Monday, 20 December 2010

yo yo

3 hypos yesterday.... well i suppose it was my own fault really.. i woke with them to high... so i adjusted... to much... hypos number 1.... then treated that... too much... too high... compensated for that which too much correction.... then later on... didnt do my sums... and put too much in on my rice that o had....
they forget to mention that you need a maths degree when you carb count... well that and the fact i am a brummie dont help much!!1lol

oh a positive note... i have a new addition to the family.. her name is ROXY and she is a 5 month old cross persion/moggy and is beautiful .. i have been wanting a cat for a while and Jo`s mate needed to get rid of her ... so as a xmas prezzie Jo got her for meeee... yes yes i know animals are for life not just for xmas... but anyone who knows me know i am Mr animal man.... and she has bought an extra sparkle to the flat... fluffy is now getting used to her... rather than running around the flat and hiding behind the telly when he 1st looked at her... they had their 1st kiss last night.,... then ROXY gave him a slap around teh face .."how very dare you, what kind of woman do you think i am "... then turns and puts her bum in his face... and fluffy just sat there and looked at me ... i just said "WOMEN" hahaha
who would have thought 2 animals would bring so much fun!!! .. here is to many more comedy moments...

Wednesday, 17 November 2010

i wake in the morning...

i wake in the morning not knowing how i will be
will it be my stomach or my legs today we will see
will i be able to walk around just free
or sit in doors and watch TV
i wonder what the day will hold
and sit a wonder was it may soul i sold
but i wont let this blip get me down
as in my mind i go to town
and i dance and sing the night away
and so i live to fight another day......

Thursday, 4 November 2010

depression ... stress.. the invisible thing....

i have written about this before.... i am no doctor and no expert.. but i can only talk about what i have experienced and what i have seen...
depression and stress are conditions that are very difficult to understand... very much like having nerve pain... it exists.... but its hard to treat.. and hard to explain.. and everyone deals with it in their own way... some have drugs.... some dont... some get angry... some go quiet... there is noo right or wrong way... but.. this is know... ignore it and it will consume you and it will affect you and everyone around you... so find your way... dont be afraid to talk about it... do`nt be afraid to ask for help.... if you break your leg do you get it sorted... yes and over time it will heal... if you dont will heal wrong and be crocked and painful for the rest of your life.....
from someone who used to clam up.. and try and deal with things himself.. from being too proud to ask for help... to burying my head in the sand for along time... the thing i did was be open about it all and learn how to talk about it all... weather it be my "man Issues"... or temper.. or not being able to cope with the pain....
i mean i am talking to myself now... this is how i deal with it ... we are all different.... but no matter how you deal with it... you are not alone in this...
i have said this for a while now... "DONT SUFFER IN SILENCE"
you are not alone....

Monday, 25 October 2010

october.... what a month so far....

well i havent written for what seems ages now... so i thought i would give you a little insight as to why and what has been going on in the land of lee....
well at the mo.. i havent been feeling to well... got some sort of bug.. so its affecting my stomach... bit up in down really.... one min i am coolio then i wanna lay down... had the heart rate increase tonight which feels like its popping outta the chest .. which can be a bit scary... anyway...
well beginging of the month the flat was broken into and my laptop and my camera was stolen... my 2 life lines!!... gutted... although the insurance covered it... i was feeling a little on edge for a few days... as they came in while i was asleep... which was kinda good in a way as i normally wake up a bit during the night... so glad i didnt bump into anyone....
the following thursday.. i found dasiy one of my rabbits had been killed by a fox.... and then tried to sort the other 2 out... couldnt get them in teh pen... so was trying to check on them as often as i could throug the night.... about 9.30 i heard a screaming... one of teh rabbits had been attacked... well at the time i thought it was both of them.. until fluffy ran past me.... so i through a chair towards where i could here the noise coming from.... to try n scare whatever it was from attacking pinky... after a couple of atempts and running in to get a torch i managed to get fluffy and put him inside teh flat.... went back out to hear pinky still screaming but i couldnt get to her... it sounded like she was under the shed... the scream stop... and i knew there was nothin i could do.... so i went back to sort fluffy out.... he is now living in teh flat... and is back to normal after being very quiet for a couple of days... he is now lording ot up aorund teh flat... and has taken to my arm chair which he watches telly from now lol... but i need to toilet train him again!!!!!!!!!!...
also today i went out and checkedf the bike to find that the skull head dust caps i had got have been nicked to... so overall october.... apart from my bday... Which was lovely.... Jo got me a necklace,, and a braclet... and a cake and the kids gave me a card.. which was lovely xx sonj gpt fluffy a new cage for me and mom n dad got me these amazing new boots.... i have been hunting for ages now for something other than my croc typr thing to wear.. my feet can normally only take being in something other than those for a couple of hours and i have to take em off... but these new babies are amazing soooooo comfy keeps my feet warm and it doesnt feel like i have them on... ahh teh little things that you take for granted...

got my new camera now and laptop as you can see...loving the photogaphy course now as... learning so much.... although all the work i did on it was wass on the laptop which was stolen... so gotta do that all over.... but hey ... could have been worse xx

Wednesday, 22 September 2010

RBS Community Award

I was entered for a community award by my old work mates at RBS in Bromley.... and won..;)....the prize was £100 to a charity of my choice.... so i choose poole hospital kids diabetic department.... it will help towards their parties and any events they may do to.... wanted it to go where it may be better off than to a large charity and be swallowed up.....

chuffed....

Saturday, 4 September 2010

 
Posted by Picasa

whats on your mind....

i have always said that if your mind aint the right place then the rest wont work.... since the challenge i have been a bit low... not having a focus.. which has affected many areas of my life.. relationships and my body.... its been staring me in the face for a while but i havent noticed it... just losing interest in alot of things and feeling down... reason.. well i have been very very bored and felt like i had no purpose.. see the illness is not just a physical thing it also alot to do with your mental attitude and for the past few months i have let my inablility to work take over and not done anything about it.. i was taking some photos the other day and had forgottten how much o love it... the buzz i get from taking a great photo and sharing them takes me to where i want to be... like in what i said all along in the documentary really... so i am going to get off my backside and do something about it... and give myself something to proud of... and more of a reason to get up in the morning...
so i hope you enjoy looking at the photos as much as i love taking them.....

feathered angel

 
Posted by Picasa

doing what i love......

 
Posted by Picasa

Thursday, 26 August 2010

to carb or not to carb...

i have tried many ways to control my diabetes recently.... a low carb diet was the way forward to me for a while... and it worked... but recently as my stomach has bee more tolerant to certain foods i have found myself eating more carbs.. ad my sugars have been more out ot control...i guess that it does come down to carb counting.. but this is not a perfect art..as every food is different in how it affects you.....i know each to their own..... but what i have found is less carbs there is less room for error... less calculations... less spikes.. less insulin... less hypos.. less hassle....
but this is me.... and you are you.....

Wednesday, 18 August 2010

The Hospital... Diabetes

i have mixed emotions about it really... i think that yes.. they didnt show the difference between type 1 and 2.... yes some words were edited badly... yes the doctor came across in a poor light...
BUT...
it did point out the complications of poorly controlled diabetes.. which is something close to my heart... so if there is any sort of positive that has come from the programme... then i believe it put a face to the complications and how severe and real they can be... maybe the title should have been complications of DIABETES as this happens to both type 1 and 2....
Diabetes Uk them selves are at fault sometimes at not showing the difference in their marketing between the different types of diabetes... remember the measuring tapes recently....
there will always be something wrong and someone upset...

