looking for an "advisory board" of some sort, who I can use to make sure I'm doing the best I can re site contact etc. Would you be interested?
Keep in touch - more in due course.
All good wishes,
Tony W
Dr Tony Woolfson MB BS DM MRCP(UK)www.tony.woolfson.net
Reply from a reader
Hiya mate,
Just thought I’d drop you a quick email.... you don’t me but I’ve just been reading your blog on Diabetes. I can’t say that I can completely understand how you feel about all of this but I can empathise a little.
Back in January 2005 I too was diagnosed with Type 1 at the age of 35.... I’ve always battled with my weight, drank far too much during my time in the RAF and was a heavy smoker.... so I blamed myself completely for it. Once I was under the control of the Consultant at Hospital though, he informed me that it was just a fluke.... these things happen blah blah....
Anyway, almost three later.... things are good.... It took me almost twelve months to feel ‘right’ again. I had the night time hypos, the feeling sh!t all the time.... I can understand how you feel Lee but be assured that it won’t last forever. Once you begin to bring it all under control and your body adjusts to the drugs (and it will take a while), life as a diabetic will get better.... I promise ya!
Anyway... take it easy and have a great Christmas
Best Wishes
Martin
Just thought I’d drop you a quick email.... you don’t me but I’ve just been reading your blog on Diabetes. I can’t say that I can completely understand how you feel about all of this but I can empathise a little.
Back in January 2005 I too was diagnosed with Type 1 at the age of 35.... I’ve always battled with my weight, drank far too much during my time in the RAF and was a heavy smoker.... so I blamed myself completely for it. Once I was under the control of the Consultant at Hospital though, he informed me that it was just a fluke.... these things happen blah blah....
Anyway, almost three later.... things are good.... It took me almost twelve months to feel ‘right’ again. I had the night time hypos, the feeling sh!t all the time.... I can understand how you feel Lee but be assured that it won’t last forever. Once you begin to bring it all under control and your body adjusts to the drugs (and it will take a while), life as a diabetic will get better.... I promise ya!
Anyway... take it easy and have a great Christmas
Best Wishes
Martin
glands
hi Fans!!!
well the stomach is still not right but i am trying different things and am making some progess, seeing my diabetic doc in feb, i need to ask about the glands in my cheeks, not sure if i mentioned it before but everytime i eat i getthis intense pain in the side on my mouth, a bit like when you have a pizzy cola bottle but x100!!, evertme i eat.. so niot nice so if anyone knows anything that may help let me know!!!!
hope you are all well
Saturday, January 12, 2008
Dads got type 2
Dad had been diagnised with type 2 diabetes today....... i had my suspicions he is a big guy always has been really but recently been very tired and not sleeping... he is seeing the diabetic nurse on monday i will let him learn as much as possible for himslef rather then dad if tried or do this... but if he needs me then he will ask
Sunday, December 30, 2007
American health care
I have just watched sicko and cant believe the system that they have over there when it comes to health care. we take it for granted that our health care is free.. shocking!!! i aint never gonna complain about the NHS again, watch sicko and you will see!!!
Friday, December 28, 2007
meals and injections
breakfast
2 pieces of toast
coffee
3 wheatabix hot milk
insulin
drugs
snack fruit-apple/banana
water
tea
lunch
sandwich or soup/vegtable
insulin
snack fruit yogurt
eveningmeal
pasta/or some meat and veg..(mom is very good when it comes to my diet maing sure i have 5 aday etc
insulin
check sugars during the day about x4 and before bed.. now its a pain if your sugars are low before you wanna go to bed as yu need to have a sandwich or some other type of carb..unless you want to wake up with a hypo
final injection and bed
the see what the next day has to offer
2 pieces of toast
coffee
3 wheatabix hot milk
insulin
drugs
snack fruit-apple/banana
water
tea
lunch
sandwich or soup/vegtable
insulin
snack fruit yogurt
eveningmeal
pasta/or some meat and veg..(mom is very good when it comes to my diet maing sure i have 5 aday etc
insulin
check sugars during the day about x4 and before bed.. now its a pain if your sugars are low before you wanna go to bed as yu need to have a sandwich or some other type of carb..unless you want to wake up with a hypo
final injection and bed
the see what the next day has to offer
Get by with a little help from my family and friends
I know i do keep saying it but the support from my family and friends has been amazing... i cant really describe how everyone has supported me, and if you have diabetes or neuropthy you will understand me when i say it is a very lonely disease. Its not like there is a guide to follow which tells you this will happen tomorrow or that will happen... you really do have to live day by day.. cant really make many plans as i dint know how i am going to be the following day and sometimes even in the next hour.. i do seem to be feeling very sick recently before and after meals... am trying to eat smalll and often and not food that is likely to bloat me..which givesme an idea..... i am going to write a small note of my diet for you and what i try and stay away from.. and if you are reading this with the same issues then maybe it will help you too.. if not then its another way of passing the time at this ungodly hour!!
