Diabetic Neuropathy whats it all about hey!

2012-01-16T05:36:00.001Z

depresion

2012-01-11T23:27:00.000Z

listen......... i have said a thousand times about this........the biggest men.... that harder the are.... it makes no difference..... diabetes..... its a fact.... you WILL get depressed... book it in..... expect it.... you try so hard to control it.... you follow the rules... carb count.... and whatever..... but to me it WILL happen... and the only way is is talk about it..... please guys n gals..... talk... talk .... talk.....sometimes i wish i followed my own advice..... xxxxx

hyperglycemia/high blood sugar/not my fault/..panic..

2012-01-08T22:19:00.001Z

the pump is fab but... if there is an issue with it it all goes downhill very very fast... when you are on injections... you have 2 types... short acting and long acting... i.e a baseline... but on the pump... its just one... the short acting that relies on the pump delivering insulin as its told....anyway... for some reason or another.... i didnt get enough of mine today..... i dont want to go in detail as it will not make sense.. i will do a video...i just could could not understand why i was putting in so so so much insulin and it making no difference.... i am going to again do a vid to show how much i think i put in....anyway all good now... but.... geez.... heart goes so fast... then stops.... skips a beat....mouth feels like ermmmm...tin????eyes just close.... you just want to sleep...seeing things....but in my mind i was like i havent done anything wrong.... i followed the rules.... again.... and again...but nothin seemed to work....i ran a marathon... on my sofa...... thats how it feels.... actually.... i drank a bottle of vodka..... but didnt!!!!

that time again....depression!!!

2011-12-19T15:31:00.002Z

every now and then it pops up.. and you dont know why... and how to cope with it... you take it out on the ones closet to you... and at the time it seems like the world is against you and what is the point in everything... i remember why back when i was first diagnosed with type 1... but more so the pain or the neuropathy i thought i was being punished for something.. that i was such a bad person that i was to be tortured for this.... i guess i have alwayas had a temper... my sister can vouch for that as as kids i used to hit her all the time... there has always been 2 sides to me i think... the laid back... loves to be around people.. centre of attention... funny witty charming.. modest!!... but then there is the moody short tempered... jealous... lonesome one... i am in to minds as to post this or not as there are some folks that have only seen the "good" lee lol... but i the reason i started this was to help me understand what is going on... and as a way of looking back in a few months/years and seeing reminding me of how bad it was... i know it will get better.... it has too.... like many other people i know i am good at giving advice to others but not following my own... and as a dear friend said to me recently (as i had told that person many times before)ONLY YOU CAN SORT THIS OUT...which is that same as in most things... i can talk about sugar control in the same breath.. pain control ....i guess we all need to take a long hard look at ourselves every so often... yep my life has changed dramaticly over the past few years... but it is up to me to make my future work for me and not think it will change itself ... so my JERRY SPRINGER sum up lol... dont ignore it...dont try and deal with it yourself...you are not alone...talk..listen...act...do....take care of yourself and each other...;)...me

the effects

2011-12-12T21:48:00.002Z

really.... i would be a fool to say that mt experiences over the last few years have not affected me... i do put them aside... or block them out,... but i dont think there is a day that goes by when i i dont think about what it was like when i was "normal".... its the winter season and i guess we all get down during these times.... i know i have come along way ..... and there is so so much more i want to do..... 2012.... time to look forward not back.... !

Advice For Travelling With Diabetes | VoyageMD

2011-12-02T16:24:00.000Z

Advice For Travelling With Diabetes | VoyageMD

Angela Allison is fundraising for DWED

2011-11-01T20:41:00.000Z

Angela Allison is fundraising for DWED

Diabetes forcast magazine...

2011-10-18T13:12:00.000+01:00

ShareThis

Sian

2011-10-18T02:17:00.000+01:00

I have wrote and deleted this post for the past hour..... Sian.... Just don't know what to say.... Xx