Tuesday, 17 August 2010

what a lovely comment.....;)

Your story is an inspiration to diabetics everywhere, and to be honest it deserves more views and recognition. I do sometimes find having diabetes challenging, but with the related condition, you really are an inspiration, as it shows to us diabetics who do not have any of the complications, how grateful we should be

My life with Diabetes From a different angle

we will see......

have really said much about how its going.... other rant my video rants... well its been tough... i wont lie... dealing with the pain recently has been hard... a few early morning wake ups with the gremlins attacking me... my stomach has been playing up... i cant go to the toilet just once... i have to keep going and canyt hold it.. so a 4 oclock visit means 3 more.. maybe every half hour..... then there is the sweats .. some nights i have to change 2 vests.. i have to wear them just to soak it up!!1.... oooo how attractive...
oh then there is the diabetes..... sugars have been high.... which to me is as bad if not worse than a hypo... i really do try and keep them level... i do check at least 5 times per day if not more..... the other day i was checking every half hour as they were in the 20s..... and were not coming down with the insulin... oh it was about midnight as well.... so another sleepness night... and as you know... too much insulin and you go hypo.... and its a catch 22 really..... been able to take some great pics though..... really helps me take my mind off it all.... and everyones feedback is always a boost.... wish i could do more with them sometimes... but as in most art related things its not what you know but who.. and being in the right place at the right time...

we will see......

things going on..

Had an email to help out with The Race for equity ... its for everyone and anyone to attend... SUNDAY 3RD of October.... Bournemouth to Boscombe Pier.... run/walk/wheelchair ... anything really... the event will also be swum by Steve McCarthy ... who is a blind swimmer who will also at a later date be swimming the channel.... i will have more details to follow....

Also attending a meeting in September about how the new "white Paper" will affect us as patients and the NHS in general.... its apart of teh NHS board meetings i go to.... maybe another one of "those" meetings ... but hey maybe one day it will be worth while.. and i truly will make a difference xx

Tuesday, 10 August 2010

no more sativex

had a letter from my consultant saying that my pain killer... sativex is no longer avaiable as its too expensive... and still no licensed... so i will be trying to find another one now... have been on tramadol and pregablin.. and gabapentin.... and paractamol.. and amatripyline...

Monday, 2 August 2010

new photoblog name

http://clayton1180-lees.blogspot.com/

had to change the name forgot to pay for the old one oppsss..

Sunday, 18 July 2010

the beast......

hey lay on the bed.... woken buy his skin being peeled off from the knee down... he lay there useless he was being tortured not able to do anything... they werent asking him questions or giving a reason for this torture but the pain did not stop....then the fire began.... burning his feet.... there was nothin he could do.......he couldnt see his tormentors but if he could there would be the most gruesome terrifying spine chilling beast doing this for fun.....
his tormentors then went away...... and relief came... but only for a moment.... as it began all over again... the worst thing was that he knew what was coming...but this time he was prepared... i had realised that to fight it would be impossible..... so i lay and took the pain.... took a deep breathe and thought of the sea crashing against the rocks and a beautiful summer evening.... My beautiful Jo had her arms around me.....and the pain slowly began to pass... and the monster disappeared as quick as he came....
Until next time Mr Bogey man.... we will be waiting........

i woke up on sat morning.... horrible pain in my feet...

Monday, 5 July 2010

high high high high!!!!!.......

Alot of talk is about HYPOS.. low sugar..... but to me HIGH sugars are just as bad... if not worse.... last sunday... in the 20`s.. and today again... nt sure why.. bubbles in the pump i guess.... i started to feel a bit odd so took my bloods...22.... so i put some insulin in.... wnet out thinking all will be cool.... but 2o mins later... still 22.. not good... tummy started to feel funny.. bit sicky... wengt home... about 15 mins later... 26!!!!... had to inject... then came the funny turns... hard to explain really... sicky... dizzy... even find it hard to talk.... just have to sit and ride the storm... it does pass.. eventually... now just gotta watch i dont go to low.... not a moan.. just a fact..... been on a bit of break from it all really over the past couple of weeks.... will get back in the stride again soon.....

Friday, 25 June 2010

Spinal Injury ward

through this i have met a truly inspirational lady .. Lindsay Chapman... i met through sending an email asking for a wheelchair to the local sports centre... they put me in contact with local charity called DOTs spoke to lindsay and we hit it off from day one.. she is paraplegic ...from the chest up.... her aim amongst many other things is to develop a wheelchair sports team of some sort.. i am going to a meeting today with her to see what we can do... i went to the ward yesterday to help out and meet some of the patients there.... i wasnt feeling great to be honest sugars are all over the place with this heat.. but .... it kinda put things in perspective meeting and talking to the guys and girls and their families... hopefully do alot more with them and see if we can get this sports team going........

if you can help.. let me know...;

The challenge...

well i have taken a bit of a rest from it all the past week... the day was more than i could have ever imagined it to be....meeting everyone that i had spoken to over the past few months really touched me...and as for meeting my little hero Claudia... well she was every bit as sparkly as i had imagined and more... so much energy and life.... the kids def stole to the show on the day... collecting money on the way.. so so polite in asking nd saying thankyou to everyone who donated.... i think they raised over 300 on teh day... which in little hand held collection buckets is amazing.... my sister decked out the beach hut at the finish and painted everyones face blue... teh family really pulled together Matt walked with me... and took the mazing photos... Mom..(or ET) as Phil called her on the day was on my scooter.. dad was at the end.. Jo was there with a kiss for me...all my friends from Bromley came all the way to see me... i am such a lucky lucky guy.... it really has given me such a boost and real real zest for life and doing so much more... the bbc coverage... JDRF want to work with me... Diabetes Uk came down inteh form of their fundraising director... Andy james.... really lovely man who seemed to be on teh same wavelength as us all.... will be seeing him again... Oh got on fire radio AGAIN lol... that was fab and the local paper covered it too... so the aim was to raise awareness ... and i do believe it was JOB DONE....for that event anyway... here is to the next one....

Wednesday, 16 June 2010

Sugar levels...

well started ok yesterday... changed the pump... all seemed ok.... but was at the shops and started to feel a bit funny.... checked my blood.. 12.. so i corrected thinking it was a bubble.... began to feel worse.. checked again... 16..hmmmmm.,.. not good why are they going up and not coming down... i had not eaten anything..... i hd started to make my why back... lucky i was on my scooter.... got home felt awful.... checked... they were 19.... hard to explain how it makes you feel... but sicky.. erm... dizzy.... very very tired.... i knew there was a problem with the pump change as this had happened before... i injected using the pen.. and chanhged the pump again.... i pulled out the other one... and yep then canular had bent.. which stops the insulin form getting in the body..... it all corrected quite quick after and felt ok.. but did have 2 hypos after... which i kinda expected as you never know hopw much insulin to put in and how long it stays in your system... etc etc..... feeling good today... but as i have said before... teh pump is not 100% ALWAYS HAVE A PEN HANDT!!!!...i have learned my lesson before....

Tuesday, 15 June 2010

Nursing Course Online Explains LADA

Latent Autoimmune Diabetes of Adulthood (LADA) is related to Type 2 diabetes but has some important differences. When someone takes a nursing course online, they learn the differences between Type 1 Diabetes, Type 2 Diabetes, and LADA. Taking nursing courses helps people not only to learn more about diseases but also to improve their earning potential. For those who won’t take nursing courses, I have explained some of the differences between the types of diabetes in this blog. I wouldn’t know anything about this disease if I hadn’t accidentally discovered it after not going to the doctor for five years. I wish I could go back in time to get an earlier checkup for myself. click for the nurses course online... and for more information on L.A.D.A click This is what i had... or didn`t know i had.. hence why i m here now lol... i went at least 5 years with seeing a doc or anything...SILLY boy yes yes i know... but when i say get checked out it can happen to anyone... what harm will it do...

What is the difference between type 2 diabetes, type 1 diabetes and LADA?