Saturday, December 22, 2007
Sometimes........................
sometimes i wonder if i did something wrong to deserve this
sometimes i wonder if i could have stopped this
sometimes i wonder if i wanna carry on
sometimes i dont wanna take my tablets
sometimes i dont wanna take my blood
sometimes i wanna eat chocolate
sometimes i dont wanna see the doctor
sometimes i wanna wake up and run
sometimes i cant be bothered
sometimes i wanna SEE my friends
sometimes i want my independence
BUT I AWAYS KNOW I AM LOVED
sometimes i wonder if i could have stopped this
sometimes i wonder if i wanna carry on
sometimes i dont wanna take my tablets
sometimes i dont wanna take my blood
sometimes i wanna eat chocolate
sometimes i dont wanna see the doctor
sometimes i wanna wake up and run
sometimes i cant be bothered
sometimes i wanna SEE my friends
sometimes i want my independence
BUT I AWAYS KNOW I AM LOVED
Wednesday, December 19, 2007
Best friends in the world
I now i kinda said it in the last video but i was a bit blurred... i have been so touched my the support i have had from family and friends.. i would not have been able to cope without them ALL..
The hardest part to deal with has been the emotionall side.. the pain to some extent can be controlled and to be honest i am so used to it now..
but its the stuff in my head that hurst the most.. noy being able to do what i want when i want as my body just does not allow me to do things ..
thats when i can count on my friends and family to help out... coming to see me all the way from bromley and driving back the same day..
CHRISTINA i knowyou wont read this as you and computers dont get on, but you have been amazing and your support well i cant put into words...
i cant mention everyone but you all have been influential in your own ways in helping me deal with this pants situation..
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
The hardest part to deal with has been the emotionall side.. the pain to some extent can be controlled and to be honest i am so used to it now..
but its the stuff in my head that hurst the most.. noy being able to do what i want when i want as my body just does not allow me to do things ..
thats when i can count on my friends and family to help out... coming to see me all the way from bromley and driving back the same day..
CHRISTINA i knowyou wont read this as you and computers dont get on, but you have been amazing and your support well i cant put into words...
i cant mention everyone but you all have been influential in your own ways in helping me deal with this pants situation..
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
so god damn emotional
It cant stop welling up at the mo... i was gonna put a video on but i keep on blubering... turned into a right girl....
well i have had a few good days but feeling so tired .... i cant even walk down the stairs today
without being out of breath...i could sleep all day but i wont...
sent off my papers and stuff for disablilty living allowance, work has given me my last pat packet from them still waiting for someone to get back to me regarding PHI insurance...
soon be xmas though hoping next year willbe better than this...
well i have had a few good days but feeling so tired .... i cant even walk down the stairs today
without being out of breath...i could sleep all day but i wont...
sent off my papers and stuff for disablilty living allowance, work has given me my last pat packet from them still waiting for someone to get back to me regarding PHI insurance...
soon be xmas though hoping next year willbe better than this...
Thursday, December 13, 2007
Thursday, December 6, 2007
Tuesday, December 4, 2007
comunity support
had a visit from a comunity support officer getting me out of the house whch can be anything from a course to fishing to a day centre which i dont really wanna do...
had a call from OT today and they are installing bars in various places in tghe house to help me get about.. they will be making me an appointment to a centre where i can use eqiupment around the house which i may get installed to which will be helpful... i must admit having a bath is not only uncomforable but also awkward getting in and out... fingers crossed i amy be entitled to a shower......
had a call from OT today and they are installing bars in various places in tghe house to help me get about.. they will be making me an appointment to a centre where i can use eqiupment around the house which i may get installed to which will be helpful... i must admit having a bath is not only uncomforable but also awkward getting in and out... fingers crossed i amy be entitled to a shower......
i feel sick
not going to great the last few days... everytime i eat a meal it feels like a 4 course meal even though i have cut down on the size of the meals and am eating regular and small... it aint good feeling seick EVERY day..... there is a work xmas do on friday and as i havent seen everyone for ages i wanted to go.. one of the girls is planning of picking me up and taking me back god bless her.. but the way i feel at the moment i aint gonna be able to go.. gutted really as i wanted to go...
see how it goes i suppose...
see how it goes i suppose...
