Monday, 19 December 2011

that time again....depression!!!

every now and then it pops up.. and you dont know why... and how to cope with it... you take it out on the ones closet to you... and at the time it seems like the world is against you and what is the point in everything... i remember why back when i was first diagnosed with type 1... but more so the pain or the neuropathy i thought i was being punished for something.. that i was such a bad person that i was to be tortured for this.... i guess i have alwayas had a temper... my sister can vouch for that as as kids i used to hit her all the time... there has always been 2 sides to me i think... the laid back... loves to be around people.. centre of attention... funny witty charming.. modest!!... but then there is the moody short tempered... jealous... lonesome one... i am in to minds as to post this or not as there are some folks that have only seen the "good" lee lol... but i the reason i started this was to help me understand what is going on... and as a way of looking back in a few months/years and seeing reminding me of how bad it was... i know it will get better.... it has too.... like many other people i know i am good at giving advice to others but not following my own... and as a dear friend said to me recently (as i had told that person many times before) ONLY YOU CAN SORT THIS OUT... which is that same as in most things... i can talk about sugar control in the same breath.. pain control .... i guess we all need to take a long hard look at ourselves every so often... yep my life has changed dramaticly over the past few years... but it is up to me to make my future work for me and not think it will change itself ... so my JERRY SPRINGER sum up lol... dont ignore it... dont try and deal with it yourself... you are not alone... talk.. listen... act... do.... take care of yourself and each other...;)... me

Monday, 12 December 2011

the effects

really.... i would be a fool to say that mt experiences over the last few years have not affected me... i do put them aside... or block them out,... but i dont think there is a day that goes by when i i dont think about what it was like when i was "normal".... its the winter season and i guess we all get down during these times.... i know i have come along way ..... and there is so so much more i want to do..... 2012.... time to look forward not back.... !

Tuesday, 21 June 2011

JDRF

Been a busy boy recently.... But loving every minute....Finally met up with Iris Board who works tirelesy to raise money and awareness for Diabetes, helped out the local shopping centre where Shane was performing .... Then again on Sunday for the summer spectacular , where Shane and many others put on a show to raise money and awareness of TYoe 1 diabetes, I had a little table where I was selling raffle tickets, but also talking to anyone about what pump is all about, medtronic should pay me!!!!! Lol.... But I enjoyed it all.... Met some lovely people, and hopefully answered some questions that only someone with a pump can... Shane is at the B.I.C perfoming on Sunday so helping with that... Finally met Nicky from JDRF and am going to London this thursday on a user involvement type thing advice on their website, anadromous again in July about the branding, and am in London on the 20th I think for an NHS programme board meeting about the new changes in the NHS and how the funding will affect the NHS Diabetes situation... And the photography is going really well too... Oh and had poor roxies lady bits done... Lol... Bless her,,, but at least I dontbhave to worry about little roxies running around....

Friday, 20 May 2011

Friends

One of the hardest things to deal with is not working... Socialisig with others having a laff... Meeting for a beer on a Friday .... Living here is great... I do love it.... Love the sea and the freedom.,,, but I do miss being close to my proper friends too..... Can't wait to find a job that I can do to pay to live here and fit around the illness ..... I so so wish it would be photography ... You never know...... It is my goal.....I need a bigger cc bike so I can get to them.. Any offers on donations would be appreciated lol.....
Well just thought I would talk to myself as roxy has fallen asleep and fluffy is under the chair.. And the fish dont really listen lol.....

Monday, 16 May 2011

Your not always in control

Well.... The new accu check mobile is great.... BUT!!! It does has it's downsides... It's kinda like putting all your eggs in one basket.... If the cassette is faulty then you need a wholennew one.. Not just if on test strip is faulty .... Had to go and replace a cassette today..(after a lengthy discussion with a patronising old bag behind the counter who couldntndo anything with the pharmacist being there... What part of the cassette is faulty do you do not understand!!!!!)... Luckily it was the nice pharmacist that didn't bat an eye lid when he saw me and knew who i was...