Type 2 diabetes - occurs when the body no longer reacts to the insulin it makes. The person has 'insulin resistance' that means the person still makes insulin but the body is not responding properly. The glucose stays in the blood. Some people develop type 2 diabetes if they are overweight and have low levels of physical activity, often with high blood pressure and high cholesterol. People who have a family member with type 2 diabetes and/or who are non-white (Asian or African) are more likely to develop type 2 diabetes.

Type 1 diabetes - occurs when the body attacks its own insulin producing cells. The bodies own immune system attacks and destroys the cells making insulin and this means the body no longer has any insulin. People with type 1 diabetes are insulin depleted. They no longer make insulin. This means they need to inject insulin. It is thought people develop type 1 diabetes because they have certain genes and perhaps because they have been exposed to a trigger (such as a virus). Often people who develop type 1 diabetes are young (children or young adults), slim and do not have high blood pressure or high cholesterol.

LADA - stands for Latent Autoimmune Diabetes in Adults. It is a type 1 diabetes, which means the body attacks its own insulin producing cells. People with LADA can be diagnosed by having a blood test for antibodies (the chemicals involved in attacking the insulin making cells). People with LADA have a slowly progressing form of type 1 diabetes. This means they do not need insulin when they are diagnosed but will probably need insulin in the future. How soon they will be insulin dependent depends on the level of antibody they have in their blood. Higher levels of antibodies suggest a faster progression to insulin. People with low levels of antibodies are very similar to type 2 diabetes patients. This means they are more likely to be over weight and have some insulin resistance. They are likely to benefit from tablets that act on insulin resistance. People with very high antibody levels are similar to type 1 diabetes. This means they are likely to have acute symptoms (thirst, unexplained weight loss, frequent urination, dry mouth) and are less likely to be overweight. They are likely to need insulin treatment soon after diagnosis

Helping you make informed choices, BMI Private Hospitals in Birmingham

Saturday, 12 June 2010

Demarco`s words

Demarcos Words....

Demarco's thoughts about pain.
9 July 2009. 12.30am.
Pain:8/10.



LAVA- (purplish red) occurs when lying down. HARDEST to cope with of all sensations. Impossible to sleep while this sensation is present. Can be painful AND uncomfortsble.


CRYSTAL- (skin tone, sparkling grey) 8 out of 10 pain level, comes in waves and big blasts. This pain can occur in shoulders, sometimes in wrists, fingers and feet.


ROCK SOLID- (fluro yellow, pink swirls) uncomfortable but managable. Feet and legs feel "like a statue," and only occurs at night.


HAMMER- (black metal) takes the longest to go away. This sensation feels like repeated slamming above and below the knee, as well as feet. Hammer feels like getting needle injections repeatedly until feet feel numb.


STIFF- (light purple)-makes muscles feel weakened, like legs have no strength.


NUMB- (light blue, purplish grey, white, black, ivory)


WEAK- (many shades of red)


MACHINE GUN- (green; every "bullet" a different colour that get brighter)-exacerbates the other sensations. Anxiety and fear inducing. Pain intensifies with each passing second. Most frightening of all of the sensations.

GENERAL COMMENTS: Night equal fear/pain.
I have more pain/discomfort in my right leg.
Bedclothes touching legs is painful.
Cutting legs open with a knife would be better than these sensations.
Machine gun, combined with lava, stiff and crystal is very painful and frightening. Causes panic and anxiety.
Knees have "lava" sensation as well as feet.
Morning can feel like calm waves after a fierce storm all night.
If I wake up after I've gone to sleep and feel pain, I force myself to go back to sleep so that I
don't have to deal with it.
No tablets that Mum gives me help any of these sensations.
I daydream about lego, making new friends and fun things when I'm in pain to try and distract myself.
Sometimes I bash and grab at my feet and legs in an attempt to get the pain out. It doesn't help,
but it makes me feel less pain while I'm doing it.
I'm not seeing Dr Cotterill again.
I don't like to talk about my pain with doctors, only feel comfortable talking to Mum.
When doctors pretend that they don't believe my pain is real, it really hurts me.
I believe my pain is spreading.
Painstop helps. and sometimes Naproxen.
I want to find an answer so that I can get on with my life. I don't mind having pain just as long as I know why and so that I can continue to live,
At the moment, I feel worse than the only person in the world who has diabetes, because if doctors don't believe me, how possibly can I get a friend to believe me?
My mum looks tired.
I hate that I have these aches and pains in my knuckles, wrists, knees, fingers.
It makes me angry when doctors tell me that I can't jump on my trampoline.
I don't mind what exercises I have to do, what tests I have to have, what medication I have to swallow, I just want to feel like me again.
I'm lost at the moment. It feels a bit like when you tell someone that you have type 1 diabetes, and they say, "Oh, my grandmother has that, she just takes tablets and pricks her finger a few types a week." It's not the same at all. Pain isn't a competition.
Whatever is wrong with me, I'm not going to let it change or destroy me, I just need the right doctor to fight for me,
I feel sicker Diabetes wise, I feel sluggish and tired and have no energy-and that's exactly the way I fell if I have had a hyperglyaemic attack.
Diabetes didn't used to bother me. Now I feel sick from it, and sick from the pain.
I can't do the things I like anymore, because I have not much energy. I don't like food as much as I used to either.
I get temperatures at night.
It's hard for me to concentrate on my schoolwork, when last year I got best marks.
I have rung Kids Help Line twice to speak to them about how bad the doctors treat Mum and me and also with my pain. My Mum wrote the number down in special book in case I wanted to vent to someone else besides her.
My pain at night-time is so bad that it's almost impossible to distract myself from it-I listen to CDS, my MP3, my Mum reads me books in accents, we do meditations, relaxation techniques, but all i can see are big hammers pounding away at my legs, lava oozing from my feet, bullets shooting into my feet.
I have seen 5 specialists, and in soime way, they have all made me feel like I am looking for attention by talking about my pain. One man asked me if I was having trouble being teased, or if having my Dad not live with us upset me. I knew what he meant. No, my pain is real. Im not trying to cover it up to hide other problems.
My Mum and me are very close, she knows just by looking at me if I am low and nned a snack, or if Im starting to have enough of my pain.
A doctor said that I am too young to take the medication that helps this pain, so therefore, the pain mustnt be real. I stuck up for myself when I heard that.
I cant go to sleep until sometimes 3am in the morning(which means neither can Mum,) because the pain is so strong.
When I wake up, I have no energy.
My blood sugar levels go very high when I am in pain, and I get tired of drinking, going to the toilet, drinking, going to the toilet all night long.


Concluded at 1.10am. Demarco appeared ready to sleep, but his pain was still too high. He finally went to sleep at 3am.

Wednesday, 9 June 2010

A very courageous Mother wants to share here story...

I wish I had known how to use Facebook a year ago. I wish I had known you a year ago. Last July 25th, my 21 year old son died of ketoacidosis. He had been type 1 since he was a baby, 8 months old. No problems until he was 17, when he started to suffer from depression. He was given antidepressants, at 19 he was prescribed cymbalta 120mg(look that one up, he should have started off at 30mg).It changed him completely, but thankfully he realised this for himself,and came off them.
He was never admitted as a child to hospital, but in the four years before he died, he was admitted 9 times with DKA. I begged the Mental Health Team and the Diabetes team to keep him in for longer, to support him more, but they refused every time. Thankfully for justice, I kept all the paperwork, and there is now a police investigation. We were supposed to have his inquest a couple of weeks ago, but there was no statement from anyone in the Diabetes team. Something a bit wrong with that when his cause of death was directly down to his diabetes.
I am sorry you have learnt in such a hard way about diabetes problems, but congratulate you on all the work and support you are giving to others. My husband and my elder son also have type 1(my elder son also has Downs Syndrome, and his behaviour sometimes complicates the Diabetes needs), so I watch all diabetes issues with interest, but can'd find the energy to really be interested in life. I am so angry that Rhys was let down by the people who should have helped him.