Friday, November 30, 2007
More about diabetes
The Story of a RibbonDiabetes, often viewed as a "simple little sugar problem," is actually a very serious disease that affects 120 million children, women and men worldwide--and the number is increasing. This silent killer, which is a leading cause of blindness, amputations, kidney failure, heart disease, stroke and other devastating complications, is desperately in need of a cure. The Gray Ribbon Campaign began with a small group of people who decided it was time to get the message across. And noting the success of other ribbon campaigns this group realized that diabetics (and those who care about them) should have their own ribbon---with gray representing clouds (every cloud must have a silver lining) and with the stone symbolizing blood. Thus the Gray Ribbon was born. The ribbon campaign has caught on and is spreading like wildfire...in the USA, Canada, the United Kingdom, Greece, Mexico....wherever there is someone who has heard about the Gray Ribbon.
Type 1 diabetes ,
usually diagnosed in children and adolescents, occurs when the pancreas is unable to produce insulin. Insulin is a hormone that ensures body energy needs are met. Approximately 10 per cent of people with diabetes have type 1 diabetes.The remaining 90 per cent havetype 2 diabetes , which occurs when the pancreas does not produce enough insulin or when the body does not effectively use the insulin that is produced.
usually develops in adulthood, although increasing numbers of children in high-risk populations are being diagnosed.
A third type of diabetes, gestational diabetes, is a temporary condition that occurs during pregnancy. It affects approximately 3.5 per cent of all pregnancies and involves an increased risk of developing diabetes for both mother and child.
Is diabetes serious?
If left untreated or improperly managed, diabetes can result in a variety of complications, including:
Heart dieasePeople with diabetes are at very high risk of heart disease, also known as cardiovascular disease (CVD) and stroke (cerebrovascular disease). In fact, up to 80% of people with diabetes will die as a result of a heart attack or stroke.
Kidney disease About 40% of people with Type 1 diabetes (juvenile onset) and 10% of people with Type 2 diabetes (adult onset) will eventually develop kidney disease which will lead to permanent chronic renal insufficiency (kidney failure).
Eye disease People with diabetes are more likely to develop cataracts at a younger age and are twice as likely to develope glaucoma, but diabetes' effect on the retina is the main threat to vision. Called diabetic retinopathy, this effect of diabetes on the eyes is the most common cause of blindness in people under age 65
Problems with erection
(impotence) ED is defined as the persistent inability to get or maintain an erection that is satisfactory for sexual activity. Most men will experience erectile problems during their life. Although ED affects most men at some point in their lives, it is much more common in men with diabetes. In fact, in up to 12% of men with diabetes, ED is the first sign that leads to the diagnosis of diabetes. Fifty percent of men will experience ED within 10 years of diagnosis of diabetes. Older men with a longer duration of diabetes, poor blood glucose control, and who smoke, have high blood pressure, high cholesterol and heart disease, are at highest risk.Nerve damageGastroparesis affects up to 75% of people with diabetes.
Diabetes is also one of the most common causes of gastroparesis (delayed emptying of the stomach). Gastroparesis occurs when nerves to the stomach become damaged or stop working. The vagus nerve controls the movement of food through the digestive tract, and when damaged, the muscles of the stomach and intestines no longer work normally, and the movement of food slows or stops.
Diabetes can be very damaging to sensory nerves (causing a complication called neuropathy), especially those in the extremities such as the hands and feet. This nerve damage can lead to loss of sensation in the feet, which makes people more prone to injury and less likely to be aware of injuries.
What are the symptoms?
Signs and symptoms of diabetes include the following:
There are 3 main types of diabetes.
usually diagnosed in children and adolescents, occurs when the pancreas is unable to produce insulin. Insulin is a hormone that ensures body energy needs are met. Approximately 10 per cent of people with diabetes have type 1 diabetes.The remaining 90 per cent havetype 2 diabetes , which occurs when the pancreas does not produce enough insulin or when the body does not effectively use the insulin that is produced.
Type 2 diabetes
usually develops in adulthood, although increasing numbers of children in high-risk populations are being diagnosed.
A third type of diabetes, gestational diabetes, is a temporary condition that occurs during pregnancy. It affects approximately 3.5 per cent of all pregnancies and involves an increased risk of developing diabetes for both mother and child.
Is diabetes serious?
If left untreated or improperly managed, diabetes can result in a variety of complications, including:
Heart dieasePeople with diabetes are at very high risk of heart disease, also known as cardiovascular disease (CVD) and stroke (cerebrovascular disease). In fact, up to 80% of people with diabetes will die as a result of a heart attack or stroke.
Kidney disease About 40% of people with Type 1 diabetes (juvenile onset) and 10% of people with Type 2 diabetes (adult onset) will eventually develop kidney disease which will lead to permanent chronic renal insufficiency (kidney failure).