Part 2 of the Title... Lesson number 2 always take a spare canular set with you as you never know what's gonna happen..... Woke up at Jo's to find I must have had a fight with the canular in the night and it was half hanging off my belly... Has never happened before..... But lucky I was only 20 mins away.....

And the 3rd part of the title.....
Sometimes no matter what you do.... It don't make sense,,,, sugars read 16mml.... Put insulin in then they are up ???.... Then more.. The they are up again... Then down.. Then up..... And for the life of you you can't understand why.... And what you do have done wrong.... And it does play on your mind... You cant settle... Not knowing if your gonna be to high.. Or to low... I wish it was as easy as you eat this put that amount of insulin in then your sugars WILL be X.... But it ain't ..... Sooooooo just gotta roll with the dice and take itnas it comes....

Should have done a video instead.... Turned out to be a long post!!! ....

Oh happy or unhappy NEUROPATHY week... Especially to my very special Aussie mate Demarco ... And Kate your a true inspiration to me.... Xx

Wednesday, 27 April 2011

A Summer Spectacular and Record Launch | Theatre, Poole, Bournemouth, Dorset | Lighthouse

A Summer Spectacular and Record Launch | Theatre, Poole, Bournemouth, Dorset | Lighthouse

me and my trike

really.... i cant explain how free i am now with the trippi........ today i just got on the bike.... had no idea where i wa going... just towards the new forest... and went.... i have always said that drugs are not the only way to deal with pain .... it has so much to do with your mind as well all part of teh jigsaw...... and there is nothing like just going without planning... well... ok planning sort of... as you need to with food etc.... i got to lyndhurst... and ordered a coffee.... asked if i wanted a cake... no i am cool ta.... check my sugars and they were 4.3.... hmmm sorry can i have that cake please.... then after driving around... the funny taste in my mouth and my back was killing me .... hmmmm.... test.... 23.1..... oh ok..... but.... sorted that... yes a bit of pain.... but.... horses.... open space.... freedom... small price to pay... love love love it....
and now roxy is massaging my feet lol....

btw jo.... xxx

Tuesday, 26 April 2011

king-rep.html Lee Nevitt this one is not about me.... its about US..... please sign the petition.... lets help change the way it is.... to the way we want it to be... http://www.gopetition.com/petitions/ensure-the-media-state-type-1-or-type-2-when-making-rep.html

king-rep.html


Lee Nevitt
this one is not about me.... its about US..... please sign the petition.... lets help change the way it is.... to the way we want it to be...

http://www.gopetition.com/petitions/ensure-the-media-state-type-1-or-type-2-when-making-rep.html

Thursday, 21 April 2011

and so it begins....

If you share my views in how the media report DIABETES the please click and sign the petition..... i want to make this clear.... this is not a fight against type 1 and type 2 diabetes, .... i just want the facts to be true when reporting on this awful disease.... if they are reporting that having a gastric band can cure DIABETES then i want them to say TYPE 2 DIABETES.... if its about pump and insulin therapy then i want them to say TYPE 1 DIABETES....

i also know that there are other types.... L.A.D.A , gestational .... but its media reporting on TYPE 1 and TYPE 2 that i want to challenge.....

please pass the link on to as many people as you know,,,,, YOU are the only way this will work.. otherwise its just another Lee failed mission.....

thanks for looking.....

Wednesday, 20 April 2011

please sign my petiton

http://www.gopetition.com/petitions/ensure-the-media-state-type-1-or-type-2-when-making-rep.html

Tuesday, 19 April 2011

diabetes..... type 1 or type 2......

let me start by saying i do NOT want to start a war between type 1 diabetics and type 2..... they are both nasty horrible diseases to deal with.... but.... they are different..... and i just want there to be a distinction in the media when it is talked about or reported in the news.... are you mixed race.... white... black..... the list goes on ..... but to me there is a difference.... and the same way you should think about what you say before you say it .... should be the same with me.... i am type 1 ... i am on a pump... and i cant help it..... or i am type 2 i am on tablets and i am dealing with it... i know my wording is not the best in the world.... but i do think it is important....

so if i am rich and i can stop the press from talking about my bad ways by super injunctions in the media....

then why cant we do the same and make them talk about us in the way we want........