Dear Lee,
Sorry I didn't get back to you yesterday.
Yes, of course you can tell Rhys's story if you think it will help.
Rhys used to take the Diabetes in his stride when he was small. Never had a day off school except for diabetic appointments, until he was about 14, very responsible for himself.
He went to school adventure camps, Diabetes UK holidays, he belonged to a group for brothers and sisters of children with special needs(as his brother has Downs Syndrome), and they went youth hostelling, and several adventure holidays. Only once was there ever a problem with his Diabetes, and that was when he was about 17.
Right until he died,if he was up in the mornings before us, he fed our two dogs and made me tea,he was a really caring person all his life.
Swimming, canoeing, horseriding, paintballing etc, he loved them all.
He just needed support to get through the awful depression, that caused him to harm himself through diet.
You can tell his story wherever you think it may help.

Tuesday, 8 June 2010

The pump

Man problems......

The blog for me has always been an honest way of sharing the reality of my issues.. and one of those is not being able to hold an erection.... so if you dont wanna know about my "man problem" then turn your eyes now......................
I havent been able to keep it up.. without a some help for 3 or so years now... and i am sure i am not the only man to read this that has the same problem as its a part of diabetes... but more so because i have neuropathy too....i tried the Blue pill(viagra) didnt work for me and another one....in the end i was given an drug called Caverjet... which i have to inject into the bottom of my weee willy winky when i want to play chess lol.... which i am sure as you can imagine isnt the sexiest of things to do at the best of times... and does not always work.... when it does...ahem..it does...and well... yes... but it doesnt always take.... you can inject it in the wrong place or whatever.... i dont knowi aint a doctor..... but as a man.. and all you men know what i mean... your winky is you life lol..... and if he aint working properly it does make you feel less of a man..... but i do have to smile about it though... otherwise i would cry.. alot lol.... so if this motivates you men to keep on top of your diabetes.. then great... think of your winky next time you miss an injection or decide that you are not going to bother about your diabetes, so if its not the numb feet/legs..pain like you have never felt before .....constipation/diahorria... uncontrolable sweats.. dizzyness...then think of the WILLY... !!!!!!!!!!!!!!!!!and bext time you are in the heat of passion... do you want to stop... mix a solution... draw the needle... inject your willy.. and then hope for it to take.......

another day.,,,,,, another fight......

i wake sometimes with a spring in my step.... and sometimes i just wake and wonder why...i have had emails from Diabetes Uk which i am dealing with..... i better watch what i say though as last time i put something on here... the post was thrown back at me by a member of staff..... ooooooooo......sometimes my GOB says things that dont come out the way its meant too....will i ever learn....
Anyway on a slighlty brighter note lol... the challenge is next week.... havei trained enough....nooooo.... do i care ....noooooooo lol.. its not a race.... phil is dressing in drag... i cant wait to see that lol.... gotta see what i am gonna wear yet lol....
quite a few people coming down to support us.. am really looking forward to meeting Claudia though.... no doubt a tear or ten will be shed somewhere along the way ...;)

Monday, 7 June 2010

3 years on......

Its been quite the rollercoaster..... 3 years of frustration....HELL...i really do finally feel at peace.. and when i say that.. i mean the fact i dont feel alone now.. and by that i dont mean i have been alone.. as my family have been amazing... with my moods... ups and downs and have always been there.... i mean with the fact that i dont feel that i am the only person with this that feels like i do...the documentary has opened so many doors for me and introduced me to some of the most amazing inspirational people i have ever met/spoken to.... its hard to put into words how i feel.. but i have the bounce back in my step... the other day i had a hypo.. went on facebook and got talking to Bec.. her sugars were high ... which to me is just asa bad... we had a bit of banter... took my mind off it... and got me through it.. the depression factor to it being 3am in the morning and me feeling sorry for myself went.. i was not alone... the challenge is coming soon and the support i have received around that has been ...well it has brought a tear to my eye... more than once!...
I have also found a life long friend in Angela Allison... She has helped me in more ways than she will ever know... the wheelchair for the challenge has been down to her and Donald her husband who i owe more than one beer to.... but the understanding...every post.. every email... every chat we have.. its like me talking to the mirror... what she does daily with 5 children.. it amazes me... and puts it all in perspective... we can all take a lesson out of her book... she has started a blog.. if you havent read it yet... do so...smiles and cries guaranteed....

Looking at Angela has also made me realise how much i owe my own Mom to as well.... i have said it before but if it werent for my Mom visiting me everyday, twice a day in hopsital .... well i really dont know what would have happened... sometimes i think i took that for granted as she is my Mom and thats what Moms do.... but not all Moms would have done that... and continue to show me support in ALL that i do... no matter how daft i can be sometimes...

And then there is Jo.......i adore you... your smile... your beauty... your wit....every day is a happy day...(put the crystal ball away you numpty) xxx;)

And to everyone else... every single comment ,, every single email.... every link shared motivates me.... and makes me get up in the morning.. hoping to make a difference to everyone with diabetes now and for the future...(well you gotta aim high i say).....

Monday, 31 May 2010

Cancer & Bio-Detection Dogs at DFS Crufts 2010

3.00 am hypo.....

greeeeeeeeeeeaaaaaattt as tony the tiger or whatever the name of that thing from the frosties advert....its ok.. i have an excuse i am having a "hypo".... went to bed... tossed around and felt my heart racing a bit... kinda like a nudge saying.."DONT SLEEP" i wont let you!!!... so had to get up.... checked my sugars and... whoo hooo 2.9.... why oh why oh why didnt i check em earlier.....;(.... 3 am is not a good time to eat some sugar!!!!!!.... so tired but cant sleep..... now is not a good time to be alone.... now is time for a cuddle me thinks....;(...Big Sigh.....or is that the smallest violin in the world i can hear...;()

Sunday, 30 May 2010

And the reason why.........

Why are Claudia and i doing this...there needs to be more support for all ages.. and types of diabetes... we want to show that system needs to change... but also the reality of diabetes and its complications...but also how pulling together WE.. no matter small we may be can make a difference.... just because its the way it has always been does not mean its the way is should be.....DONT SUFFER IN SILENCE....

Friday, 28 May 2010

JDRF

I have just had a fantastic email from a Nicki at The Juvenile Diabetes Research Foundation ..(JDRF)... i had heard some great things about them but had never actually spoken to anyone... i am very impressed with how they come across as a "doing" foundation and they seem very people orientated... needless to say i will be working with them in the future..... very motivated about them...
I sent a link to the Documentary and within a hour it had been watched.. and feedback in a very personal way and also passed to the main office... and the point of the documentary was also understood...
This is going to be the start of something great....

Thursday, 27 May 2010

VOTE FOR CLAUDIA

Folks... please use the link and vote for claudia .. she will be able to help rasie awareness of TYPE 1 diabetes.. she is so special.... it does not take long at all....
thanka guys.,. it will make a difference...

Wednesday, 26 May 2010

rough day....

sugars have been really high today... domt know why... only had cereal this morning.. hve corrected insulin all day... think i will change the pump.. there may be an air bubble or kink i dont know...
the whole chair thing has stressed me out a bit i think... didnt really sleep last night... so tired... my feet have been doing the usual unpredictable one minute ok then horrible pain.... i was with Jo yesterday and all ws cool... had a coffee outside and then boom... nearly cried with pain... then as quick as it comes... it goes.... so hard to explain... and i hate moaning... i know it will be fine tomorrow.. it always is... i have learned this... but somedays this is really tough....
Jo is around later so i know it will be Ok.....
But i hate being like this.... i really do.... think i am gonna watch a movie... or maybe play modern warfare lol.....

wheelchair

This is the type i need..

http://www.google.co.uk/search?sourceid=navclient&ie=UTF-8&rlz=1T4SKPB_enGB358GB358&q=sports+wheelchair

i have contacted various organisations to either sponser a chair, hire one out for me, or even buy so i can donate onto someone else if need be.. although i could prob keep it to do more fundraisers.

the chair i have is not built to do anything like this, its kinda like running a marathon in ski boots, you will get there in the end but it will take forever and not very comfortable. I cant afford to buy one for myself otherwise i would as they cost upto £1500.. the event is on June 19th...