Eye disease People with diabetes are more likely to develop cataracts at a younger age and are twice as likely to develope glaucoma, but diabetes' effect on the retina is the main threat to vision. Called diabetic retinopathy, this effect of diabetes on the eyes is the most common cause of blindness in people under age 65
Problems with erection
(impotence) ED is defined as the persistent inability to get or maintain an erection that is satisfactory for sexual activity. Most men will experience erectile problems during their life. Although ED affects most men at some point in their lives, it is much more common in men with diabetes. In fact, in up to 12% of men with diabetes, ED is the first sign that leads to the diagnosis of diabetes. Fifty percent of men will experience ED within 10 years of diagnosis of diabetes. Older men with a longer duration of diabetes, poor blood glucose control, and who smoke, have high blood pressure, high cholesterol and heart disease, are at highest risk.Nerve damageGastroparesis affects up to 75% of people with diabetes.
Diabetes is also one of the most common causes of gastroparesis (delayed emptying of the stomach). Gastroparesis occurs when nerves to the stomach become damaged or stop working. The vagus nerve controls the movement of food through the digestive tract, and when damaged, the muscles of the stomach and intestines no longer work normally, and the movement of food slows or stops.
Diabetes can be very damaging to sensory nerves (causing a complication called neuropathy), especially those in the extremities such as the hands and feet. This nerve damage can lead to loss of sensation in the feet, which makes people more prone to injury and less likely to be aware of injuries.
What are the symptoms?
Signs and symptoms of diabetes include the following:
- Unusual thirst
- Frequent urination
- Weight change (gain or loss)
- Extreme fatigue or lack of energy
- Blurred vision
- Frequent or recurring infections
- Cuts and bruises that are slow to heal
- Tingling or numbness in the hands or feet
- Trouble getting or maintaining an erection
drugs
i had my drugs delivered today .. the pharmacy make up a weekly tray for me and deliver them every month for me which saves alot of hassle opening bottles and stuff i am on about 8 different types.... although i do have enough supply of fortimel drinks to last me a lifetime as whenb i do take themn i feel very bloated and a bit sick so when i am suppose to have about 3 a day i am prob having that a week!!! so if you need any give me shout.. i am sure i can do you a deal lol..i have put on a stone though since i have been released from prison/sorry hospital.... so that is good.. but some of my clothes are also getting s bit tight now....
living hell
yesterday went well until the night came along....... i took my blood at 11 as i could feel my sugars were low it was about 5ml so i had a sandwichh to raise it... after about an hour i satrted to feel odd... a feeling i get when my sugars are high usually above 10 or so... stomach tightens, seqwatingt stiffness and feet start to hurt.. so i took my bllod again it showed 16 !!!!! which i could not understand ... so now i had the dilema of taking some insulin and risk having a hypo early in the morning which is very scary they reached just below 2 one time and that is very scary blurred vision feeling drunk/sick/giddy its hard to explian.. anyway i chose not to and insted endur the pain all night .. ice cold blood running through your veins shooting painsin my feet and legs.... very sensitive skin....
but thats what its like at the mo....ah well thats life......
some life!!!!!!!
oh yeah i did get some sleep at about 6 this morning.... but my stomachhas been playing up as it has been for the past few mo9nths... it happens once maybe twice per week and it kills me for the day ... iys like having foos poisioning.. uncontrolale bowls you dont know when your gons actualy go... every fart seems like a movement!!! and very gasy .... wonder if thats why i am still single lol... or is that because i cant get it up still... i have been prescribed viagra.... but i havent yet have the privalge to use it yet ... 1 i havent been to the docs to pick it up and 2 would like to try it out on a girl rather than my left hand lol.... but i do have something planned ...mmmm but that would be telling...
but thats what its like at the mo....ah well thats life......
some life!!!!!!!
oh yeah i did get some sleep at about 6 this morning.... but my stomachhas been playing up as it has been for the past few mo9nths... it happens once maybe twice per week and it kills me for the day ... iys like having foos poisioning.. uncontrolale bowls you dont know when your gons actualy go... every fart seems like a movement!!! and very gasy .... wonder if thats why i am still single lol... or is that because i cant get it up still... i have been prescribed viagra.... but i havent yet have the privalge to use it yet ... 1 i havent been to the docs to pick it up and 2 would like to try it out on a girl rather than my left hand lol.... but i do have something planned ...mmmm but that would be telling...
Wednesday, November 28, 2007
not a bad day
not a bad day so far today, i goes like that sometimes i cant get out of bed and other days i can
Tuesday, November 27, 2007
doctors and diabetes
i have come to the conclusion that doctors rea;;y dont know that much about diabetes and neuropathy, it took them 3 months to finally diagnose me with the neuropathy but it took me ten minutes to find it on thenet god it was staring me in the fcae it was so blatent nevermind what do i know hay... well i am from birmingham!!!! thats my excuse anyway!!
PHI Insurance
Permanent Health Insurance (PHI)
The Permanent Health Insurance (PHI) contract is designed to produce an income for people unable to work due to ill health from any cause.