Wednesday, 13 April 2011

tough day....

its been one of those days.....

for the life of me i do not understand what has been going on with my sugars...

todays readings were.. 5.3 .. had 2 slices of brown toast and a coffee....
fa..
8, 14.3, 12.8, 13.1, 5.4, 11, 8.8, 3.9, 4.6, 15.9, 20.8, and now 7.5 ...

13 tests today.... why?.... cause i have felt funny all day... you know the tinny kinda nasty taste you get in your mouth...when they are high well had that....

now i am up 3.30 with really bad feet.... only cure is to sit up.... so dead on the sofa ... and not understanding any of it.... i thought my sugars were high and that was why they were bad,.. but no....
so tired.,.. just want to sleep.... but cant...

tough day....

Monday, 4 April 2011

another year another eye test........

great news... last yrs eye results have improved.... but was able to have a chat with the optician
about retinopathy...
so.... make sure you get checked every yr at least...
the quicker the diagnosis the better.... and pretty much curable...
the tech now is amazing.. and pretty much kills of any issues you may have....

so no matter what your doing.. its only once a year... get them checked... or you wont be reading my blog!!!! now what more incentive do you need lol...

be well....


lee

Sunday, 20 February 2011

who not the daddy.....

i was always quiet an active guy... never had any problems with erections...... never.... then.. one day i noticed.... that it wasnt playing game lol.... it didnt keep it hard like it used to... you knwo after a few beers.... it doesnt act like it should... well... mine was doing that without booze.... so it was coming to a point when i thought it was me... i had thrush... was very very sore... you men and women who have had it... and with type one i guess you have... its very sore... its all about yeast and stuff i dont know... but very sore.... well combined with the ed i thought my winky was having issues.....
not being graphic but...... it would not stay or get up at all.... there was not joy.......
i tried the blue pill........... nooo joy...... i gave up for along time as all you have heard of was viagra... but that was not the only rememdey.... there are alot more.... i am on caverjet.... which is where you inject into the bottom of your ahem... when you want you to the do.... its not he niceset thhings to do.... oh excuse me a mo while i inject my winky which may or may not work to well... be a man....

gosh it has been hard... but i am very lucky to be with a girl that understands the whole issue....

hi... my name is lee and i have type 1 diabetes......

i was 31 and was diagnosed with type 1 Diabetes....it is hard to explain the pain and suffering before so i wil try and explain it since....
diabetes is one thing neuropathy is another... so i want to talk about one... before the other....


i wake up every single day..... every day..there is no day off... and i put a littlr needle in my finger... before i drink coffee shower... have breaky... or even do anything ahem else.......
i eat... or drink... and test again and see how it is....
i calculate what i have eaten to what my sugars are and enter a number in my insulin pump...
and although i have been taught... i hope for teh best.... is it too much is it too little,... will i hypo...(too much).... or hyper(too little)....... to me they they are both the same....
hyper.... sick... dizzy.... tired.... (is it me or can you actually feel your blood thicken)...
and that is a very brief description

hypo
pass out.... dizzy, starving..... angry,.... ermmmm its so hard to explain... but does ebing possessed make sense?????

oh then i start to think about the day.... i have forgot what its like to eat a breaky go to work and not think about anything else other than what i will be doing after work...

in short.. you wake... and well tbh you dont sleep without thinking of TYPE 1 Diabetes... i wake several times through every single night.... every single day.... and will be for the rest of my life...

so next time someone says "oh that means you cant have chocolate"... well i guess i will nod n agree as i always do and say haha..... its a bad isnt it...

as i go and eat a bar of choc that has the carb values on the packet so i can CARB COUNT...... and be a NORMAL person...

oh btw.. this was breakfast covered......... i still have the rest of the day....

and oh yes there is the other thing called neuropathy the talk about.... so to all your government know it alls who want to box people into catergories..... well... erm,..... it aint that easy.....
tbc....................

rant not over... just begun......
lee

There are 2 types of Diabetes, type 1 and type 2. Both diabetic illness types can be treated at one of the local private hospitals in Kent.