Press release

Southbourne man with diabetes in awareness-raising
wheelchair ride from Hengistbury to Sandbanks

Southbourne man Lee Nevitt, 35, who has Type 1 diabetes and nerve damage complications, has challenged himself to ride 20km from Hengistbury Head to Sandbanks in his wheelchair on Saturday 19 June to raise awareness of diabetes and help kick start a desperately-needed local support group for others with the condition.

Lee was diagnosed with a rare form of Type 1 diabetes in May 2007 that developed over a period of four years. Lee resisted going to the doctors during this time out of embarrassment and a denial to accept he was unwell.

Type 1 diabetes is a life-long autoimmune condition which is treated with daily insulin injections, diet and physical activity. Unlike Type 2 diabetes, it is not linked to an unhealthy lifestyle or obesity. As a result of his diabetes being left undiagnosed for so long, Lee developed severe neuropathy – a painful complication of diabetes that affects the nerves and prevents Lee from walking long distances.

Since being diagnosed Lee has been unable to work and his life has changed completely. He has, however, fought to remain positive and now works proactively alongside Diabetes UK in raising awareness of diabetes.

Lee’s ride coincides with Diabetes UK’s Diabetes Week (13 to 19 June 2010) and he hopes to raise £1,000 for the charity as well as raise awareness of diabetes and its complications.

“I’m hoping the event will attract a lot of support; I’ve written to all of the local schools asking them to get involved and I’m also holding a coffee morning to discuss how we can start up a support group for others living with the condition in the area,” said Lee.

“I have called my Diabetes Challenge ‘Don’t suffer in silence’ as I want to highlight the complications of diabetes which are often not obvious for people to see, but they are a reality and people need to be more aware of them.

“I gave the Challenge this name as I want to say to young people who live with diabetes not to hide away but talk about their condition. I want them to know that there are other people like them, people they can talk to and share experiences with.

“My overall message to young people who think they may be ill is ‘Don’t be embarrassed, go to the doctor.’ It is so much better to be checked out than leave it to get worse,” said Lee.

“My long term goal is to create and maintain a Diabetes UK Support group for people with diabetes in the Bournemouth area so they can come together and support one another”, he said.

ZoĆ« Steer, of Diabetes UK in the South West said, “We are so grateful to Lee for all his hard word and support for Diabetes UK. He is an inspiration to others who live with diabetes. We hope the local people will join together with Lee and support him with his challenge to raise vital funds for Diabetes UK.

“Diabetes Challenge is a cutting edge website that brings Diabetes UK supporters together in a new way. It allows groups of people to take on new and exciting challenges, and to track each other’s progress using social networking sites like Facebook and Twitter. Challenge yourself or someone you know at www.diabeteschallenge.org.uk ”

Sponsor Lee at www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence

Hypo

Had a hypo this morning... read 2.0 .... they are weird hypos are... sometimes they make you feel like your gonna die on higher readings.... some days they hardly affects you....
I posed the question the other day on a fab forum i am on at the mo... diabatessupport.co.uk
this is what was said.....please click the click to read how everyone describes their hypos... if your not diabetic then maybe it will give you an insight... if you are then maybe it will show that you are not alone.....

http://www.diabetessupport.co.uk/boards/showthread.php?t=8655

Wednesday, 19 May 2010

Diabetes Uk TOP STORY

we made the top story on Diabetes Uk main website...

SOOOOOOOOOOOOOOOOO CHUFFED!!

wheelchair

Busy Busy boy at the mo...

I need a proper sports wheelchair... the support so far to try and get one has be amazing... am on the case today...
also need to...
sort posters
leaflets
get beach hut
community centre
whos coming and jobs
fancy dress for the day..??
copies of dvd to post....

oh and train...

hmmmmmm

busy boy..;) but i love every minute.. WE are making a difference.... WE ALL ARE!!....

Saturday, 15 May 2010

Stomach

I am ok now.... but the past 4 hours have been.. well..pants... the stomach cramp came to visit... and didnt wanna leave until about 10 mins ago.... after a visit to the...ahem....without being graphic... you cant force anything as it makes it worse... its a bit like rollercoaster.. pain pain.. like i wanna scream.. then..ooo i am fine... then....ooooooooo scream.... then fine.... glad i wasnt out though as it would have ruined my evening....unpredictable... as i have said time n time again.... oh now the feet gremlins have started... they must have felt left out....Oh Joy..... but tomorrow is another day...
and it could be worse.....

Thursday, 13 May 2010

Diabetic Depression

I have spoken to alot of fellow junkies about this... and you what i happens... its a part of the condition .. like taking insulin... like testing your blood... its gonna happen... book it in.... tells your friends and family about it... then... move on... dont fight it or ignore it... it really is a part of the illness.. just cause you cant measure it... don`t mean it dont happen....
Not that i get it of course.....;)

Our lives begin to end the day we become silent about things that matter."

Saw this quote and i think it just about sums it all up..

Our lives begin to end the day we become silent about things that matter

Monday, 10 May 2010

Blown away

I have to say... i am completely blown away by all the comments i have received about the documentary ..... for once i am speechless.... but to everyone who has taken the time to view it.... dont give up... dont give in... dont suffer in silence...you are NEVER alone.....xxxxxxxxxxxxxxxxxx

From a different angle

Sunday, 9 May 2010

Hypos..........

as i was so excited and nervous about the showing i couldnt really eat... ans the forgot to as the butterflies set in ... i ended up having a salad... at about 11pm!!!.. after a few beers to might i add....
I started to feel a bit funny sweating alot.... checked my sugars and yes.. 2.3 ... not good... and it crept up on me too.//.
i wouldnt say there are good and bad hypos ... but there are different types i think anyway...;)
This was a bad one.... hard to explain really.... but it does feel like someone else has taken over your body.. and although in your head you know everything will be ok... logic does not come into play... you dont just need sugar.... you crave it!!..you expect the people around you to know what to do... they can read your mind cant they!!!!as someone has told me "never asume" lol... when is enough what is too much... they do try and give you guidelines of what to eat.. but everyone is different.. and there are different types of hypos....sometimes it will go quick.. some times not... sometimes four gluco tabs is enough... sometimes 8.. then you have to be prepared for the "hypo hangover" ( i stole that from someone else)... your sugars will then go sky high.... and kinda screws things up for the next 12 hours.. well does me anyway..well sometimes....lol...

i am lucky enough to have people around me that will put up with my moods..which at the best of times i am a pain in the ass..
Love you Jo..;)

From a different angle..... the screening..

well... what can i say.. the evening was more than i could have dreamed of... you will have to see it... and make your own mind up.. but i shed a tear or 2 as did my beautiful Jo and i believe My best mate Phil and his gorgeous new friend Jan.... the fact that the girls found my story interesting enough to spend the past 10 months doing it./. it really has helped me see things in a different light... i was gonna say from different angle lol....
I am a very happy chappy at the moment... just need to get some hard training done for the challenge... the next big thing is the dress down day that RBS insurance in Bromley are organising .... that will raise so much awareness... again if one person gets checked.. or in the case of type 2.. watch their diet... or even if someone has another condition ... i dont wanna sound like one of those.. cheesy.. i am doing it for the people guys lol... as thats not me....i need this...