This scenario is much more common than most people realise, and a lot of people who have a problem get a serious shock when they find how little money they have to live on.
State benefits are sod all, and if you are employed you should find out where your employer stands.
He may have a policy that will pay out for you.
He may have a house rule of 6 months pay.
If there is a pension scheme you might have benefits from it, ( get them quantified, and remember to check your salary definition, esp. if you get commission, bonus, or overtime ).
There may be no formal system in place at all, and it is at his discretion.
They may sack you on the spot or simply give you the usual months notice.
Remember that at the end of the day , no matter how much he may want to support you , your employer is going to have to stop your salary at some stage simply because he won't be able to carry you. Find out where you stand.
If the amount is not enough see about a Permanent Health Insurance (PHI) policy.
Policy details
An income, which can be inflation protected, until retirement. You can normally insure up to 50-65%* of your gross income, (this varies from provider to provider).
Note, if you are arranging your OWN PHI policy, and are not going to be covered by a group scheme then in the event of a claim your income will be tax free. The policy will normally pay out some time after the date at which you stopped working. The shorter this period, the greater the premium. Most people opt for three months, six months or twelve months, according to their position. (Clearly if your employer will pay for six months you don't need the policy to pay out before this). The premium depend on age, occupation, and will normally exclude pre existing conditions.
Watch for the definition of disability. Normally an " own occupation" basis it can be, ( esp. for those in risky jobs, or for whom a small problem can be a disaster), " own or any ", which means that they can take a very tough view of any claim.
Also be aware that many policies are reviewable. This means that if the overall claims, ( not your individual ones, but those of all policyholders ) , are greater than expected they can increase the premiums across the board to all policy holders.
This means that companies can try to buy business with low premiums, only to increase them in later years. Because of this hazard the cheapest quote may not be the best. What you need is "own occupation" from an insurer who has had long experience in the PHI arena.
* If your PHI is arranged by your employer under a group scheme then benefits ARE taxable. However you can be covered for up to 75% of income.
company sick pay stopping
Work called today after no communication in the past 2 months saying my sick pay will stop at the end of december. not a bad run really as i havent been at work for the past 6 months, not for the want of trying though. dont like having to stay in, someone will be contacting me regarding PHI insurance so i need to look into that and find out more about it, i think i will be able to get upto 50% of my salary. fingers crossed.
i havent looked into c;aiming any beniftsover the past few months but my sisters mate reckons that i would be entitled to some, i suppose that denial wa always an issue not actually telling myself that i am disabled id the makes sense.
oh yeah and having a bad day today sugars aare high which menas my back is on fire my stomsch feels like a felt has been tightened around it and i need to go to the toilet .. not good but nothing new there.
i havent looked into c;aiming any beniftsover the past few months but my sisters mate reckons that i would be entitled to some, i suppose that denial wa always an issue not actually telling myself that i am disabled id the makes sense.
oh yeah and having a bad day today sugars aare high which menas my back is on fire my stomsch feels like a felt has been tightened around it and i need to go to the toilet .. not good but nothing new there.
Monday, November 26, 2007
what the doc said
i went too see my new diabetic doctor who hadben recomended by a nursein the last hospital i visited thinking how much good advice he would be able to give me... and god how i was wrong i developed neuropathy at the same timeas i was diagnosed with diabetes so as you would asume and what i have read the 2 would be connected... but oh know said the doctor not in my exeprinced do you get neuropathy so soon after being diagnosed. bit of a coincidnece then having the 2 hand in hand but oh know he is right isnt he..
what i have found with these docs is the total lack of knowledge when it comes to the condition!!!
what i have found with these docs is the total lack of knowledge when it comes to the condition!!!
Me and my diabetes
(forgive the spalling i wis naver vary gut!!)