Saturday, 12 February 2011

the unpredicable

well... its be sooo good recently.... been talking about work and all that jazz.... and went to see the docs.. of all is going so well missy doc.... then what..... bad bad bad feet.... i mean crying stage... then next day.... bad bad stomach day,,,, i mean.... sitting here watching telly and the brain saying lee eeeeeee lets go out.... but the body saying noo oooooooooo stay here... my point is..... the hardest thing is the unpredictable stuff..... i can be cool one day and the next.. be in pain.. feet.... legs..... stomach... oh n by he way.. imagine everytime you eat you have an electric shock in your checks...... tbc......
hope your well....

i am for the mo.....

Tuesday, 8 February 2011

oh the pain

i find it really hard to explain the pain.....
just cause i do not cry n scream does not mean i am not in pain
after suffering with extreme pain for 3 years now its not about a pain free day its about how strong the pain is.... if that makes sense...
so i am never without pain... but the levels just increase or decrease and it something your body HAS to get used to....
today was a day of well i want to cut my feet off days...... and those of you who understand know... i was in asda.. and had to lay on the floor as my feet were so bad i could not even stand anymore... let alone walk... and pushing the trolley.. if i was not with JO i would have just left the trolley and left... ....
now as i write this,... is am fine n dandy.... but 3 hours ago...................
well give me a saw... and leave me alone..... and it would have been a diff story

just cause you cant see my pain does not mean i am not crying inside with agony.......

Thursday, 20 January 2011

hypo hypo hypo

seems to be hypo week... had one at college... had kept the condition quiet.... but had to tell teh tutor about it as i wasnt looking too good.... i had been nice to be Lee... not the guy with diabetes for a while... ah well...
oh and the 1st time i leave my lucazade in the bike and i get the hypo... i always carry it around with me!!...
then through the day... i had another one...
then at night i had one...actually make that 2..
and now,, just had another one... although all been mild ones... not the bad bad ones... but still knocks you off balance....
oh and its stopped raining....
just bloody freezing now!!!!!...

Friday, 7 January 2011

o that was 2010... has given me confidence to do things i never thought i would be able to do again after falling ill.....so much more to do... so many more people to meet... so much more awareness to raise... so many more laffs to have...

well it started off a bit pants in hospital in January so not a great start but it motivated me to do something with myself and keep busy....
So the Challenge was set.... to raise awareness off Diabetes and Neuropathy by doing a wheel chair ride from sandbanks to southbourne...
Baby Nayan was born.... i can still here the screams of Sonj now... bless her umplanned home birth of nephew number 3...
New york!!! amazing...
Documentary Screening... defined my year... opened so many doors and have made contact with so many amazing people...
The challenge was amazing went better than i could ever have imagined... all the family there... and so many friends came to support... and many more from whom i had only taled to on the internet.. truely humbling and such an amazing experience... became friends with Angela... my partner in crime and a beautiful amazing person.. raised over 1500 in total i think.. but the pinacle was getting on teh Local BBC News... my Goal was achieved... as well as local radio and the local press and other various magazines through the help and support of diabetes uk press team
won an award from RBS through the event and was able to give an extra £100 to teh local children's diabetic ward in Poole....
My Motorbike came.....OH My....... life changing.....
Thanks to my bestest friend Jo i started a photography course.... the best thing i have done for myself for along time....
october.. booooooooo bad month... got broke into .... laptop and camera nicked... pinky and daisy killed by foxes.... saved fluffy....
ROXY!!!!!!!!!!!! my kitten arrived....she is so beautiful...;)
Xmas was great with Jo n the kids.... Toy story and hello kitty were the only things to see...

so that was 2010... has given me confidence to do things i never thought i would be able to do again after falling ill.....so much more to do... so many more people to meet... so much more awareness to raise... so many more laffs to have...

heres to 2011...