Friday, 7 May 2010

And now the end is near.....;)

This time tomorrow i will have seen the documentry... Hmmmm nervous excited.. Peeing my pants!!!!!..;~)
But i have My beautiful Jo and Phil with me to hold my hand lol...
My brother has just been down which has been great to see him and catch off... he would give you the shirt off his back if he could.... we have had our ups and down like all brothers i guess... but i do love him...
Dad seems to be suffering bad at the Mo... i know how he feels..... the pain killers aren`t working and anyone who has had sleep deprevation knows that is torture to...Give him break!!!...
But again its not just dad.. it affects everyone around you too and Mom has done so much for everyone else over the past few yrs... but thats Mom....

if you want a copy of the dvd then email me nevittlee@yahoo.com ....

Juat going to pee my pants!! lol

Friday, 30 April 2010

Wednesday, 28 April 2010

not right....

 
Posted by Picasa

suffering a little

things have been going really well... well as good as can be.... but still not really putting weight on.. i have been have fryups and eating as much as i can recently but mhy clothes are still hanging a little... is very frustrating as though who know me understand how i feel about looking so thin.. or feeling it... feeling very tired.. which has impacted on my training for the challenge... legs are very tingly today.. and stomach not too great...sugars have been high recently which has not helped... will be going to see the doc... as this just feel right...i know i have made leaps and bounds in how i cope n deal with this soddin condition... and should be thankful for the good days i have had... which i am... but it does feel like..well.. there you go lee you can have some good days... but hang on.. thats your share for the moment.. we must not let you enjoy yourself too much.. have that..hahahaha....my mind is out playing and running around but my body wont let me do it....

Wednesday, 21 April 2010

diabetes complications

The complications of diabetes
Type 1 and Type 2 diabetes are different diseases in cause, in effect and in treatment but the same long-term complications can arise in both types of the condition. The complications affect:
The eyes
Diabetes can affect the blood vessels at the back of the eye [retinopathy] and this can lead to visual impairment or blindness. Diabetes is the leading cause of blindness in the working population.
The heart and vascular system
Diabetes can affect the heart and the vascular system making people more susceptible to heart disease and stroke. It can also cause blood clots in the vessels in the legs which may result in amputation. Amputations are 50-80 times higher in people with diabetes than the general population.
Kidney damage
Diabetes can affect the kidneys resulting in damage or kidney failure [nephropathy].
Nerve damage
Diabetes may cause nerve damage [neuropathy]. The most common form of nerve damage is in the extremities leading to pain or loss of sensation in the feet and ulceration of the legs. Again this can lead to amputation

Diabetes the facts...

Type 1 diabetes
This type accounts for 15 to 20% of the total number of people with diabetes, around 400,000 people.
Also referred to as insulin dependent diabetes or juvenile diabetes, it affects children and adults up to the age of forty. The number of children diagnosed under the age of 5 is markedly increasing.
Type 1 diabetes is caused by the body’s immune system attacking the insulin producing cells in the pancreas. The body no longer produces insulin and glucose levels rise and treatment with insulin injections is always required for survival. It is diagnosed as an acute condition.
Around 25,000 people are treated with animal insulin and the remainder with synthetic ‘human’ insulin.
There is no cure for Type 1 diabetes and cause has not been established. It is thought to be to be multi-factorial with a genetic link in some people. Recent research shows that a common virus may trigger the body’s immune system to attack its own pancreatic cells that produce insulin.

Monday, 19 April 2010

even with the pump take a pen!

went to see my best mate play at his first gig on friday... wasnt feeling to great anyway.. but wasnt gonna let man flu stop me...so sugars were a little high.. they wil be fine...erm.... i kept on adjusting my insulin uing correction doses... it was having no affect... it would be 16.. i would add 4 units.. and it was going up... erm beginging to get a little concerned... this happened until about 10 when it hit about 22.... which is at this time i began to panic a little... i wa away from home.. and no spare insulin... i had changed teh day before a was back home the following day..so i thought i would be ok....i began telling a couple of people in teh pub.. just in case.... i mean the next step was hospital time really.. as i could not have gone the night and next day with them so high.. keytones would have set in and well... not good really..... i had my camera bag with me and i suddenly hda a thought that i had out a pen in there for new york.... well the relief... i cant explain... i injected and all was ok... but lesson number one.... the pump is not 100% reliable.....

Thursday, 8 April 2010

sweet diabetes magazine

Had a lovely email from someone today saying they had read my story and challenge in a magazine called "SWEET"... which is cool in itself... you can buy it in smiths etc.. which i will most likely be doin tomz...;) or later today i should say... but it was the fact i had the email giving me support... as i have had lots of... which keeps me going on the pants days... and makes me feel like there is a point to this all.. when somedays i dont!!... been able to do some more weights today .. feeling stronger been able to eat more... even though it is having an effect on the stomach.. its a tiny price to pay really ... as it dont last long... just over 2 months to go!!!.... the countdown begins...
so for now... its goodnight from him..... and its goodnight from him too ;)

Tuesday, 6 April 2010

happy....

I know my blog gets all the bad stuff... but.... i am so blessed to have so many good things in my life... i have the most amazing .. understanding family anyone could wish for who always stand by me through thick n thin... and friends that help me through the good n bad times...the weather has been great so i have been able to take some photos.. which i love.... and getting out again... yes i have bad days... but it could be worse.... as i also have great days..... and life is what you make it i suppose... i would not wish this upon anyone.. but and i iknow it sounds weird but you have to make the most of things... and without this i wouldnt hav ebeen able to do half the stuff i have or meet some of the most amazing people in the world...
Life is a wonderful gift... live it... love it... no matter what issues you may have...;)... (lee nevitt chapter 1) lol...;)

Saturday, 3 April 2010

drugs

well... a sleepness night was had....to be expected i guess... weatheer was bad yesterday which didnt help too much so couldnt get out.. but went upstairs and saw sonj matt and teh boys... god sometimes i dont know what i would do without them... oh and have lost so much weight.. feeling really skinnky and have no energy so trying to bulid back up.. must have been all the use of the wheelchair and i sweta alot anyway.. but did so alot more... so its been hard to train... but gain catch 22... eat too much and it makes me feel a bit pants... but i know it will all be ok...

Thursday, 1 April 2010

am i such a bad person....

put through my prescription for sativex... my painkiller.... just went to try and pick it up.. and guess what... its not arrived!!.. and guess what its bank holiday weekend... and guess what.... the UK shuts down for 4 days...
angry..upset..i have run out of tramadol as well so i am going to have to try and get an emergancy prescription for that instead.... and its nearly 6 oclock in a thursday...
one of the things i hate about this is having too rely on others for me to get by... please please pleazse please let it be hassle free..and or a lower pain level for the next four days....
PLEASE......;( i dont ask much....

You just never know......

You know when you go on a 1st aid course at work,,. or whatever... you think you will never need to use it... or you will forget....
Well... on my way home after seeing my mate in brighton.... the moment came... a dear old lady fell uncouncious with her husband at her side... it suprising what you remember.... i think i did it right... lets hope so....ABC... and how and where to place my hands... Matt said it was an excuse to have a snog lol....
My point being... if you get a chance to learn 1st aid... you may not use it .... but... then again.. you may.. and boy...what a relief...(although i did have a hypo after and nearly messed my pants!!!)!!