3 months ago i was diagnosed with type 1 diabetes and have just been discharged from hospital with perifernal neoropathy. Which basicly means my nerves have been affected by the disease some have been severed and some just cut off completley. Not that i am looking back and saying "only if i had done something sooner" but if i had been more aware of the disease i proberly would not be if this situation now.i believe i have had the symtons for about 5 years now,Weight lossalways tireddizzy spellsissues done there if you knpw what i meanrashes/sores on my legspins and needles in my feetneed i go on...... but as a typical bloke i just ignored this and thought it will go away!!!i dont believe that there is enough awarness about the disease even though 180 million peopleworld wide have diabetes. its not about how much sugar you eat that causes the issue, ANYONE can get!!!!normally it is passed through the family but as in my case this is also not true.there are 2 types type 1 insulin controlled daily injectionsType 2 which is usually diagnosed in the later stages of life which is diet controlled through tablets. There is a big differnce between the 2.....my day consists of constant pain, numb feet, pins and needles in my hands, numb back, stomach problems!! both ends!!!!!! problems with my eyes taking 5 different types of drugs (all precribed of course!) constant visitsto the gp, watching everthing that i eat, making sure that i dont eat to much supary foods that will snd my blood sugar to high and if i do my liver kidneys and various other organs will shut down. Or not having enough insulin or suagr in my body that will send me in to a "hypo" which if not caught in time could send me into a coma and Die!!!!Not that i want to scare anyone nor is this a plea for you to feel sorry for me as for people who know me this is not the case.what i would like to do is make you more aware of the symptoms what to look out for and if you like ahve a look at the link and maybe donate some money, you never know you might help someone you kinow with the disease!next time you feel ANY of the symtoms i hav =e mentioned go check your blood sugars ouy with your Gp or Pharmacy. You never know.................Thanks for your time.......Lee
Sunday, November 25, 2007
Me and my diabetes
i am 33 and have been diagnosed with type 1 since may this year.... i say diagnosed becasue i have obviously had it for some time as i have spent the last 3 months in hospital for the docs to finally diagnose me with autonomic neoropathy why it took so long i do not know...i used to live a fairly active life going out every friday living in a flat down south .... but since this i have had to move back with the folks as i cant really function to well by myself.... why well let me give you a little insite to a "normal" day....sometimes i wake in the middle of the night and have to pee in a bottle by my bed a i cant make it to the bathroomi also have to self cathatorise 2 maybe 3 times a day with involves inserting a plastic tube where plastice tubes should not go so i can peewhen i go for a number 2 it usualyy takes me 3 or for times before i get a movemennt and when i do it knocks me for 6 and i have to lie downi have not sensation in my feet, parts of my back and stomah a bit on my face and my hands are tingling and hurt ( the same way my feet were before i lost the feeling its a bit like having sunburn but on a daily basisi can`t get an erection.... the youngest person i know to have viagra prescribed....but not sure when i will actually use it for any real purpose i dont really get out too much....why well my blood pressure has been affected so i cant stand upstraighjt for any long period of time without feeling dizzy and sick (apart of the neoropathy)everytime i eat and i mean evertime i even think about eating as well i have extreme pain in the side of my cheeks as my glands have been affected... think of how your mouth goes when you eat a fizzy cola bottle x that by ten and you have a slight idea of the feelingobvioulsy i am injecting x4 a dayi am on enough drugs to start my own pharmacyi cant walk that well so for long journeys i need a wheel chairdo you have this or know anyone with the same issues... as i could do with speaking to someone who knws what i am going through..i wish i just ahd to deal with my food or injecting but this is just a small part of what u can or cant doso i can answer the question things could be worse by saying... B@;;@CKS CAN THEY !!!!!!!!!!!!!!!!!lee
Type 1 Diabetes
Type 1 Diabetes
The causes of Type 1 diabetes appear to be much different than those for Type 2 diabetes, though the exact mechanisms for development of both diseases are unknown. The appearance of Type 1 diabetes is suspected to follow exposure to an "environmental trigger," such as an unidentified virus, stimulating an immune attack against the beta cells of the pancreas (that produce insulin) in some genetically predisposed people. Treatment of Type 1 Diabetes
Lack of insulin production by the pancreas makes Type 1 diabetes particularly difficult to control. Treatment requires a strict regimen that typically includes a carefully calculated diet, planned physical activity, home blood glucose testing several times a day, and multiple daily insulin injections.
The big three diabetes signs and symptoms
The big three diabetes signs and symptoms
The symptoms of diabetes can be reduced to three major factors. In the case of type 1 diabetes, these symptoms can develop quickly. However, when it comes to type 2 diabetes, symptoms may be far subtler and develop slower.
What are the big three symptoms of diabetes?
The three major symptoms of diabetes are: - Polyuria (The need to urinate frequently)- Polydipsia (Increased thirst and fluid intake)- Polyphagia (Increased appetite)
What happens when a person develops diabetes and reports these symptoms?
These symptoms are caused by the effect of diabetes on the body. If the level of glucose in the blood becomes too high, glucose is improperly reabsorbed through the proximal renal tubuli. This results in higher levels of glucose being present in the urine (glycosuria) and in turn increases the osmotic pressure. This prevents water being reabsorbed by the kidney, resulting in greater urine production. This causes the patient to urinate frequently. Water held in the cells is required to replace lost blood volume, and this causes dehydration and thirst.
What are the other major symptoms of diabetes?
Glucose absorption can change the shape of the lens in the eye, leading to an altered vision quality. This can lead to blurred vision, a common complaint that indicates type 1 or type 2 diabetes. Diabetic Ketoacidosis is another symptom of diabetes.
Where can I learn more about diabetes, diabetes diagnosis and symptoms of diabetes?
