Friday, 28 May 2010

JDRF

I have just had a fantastic email from a Nicki at The Juvenile Diabetes Research Foundation ..(JDRF)... i had heard some great things about them but had never actually spoken to anyone... i am very impressed with how they come across as a "doing" foundation and they seem very people orientated... needless to say i will be working with them in the future..... very motivated about them...
I sent a link to the Documentary and within a hour it had been watched.. and feedback in a very personal way and also passed to the main office... and the point of the documentary was also understood...
This is going to be the start of something great....

Thursday, 27 May 2010

VOTE FOR CLAUDIA

Folks... please use the link and vote for claudia .. she will be able to help rasie awareness of TYPE 1 diabetes.. she is so special.... it does not take long at all....
thanka guys.,. it will make a difference...

Wednesday, 26 May 2010

rough day....

sugars have been really high today... domt know why... only had cereal this morning.. hve corrected insulin all day... think i will change the pump.. there may be an air bubble or kink i dont know...
the whole chair thing has stressed me out a bit i think... didnt really sleep last night... so tired... my feet have been doing the usual unpredictable one minute ok then horrible pain.... i was with Jo yesterday and all ws cool... had a coffee outside and then boom... nearly cried with pain... then as quick as it comes... it goes.... so hard to explain... and i hate moaning... i know it will be fine tomorrow.. it always is... i have learned this... but somedays this is really tough....
Jo is around later so i know it will be Ok.....
But i hate being like this.... i really do.... think i am gonna watch a movie... or maybe play modern warfare lol.....

wheelchair

This is the type i need..

http://www.google.co.uk/search?sourceid=navclient&ie=UTF-8&rlz=1T4SKPB_enGB358GB358&q=sports+wheelchair

i have contacted various organisations to either sponser a chair, hire one out for me, or even buy so i can donate onto someone else if need be.. although i could prob keep it to do more fundraisers.

the chair i have is not built to do anything like this, its kinda like running a marathon in ski boots, you will get there in the end but it will take forever and not very comfortable. I cant afford to buy one for myself otherwise i would as they cost upto £1500.. the event is on June 19th...

Press release

Southbourne man with diabetes in awareness-raising
wheelchair ride from Hengistbury to Sandbanks

Southbourne man Lee Nevitt, 35, who has Type 1 diabetes and nerve damage complications, has challenged himself to ride 20km from Hengistbury Head to Sandbanks in his wheelchair on Saturday 19 June to raise awareness of diabetes and help kick start a desperately-needed local support group for others with the condition.

Lee was diagnosed with a rare form of Type 1 diabetes in May 2007 that developed over a period of four years. Lee resisted going to the doctors during this time out of embarrassment and a denial to accept he was unwell.

Type 1 diabetes is a life-long autoimmune condition which is treated with daily insulin injections, diet and physical activity. Unlike Type 2 diabetes, it is not linked to an unhealthy lifestyle or obesity. As a result of his diabetes being left undiagnosed for so long, Lee developed severe neuropathy – a painful complication of diabetes that affects the nerves and prevents Lee from walking long distances.

Since being diagnosed Lee has been unable to work and his life has changed completely. He has, however, fought to remain positive and now works proactively alongside Diabetes UK in raising awareness of diabetes.

Lee’s ride coincides with Diabetes UK’s Diabetes Week (13 to 19 June 2010) and he hopes to raise £1,000 for the charity as well as raise awareness of diabetes and its complications.

“I’m hoping the event will attract a lot of support; I’ve written to all of the local schools asking them to get involved and I’m also holding a coffee morning to discuss how we can start up a support group for others living with the condition in the area,” said Lee.

“I have called my Diabetes Challenge ‘Don’t suffer in silence’ as I want to highlight the complications of diabetes which are often not obvious for people to see, but they are a reality and people need to be more aware of them.

“I gave the Challenge this name as I want to say to young people who live with diabetes not to hide away but talk about their condition. I want them to know that there are other people like them, people they can talk to and share experiences with.

“My overall message to young people who think they may be ill is ‘Don’t be embarrassed, go to the doctor.’ It is so much better to be checked out than leave it to get worse,” said Lee.

“My long term goal is to create and maintain a Diabetes UK Support group for people with diabetes in the Bournemouth area so they can come together and support one another”, he said.

ZoĆ« Steer, of Diabetes UK in the South West said, “We are so grateful to Lee for all his hard word and support for Diabetes UK. He is an inspiration to others who live with diabetes. We hope the local people will join together with Lee and support him with his challenge to raise vital funds for Diabetes UK.

“Diabetes Challenge is a cutting edge website that brings Diabetes UK supporters together in a new way. It allows groups of people to take on new and exciting challenges, and to track each other’s progress using social networking sites like Facebook and Twitter. Challenge yourself or someone you know at www.diabeteschallenge.org.uk ”

Sponsor Lee at www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence

Hypo

Had a hypo this morning... read 2.0 .... they are weird hypos are... sometimes they make you feel like your gonna die on higher readings.... some days they hardly affects you....
I posed the question the other day on a fab forum i am on at the mo... diabatessupport.co.uk
this is what was said.....please click the click to read how everyone describes their hypos... if your not diabetic then maybe it will give you an insight... if you are then maybe it will show that you are not alone.....

http://www.diabetessupport.co.uk/boards/showthread.php?t=8655