Wednesday, 31 March 2010

I`m back

Ok i got back on thursday evening.... flightg delayed 3 hours... missed coach back had to wait another 3 hours for the another coach... stomach issues.... now that was fun on the back on teh coach!!!... but moan me never!!lol...
My confiedence is sky high at the mo... being able to do such a journey and survive...;)...
THe airports were very accomadating.. ax i was in the chair i didnt have to wait around or queue to check in which was a bonus,... and going through security with the pump was no problem at all.... and with my spare pen and needles nobody stopped or battered an eye lid.. so those of you who arfe going to travel with a pump or needles you dont need to worry.... (which is what i was doing before hand)

Tuesday, 23 March 2010

New York

Can i just say.... i had written quite a long bit on here.. am in a internet cafe... and i must have pressed something and it wiped off everything... dag nam it!!...
anyway what i was saying is how amazing the service had been over here.. without my wheelchair i would not have been able to have done.. well anything really!!... i have had assistance everywhere i have gone.. and all so genuine... i cant praise the people here enough.... my highlight has been the empire state building!!... the views are well BREATHTAKING.... i cant say anymore than that!!... you have or will see the pics....
This has been another step forward for me inmy life... breaking new barriers and buliding my confidence... knowing i can travel... and use my wheelchair in strange place... i have not used it so much... its been good training for the challenge on the june 19th.... i knwo i will be bale to do it!!!!...
there has been days where i wanted to walk around and have done for a little while.. then regretted it... pride is a big thing....but i am learning for it not to get in my way or run my life.... still taking everyday as it comes though... i have kept very very tight control onmy sugars... trying not to eat too much so i dont make myself bad.... but i have been pleased/proud of myself... it really is a step forward for me.. he says wiping the tear from my eye... those who know me.,.. knew how nervous i was about this trip... and those of you who have followed my blog.. who would have thought i would have been able to do it...
i have missed the ellie and the boys sonj and matt... have just done my shopping so have a few little suprises for them...
And Jo... ;) well you know....x
Dad is ok now after being in so that put my mind at rest before i came...
have lots to do when i get back... raising the profile of THE EVENT!!....

Tuesday, 16 March 2010

Contour USB tester

I do believe i have found the iphone of blood testers!... i had an email from Bayer asking if i would like to test one..
Well.. ta ta other ones... this looks funky..black with a colour lcd screen... but is like a USB stick... so all you do is test as normal... the when you want.. plug it into your PC and it loads direct onto it.. gving you a visual snap shot of your sugars.. trends etc... should really help with trying to control and see where the issues are and form a pattern maybe... Not sure if its out yet.. but i will let you know... AMAZING...
(by the way i aint getting paid to write this.. it really is that good lol)...

Monday, 8 March 2010

portsmouth evening paper!

had a call on friday from the diabetes uk press office saying portsmouth evening news wanted to cover my story... cool!!... so i waitied for teh call... and waited.. then at 5 had a call saying sorry.. can we do it on monday and i will send a photographer.... cool... booked 1pm.... excellent.... or so i thought... had a call from the guy saying all cool see you in a bit.. then can we arrange for 2pm... coolio no worries.... then at 1.30.... erm mr nevitt where do you live??... erm southbourne... as i have given you my address and postcode... oh your out of our area and i will get in trouble if i cover you.... oppsss.... what a plonker!!!! but i used stronger words than that!!!!!.... i mean.... does it really make any difference????????..

Friday, 5 March 2010

weight ....

hmmmmmm... looking a bit thin around the belly... not through choice... but had a few dodgy days with my stomach... as you know when you train you burn energy.... which means more food... which means bad stomach... which means... BAG OF PANTS...well if it was easy.. then there would be no point...

oh on that will be in the portsmouth evening news next week.... got a phone interview on monday and a photographer here as well...

oh and had my annual eye test today... all ok...after "THOSE" drops!!!

set me free

my best mate did this song for me.. checkk it out x

Sunday, 28 February 2010

Iphone apps

Hey Guys,

Just so you all know there are apps on the iphone to help you manage your diabetes, there is a carb counter on there which gives you an idea of the carb values if you arevcarb counting... there are others onthere which are like a diary which to me is easier to use than trying to cartry around a pad and pen... is usfull if you want to learn how different rountines affect your sugars..
i.e walking... take your reading before and after.. giving you an idea of how much sugar yo use so you can alter your food and insulin accordingly... i hope that makes a bit of sense#11..
sorry not feeling 100% feet are playing up and the heart rate and toilet issues have been a bit pants the past couple of days....

Thursday, 25 February 2010

sugars high sugars low

somedays you cant explain it.... but they go high and low and it makes you feel like a bag of pants!!! which havent been washed for weeks lol!!... gonna lay down.. see if tomorrow will be any better.......
Damn you Pancreas for not working!!!!!!!!!!

Diabetes UK Website events page

IN the Bournemouth Echo

http://www.bournemouthecho.co.uk/news/features/yourhealth/5024251.Why_suffer_in_silence_/

Wednesday, 24 February 2010

Facebook | Life expectancy of a type 1?

Facebook | Life expectancy of a type 1?: "You might also find it interesting to know that For each one per cent reduction in HbA1c…


There is a 12 per cent decrease in fatal and nonfatal stroke
There is a 14 per cent reduction in myocardial infarction (heart attack)
There is a 16 per cent decrease in heart failure
There is a 19 per cent reduction in cataract extractions
There is a 21 per cent reduction for deaths associated with diabetes
There is a 37 per cent reduction for microvascular complications
There is a 43 per cent reduction in amputation or death due to peripheral vascular disease."

Support

All your messages of support and encouragment really does mean so much to me... every email/donation and every comment i get gives me that little boost that i need to make this a success....
those of you that know me understand i need me fix!!!
xx

parliament

well....i went.... i saw.... i networked... i left...

Was a good day.. and parliament was beautiful... full of the "right" people to get talking to about what i am doing and want to achieve... although i am still a bit bushed after it all.... the overall feeling was brill... have a few emails to write.. just got to keep up on the momentum now...

oh just had a hypo as well... so feeling a bit yucky... but that will pass in a while... sonj is due today.... but still no baby bless her...

Tuesday, 23 February 2010

parliament

erm well.... today is teh day... and erm feeling a little.. well nervous... tummy is going ... got teh journey to London.. and its hissing it down.... gosh i was ok...UNTIL I WOKE UP!!... ok focus... get your point across... be cool... be you!!... oh had the bournemouth echo call today they are running the story....

HERE WE GO.........

Monday, 22 February 2010

email i sent to the local schools

My name is Lee Nevitt. In 2007 I was diagnosed with type 1 diabetes and after lengthy investigation a complication related to it called Neuropathy. My main goal is to try and educate and inform the public of Diabetes and its complications based on my experiences. I am especially passionate about increasing the amount of support for younger people and parents who have children with Diabetes.

I am writing to ask if it would be possible to meet someone to discuss how I could help in your school by doing a talk or holding an awareness event, or if you have any ideas on how you could help raise awareness and possibly help prevent diabetes in young people. I believe that creating awareness with pupils at a young age is key to help preventing the onset in the future.

There are many misconceptions that are associated with diabetes, for example the myth that you get type 1 diabetes by eating too many sweets, the truth is there is still no explanation for type 1 Diabetes and the research is ongoing.

I work closely with Diabetes UK  attending various support groups, and have been invited to attend a Parliamentary Group for diabetes on February 23rd due to a project I have been involved with NHS Diabetes that could help to steer the way forward for the treatment of patients with this condition.  I am also fortunate enough to have a documentary being made about my condition and its complications. I have a blog which I started when I was tirst diagnosed and have been in a men’s health magazine telling my story. I am also aiming to increase awareness via a number of charity events starting with a sponsored wheel chair ride from Hengistbury Head to Sandbanks on June the 19th of which all donations will go towards various diabetes related organisations.


I have been CRB checked but am willing to complete any check that you require. I have a great relationship with Bournemouth Hospital who have also said they would be willing to offer any support.



Please feel free to take a look at my blog:  http://diabetes-and-neuropathy.blogspot.com/

You can email me on nevittlee@yahoo.com
or contact me by mobile on 07525 419531.

Thank you very much or your time.

Regards
Lee Nevitt
66 Seaward Avenue
Southbourne
BH6 3SH

Busy boy

Diabetes Uk sent off the press release today.. sent off lots of emails to the local schools... going to parliament tomz.... got the girls coming weds to continue with the filming.. Sonj is due to drop on weds as well...