Please click here to read more about diabetes symptoms>>Please click here to read about symptoms of high and low blood sugar>>Please click here to learn about diabetes health numbers>>Please click here to use the Diabetes.co.uk BMI calculator>>
I’m worried I might have diabetes, who should I speak to?
Speak to a doctor or healthcare expert as soon as possible. Members of the Diabetes.co.uk community may also be helpful:
Diabetic neuropathy
Diabetes: Neuropathy
Introduction to diabetic neuropathy
Peripheral neuropathy
Autonomic neuropathy
Introduction
A common complication of diabetes is damage to the nerves that allow you to feel sensations such as pain. This is called neuropathy. There are a number of ways that diabetes damages the nerves, but they all seem related to blood glucose being too high for a long period of time.
Diabetes-related nerve damage can be painful, but it isn't severe pain in most cases.
There are four types of neuropathy: peripheral, autonomic, proximal and focal.
Peripheral Neuropathy The areas of the body most commonly affected by peripheral neuropathy are the feet and legs. Nerve damage in the feet can result in a loss of foot sensation, increasing your risk of foot problems. Injuries and sores on the feet may go unrecognized due to lack of sensation. Therefore, you should practice proper skin and foot care. Rarely, other areas of the body such as the arms, abdomen, and back may be affected.
Tingling
Numbness (severe or long-term numbness can become permanent)
Burning
Pain
In most cases, early symptoms will become less when blood glucose is under control. Medications can be taken to help control the discomfort if needed.
To prevent peripheral neuropathy:
Work with your doctor to keep your blood glucose under tight control
To help prevent the complications of peripheral neuropathy:
Examine your feet and legs daily
Apply lotion if your feet are dry
Care for your nails regularly. (Go to a podiatrist, if necessary)
Wear properly fitting footwear and wear them all the time to prevent foot injury
Autonomic Neuropathy Autonomic neuropathy most often affects the digestive system, especially the stomach, blood vessels, urinary system, and sex organs. To prevent autonomic neuropathy, continuously keep your blood glucose levels well controlled.
Symptoms of neuropathy of the digestive system may include:
Bloating
Diarrhea
Constipation
Heartburn
Nausea
Vomiting
Feeling full after small meals Treatments may include:
Eat smaller meals
Medicines
Symptoms of neuropathy of the blood vessels may include:
Blacking out when you stand up quickly
Increased heart rate
Dizziness
Low blood pressureTreatments may include:
Avoid standing up too quickly
Medicines
Wearing special stockings
Symptoms of neuropathy of the male sex organs may include:
Unable to have or maintain an erection (erectile dysfunction)*
"Dry" or reduced ejaculations *Note: Impotence needs to be evaluated by your doctor. It may be caused by your medicines or factors other than diabetes.
Treatments include:
Counseling
Penile implant
Vacuum erection device
Penile injections
Medicine Symptoms of neuropathy of the female sex organs may include:
Decrease in vaginal lubrication
Decrease in number of orgasms or lack of orgasmTreatments include:
Counseling
Vaginal estrogen creams, suppositories and rings
LubricantsSymptoms of neuropathy of the urinary system may include:
Unable to completely empty bladder
Bloating
Incontinence (leaking urine)
Increased urination at night Treatments include:
Medicines
Self-catheterization (inserting a catheter into the bladder to release urine)
Surgery
Proximal Neuropathy
Proximal neuropathy causes pain (usually on one side) in the thighs, hips, or buttocks. It can also lead to weakness in the legs. Treatment for weakness or pain is usually needed and may include medication and physical therapy. The recovery varies, depending on the type of nerve damage. Prevention consists of keeping blood glucose under tight control.
Focal Neuropathy
Diabetic neuropathy can also appear suddenly and affect specific nerves, most often in the head, torso, or leg, causing muscle weakness or pain. This is known as focal neuropathy. Symptoms may include:
double vision
eye pain
paralysis on one side of the face (Bell's palsy)
severe pain in a certain area, such as the lower back or leg(s)
chest or abdominal pain that is sometimes mistaken for another condition such as heart attack or appendicitis
Focal neuropathy is painful and unpredictable, however, it tends to improve by itself over weeks or months and does not tend to cause long-term damage.
Other Nerve Conditions Seen With Diabetes
People with diabetes can also develop other nerve-related conditions, such as nerve compressions (entrapment syndromes).
Carpal tunnel syndrome is a very common type of entrapment syndrome and causes numbness and tingling of the hand and sometimes muscle weakness or pain.