Sunday, 21 February 2010

Dont suffer in silence

Diabetes uk have put together a press release for me for my awareness campain... few little tweaks needed like the headling "wheel chaor bound man" as i aint permanatly in the chair.. just every so often.., as i use my mobility scooter more... but i am going to start a website with my Brothers help... i think i want to broaden the whole dont suffer in silence theme and have it for anyon ewho has a condtion that would benefit from talking and being involved in a group of people.... i was stopped in teh street ny a lady who told me all about her friends son .. who is 7 and is in a wheel chair now... which is pretty much what want to do... work with kids with conditions that give them barriers.... i dont know.... but what i do know is that i dont just want to exist... i want to make a differnce and do something with my life... as teh past few days have proved working is still out of teh question... so i am even more determined to train hard to complete the awareness campain....june the 19th is not the end... its just the begining of it all.......

parliament

go the invetation though for tuesday... teh recepetion is being held by Bristol Myers Squibb and AstraZeneca Alliance in Diabetes... going with an open mind but a determinded agenda

up down n side ways....

had a bit of a cold..nothing to serious... my stomach has been playing up but again so unpredictable... thats the thing... as i have always said.. it can comm on so quick and last minutes or even a couple of hours.. i mean yesterday all i had was some soup in teh afternoon and my heart started to race and i felt sick.. but as quick as it comes it also goes... i am very lucky to have people around me that understand... as at the best of times my temper and patience is bad enough ... but when i feel rough then it well just makee me feel even worse.... but i do feel a lucky guy to be surrounded by such support from family and friends x

Wednesday, 17 February 2010

Dont suffer in silence

bit choked up today... but all in a good way... it will make sense another time but all this stuff sometimes does pay off.... it is hard work and there is not always much back,... but when it does... well its the reason for living now.....

pump issues

went out on sat afternoon... but before i did i changed my pump as it was beeping..... normally i would make sure its all ok .. but the one occasion i didnt.. well i was out and feklt my sugars werent right... checked them and they were 15...(should be 4-7) put some insulin in... still not right.... checked again after about 30 mins... and it was higher... 18 ii think... i started to feel very bad at this point...luckily i was not too far from home.. but if i wasnt and it was late at .. well... i do tend to forget how quick it comes and bites you in the ass... its all a learning curve i suppose but sometimes a scary one.....!

Friday, 12 February 2010

feet

was up at 3 this morning;.. feet were really painful.. checked my sugars and they were very high..... so adujusted the insulin and finally started to feel normal again at 7 this morning .. oh joy!!.. i have another infection though which never helps and am on a another course of antibiotics...

Tuesday, 9 February 2010

Press and media

oh and if you are reading this and have any contacts with the press or any type of media.. then any help raising the profile would be greatly received.... pretty please;)

Focus

had a excellent meeting with a lovely lady called tracy who works for the air ambulance service and fund raising. Some great ideas have come out, she gave me a list of all the local schools and contacts so i am in the process of trying to complete and email... which covers what i am doing, why i am doing it..and a few facts maybe... i really dont want this to be another fund raiser that get sforgotten about... andc its not really for the money its for the awarness....
spoke to diabetes uk press office today and they are going to do a press release for me...
also spoke to my neighbour who seems to know the whole world... so she is going to get some of the parents together for a chat and see what they can do or come up with.. younger folks and parenets with diabetes is my main focus area.. and trying to get a support network together...
the documentry guys are here tomorrow.. so more filming this time with corbin on my scooter... he is funny when he drives it!!..
the training is going ok.. went up the massive ramps today... if you knwo where i live then you will understand... i did get a couple of offers for a push... i must have looked bad lol....

Friday, 5 February 2010

guess whos going to parliament!

erm MEEEEEEEEEEEEEE lol..... its do to with the commissioning work i have been doing.... check me out....
Oh and the Documentry that is being done with me is having a screening/launch at the cinema as well...

well i did want to raise the profile...

Oh and i am meeting with someone on monday to come up with some ideas on how we can publicise the fund raiser on June the 19th.... as yes irs about making money.. but it is more about getting as much coverage as possible....

happy friday everyone....

Thursday, 4 February 2010

training

Well... i put my fundraiser on facebook... and have just £100 already... i am very lucky this i know... i did some weights today and went aorund the block on the chair... prob suffer tomz.... but hey......

http://www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence

http://www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence

Wednesday, 3 February 2010

Dont suffer in silence

Ok i have decided to give myself something to focus on... raise awareness and get fit to !!... i am going to use my wheel chair and go along the promanade from near hengistbury head to sand banks... its about 20km... so its not going to be easy.. but it wouldnt be a challenge if it was easy would it.... so get donating please and pass it on to friends family... if you think you can help me then please contact me.. i.e raising awareness of it.... i will keep yoi updated with videos of the training...
here we go....

people like me

A peom i came across on my internet travels...

I am not living

I just survive

Trying hard to stay alive

With an illness they call Neuropathy

Which will not usually mean the death of me

The pains and sensations are agony

The smallest draught

Is like fire

My flesh will burn and I will perspire

My feet feel screwed up and very twisted

So normal activities become short listed

With Neuropathy Sleep is hardly ever

As the pain at night is most intense

Which does not seem to make any sense

The body screams in agony as the awful pains wash over me

My muscles spasm my flesh it burns

My legs and feet I cannot feel

I really wish this was not real

The pain it travels up my spine

To my brain like a force gale 9

Surging forcing electric agony

Of course it will not be the death of me

But is this good living I say no but just the same on I go

Up in the morning I look great

Nobody in the world would know my fate

So please remember the word Neuropathy and that out in the world

There are people like me

Monday, 1 February 2010

Queens SQ

Well the appt came up.... and went to London... Hoping to see DR Mathias... the guy who i have been researching for the past few months. Well i saw someone else whos` name escapes me... anyway as i thought it was about me saying what ws wrong... i hd prepared nd revised!!... there are so mny issues i forget them sometimes!!.. so the end result is they want me to go back in july... for week of tests on my autonomic system.. which i dont ,ind.. i do say that i would do anything.. as long as its worthwhile then i will do it....
so six months till the next progress report....
Thanks Jo x

Tuesday, 12 January 2010

Bad

Ok... well... not very well at the mo... had an abcess come up juts below my bum .. had an operation to sort it out... started on thursday... went to hospital sat... op sun.. out monday... so so down at the mo.... its wet and cold and snowy out so cant get out.... this isnt a moan its just as it is... i do try so hard to keep my spirits up... keep busy and occupied... and i am drwing on those good times now... but... this is hard.... so hard.. and it is hard to explain...but the word chin up dont help.. i know all mean well but..... i know i will look back on this and use the experience and say at least i aint that bad... and one of the reasons i started this was as therapy.. more recently it has been used to help others.. which in turn helps me.. if that makes sense... god i am actually talking to myself!!... but people always said i had a screw loose... i surround myself with my photos which take me to the good days... all from the summer!!... i have come to the conclusion that the winter is bad for me as it controls what, where, how i do things... and i hve never been very good t being told what to do... but then i hear corbens feet running upstairs into sonjas bedroom and i can see his out of control hair and cheeky smile.. unk lee!!...... he does make me laff...

Saturday, 9 January 2010

day 2 with the flu!

well... its day 2 of he nasty pants thing thats called flu... doesnt really go to well with diabetes... and is freezing cold outside..snowing... i am sure that there are little people that come out when i go to bed and hook my toes up to an old torture machine... as as soon as my head hits teh pillow.. it begins... on a scale of 1-10 its about a 5.. which really ain too bad.. but when your tired and it is being turned on and off randomly.. and there is no position you can be in that will herlp.. it feels like a 10/10... and with the sweats and shivers i have given up trying to lay on the bed and have choosen to occupy myself instead.. and if i fall asleep on the sofa in a bit then i do...