Prevention of Diabetic Neuropathy
Keeping tight control of your blood sugar levels will help prevent many of these diabetes-related nerve conditions. Talk to your doctor about optimizing your individual diabetes treatment plan
Reviewed by Certified Diabetes Educators in the Department of Patient Education and Health Information and by physicians in the Department of Endocrinology at The Cleveland Clinic. Edited by Cynthia Haines, MD, WebMD, September 2005. Portions of this page copyright © The Cleveland Clinic 2000-2005
Introduction to diabetic neuropathy
Peripheral neuropathy
Autonomic neuropathy
Introduction
A common complication of diabetes is damage to the nerves that allow you to feel sensations such as pain. This is called neuropathy. There are a number of ways that diabetes damages the nerves, but they all seem related to blood glucose being too high for a long period of time.
Diabetes-related nerve damage can be painful, but it isn't severe pain in most cases.
There are four types of neuropathy: peripheral, autonomic, proximal and focal.
Peripheral Neuropathy The areas of the body most commonly affected by peripheral neuropathy are the feet and legs. Nerve damage in the feet can result in a loss of foot sensation, increasing your risk of foot problems. Injuries and sores on the feet may go unrecognized due to lack of sensation. Therefore, you should practice proper skin and foot care. Rarely, other areas of the body such as the arms, abdomen, and back may be affected.
Tingling
Numbness (severe or long-term numbness can become permanent)
Burning
Pain
In most cases, early symptoms will become less when blood glucose is under control. Medications can be taken to help control the discomfort if needed.
To prevent peripheral neuropathy:
Work with your doctor to keep your blood glucose under tight control
To help prevent the complications of peripheral neuropathy:
Examine your feet and legs daily
Apply lotion if your feet are dry
Care for your nails regularly. (Go to a podiatrist, if necessary)
Wear properly fitting footwear and wear them all the time to prevent foot injury
Autonomic Neuropathy Autonomic neuropathy most often affects the digestive system, especially the stomach, blood vessels, urinary system, and sex organs. To prevent autonomic neuropathy, continuously keep your blood glucose levels well controlled.
Symptoms of neuropathy of the digestive system may include:
Bloating
Diarrhea
Constipation
Heartburn
Nausea
Vomiting
Feeling full after small meals Treatments may include:
Eat smaller meals
Medicines
Symptoms of neuropathy of the blood vessels may include:
Blacking out when you stand up quickly
Increased heart rate
Dizziness
Low blood pressureTreatments may include:
Avoid standing up too quickly
Medicines
Wearing special stockings
Symptoms of neuropathy of the male sex organs may include:
Unable to have or maintain an erection (erectile dysfunction)*
"Dry" or reduced ejaculations *Note: Impotence needs to be evaluated by your doctor. It may be caused by your medicines or factors other than diabetes.
Treatments include:
Counseling
Penile implant
Vacuum erection device
Penile injections
Medicine Symptoms of neuropathy of the female sex organs may include:
Decrease in vaginal lubrication
Decrease in number of orgasms or lack of orgasmTreatments include:
Counseling
Vaginal estrogen creams, suppositories and rings
LubricantsSymptoms of neuropathy of the urinary system may include:
Unable to completely empty bladder
Bloating
Incontinence (leaking urine)
Increased urination at night Treatments include:
Medicines
Self-catheterization (inserting a catheter into the bladder to release urine)
Surgery
Proximal Neuropathy
Proximal neuropathy causes pain (usually on one side) in the thighs, hips, or buttocks. It can also lead to weakness in the legs. Treatment for weakness or pain is usually needed and may include medication and physical therapy. The recovery varies, depending on the type of nerve damage. Prevention consists of keeping blood glucose under tight control.
Focal Neuropathy
Diabetic neuropathy can also appear suddenly and affect specific nerves, most often in the head, torso, or leg, causing muscle weakness or pain. This is known as focal neuropathy. Symptoms may include:
double vision
eye pain
paralysis on one side of the face (Bell's palsy)
severe pain in a certain area, such as the lower back or leg(s)
chest or abdominal pain that is sometimes mistaken for another condition such as heart attack or appendicitis
Focal neuropathy is painful and unpredictable, however, it tends to improve by itself over weeks or months and does not tend to cause long-term damage.
Other Nerve Conditions Seen With Diabetes
People with diabetes can also develop other nerve-related conditions, such as nerve compressions (entrapment syndromes).
Carpal tunnel syndrome is a very common type of entrapment syndrome and causes numbness and tingling of the hand and sometimes muscle weakness or pain.
Prevention of Diabetic Neuropathy
Keeping tight control of your blood sugar levels will help prevent many of these diabetes-related nerve conditions. Talk to your doctor about optimizing your individual diabetes treatment plan
Reviewed by Certified Diabetes Educators in the Department of Patient Education and Health Information and by physicians in the Department of Endocrinology at The Cleveland Clinic. Edited by Cynthia Haines, MD, WebMD, September 2005. Portions of this page copyright © The Cleveland Clinic 2000-2005
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