Angela Allison is fundraising for DWED

2011-10-16T19:51:00.000+01:00

Angela Allison is fundraising for DWED

insulin pump

2011-07-07T18:59:00.000+01:00

My life with Diabetes From a different angle

2011-07-07T13:45:00.000+01:00

JDRF

2011-06-21T17:02:00.000+01:00

Been a busy boy recently.... But loving every minute....Finally met up with Iris Board who works tirelesy to raise money and awareness for Diabetes, helped out the local shopping centre where Shane was performing .... Then again on Sunday for the summer spectacular , where Shane and many others put on a show to raise money and awareness of TYoe 1 diabetes, I had a little table where I was selling raffle tickets, but also talking to anyone about what pump is all about, medtronic should pay me!!!!! Lol.... But I enjoyed it all.... Met some lovely people, and hopefully answered some questions that only someone with a pump can... Shane is at the B.I.C perfoming on Sunday so helping with that... Finally met Nicky from JDRF and am going to London this thursday on a user involvement type thing advice on their website, anadromous again in July about the branding, and am in London on the 20th I think for an NHS programme board meeting about the new changes in the NHS and how the funding will affect the NHS Diabetes situation... And the photography is going really well too... Oh and had poor roxies lady bits done... Lol... Bless her,,, but at least I dontbhave to worry about little roxies running around....

Know The Symptoms! Type 1 Diabetes Has No Favourites Campaign

2011-06-06T11:55:00.000+01:00

2011-05-30T16:52:00.000+01:00

Friends

2011-05-20T20:22:00.000+01:00

One of the hardest things to deal with is not working... Socialisig with others having a laff... Meeting for a beer on a Friday .... Living here is great... I do love it.... Love the sea and the freedom.,,, but I do miss being close to my proper friends too..... Can't wait to find a job that I can do to pay to live here and fit around the illness ..... I so so wish it would be photography ... You never know...... It is my goal.....I need a bigger cc bike so I can get to them.. Any offers on donations would be appreciated lol.....
Well just thought I would talk to myself as roxy has fallen asleep and fluffy is under the chair.. And the fish dont really listen lol.....

Your not always in control

2011-05-16T14:57:00.000+01:00

Well.... The new accu check mobile is great.... BUT!!! It does has it's downsides... It's kinda like putting all your eggs in one basket.... If the cassette is faulty then you need a wholennew one.. Not just if on test strip is faulty .... Had to go and replace a cassette today..(after a lengthy discussion with a patronising old bag behind the counter who couldntndo anything with the pharmacist being there... What part of the cassette is faulty do you do not understand!!!!!)... Luckily it was the nice pharmacist that didn't bat an eye lid when he saw me and knew who i was...

Part 2 of the Title... Lesson number 2 always take a spare canular set with you as you never know what's gonna happen..... Woke up at Jo's to find I must have had a fight with the canular in the night and it was half hanging off my belly... Has never happened before..... But lucky I was only 20 mins away.....

And the 3rd part of the title.....
Sometimes no matter what you do.... It don't make sense,,,, sugars read 16mml.... Put insulin in then they are up ???.... Then more.. The they are up again... Then down.. Then up..... And for the life of you you can't understand why.... And what you do have done wrong.... And it does play on your mind... You cant settle... Not knowing if your gonna be to high.. Or to low... I wish it was as easy as you eat this put that amount of insulin in then your sugars WILL be X.... But it ain't ..... Sooooooo just gotta roll with the dice and take itnas it comes....

Should have done a video instead.... Turned out to be a long post!!! ....

Oh happy or unhappy NEUROPATHY week... Especially to my very special Aussie mate Demarco ... And Kate your a true inspiration to me.... Xx

A Summer Spectacular and Record Launch | Theatre, Poole, Bournemouth, Dorset | Lighthouse

2011-04-27T21:17:00.000+01:00

A Summer Spectacular and Record Launch | Theatre, Poole, Bournemouth, Dorset | Lighthouse

me and my trike

2011-04-27T20:54:00.000+01:00

really.... i cant explain how free i am now with the trippi........ today i just got on the bike.... had no idea where i wa going... just towards the new forest... and went.... i have always said that drugs are not the only way to deal with pain .... it has so much to do with your mind as well all part of teh jigsaw...... and there is nothing like just going without planning... well... ok planning sort of... as you need to with food etc.... i got to lyndhurst... and ordered a coffee.... asked if i wanted a cake... no i am cool ta.... check my sugars and they were 4.3.... hmmm sorry can i have that cake please.... then after driving around... the funny taste in my mouth and my back was killing me .... hmmmm.... test.... 23.1..... oh ok..... but.... sorted that... yes a bit of pain.... but.... horses.... open space.... freedom... small price to pay... love love love it....
and now roxy is massaging my feet lol....

btw jo.... xxx

king-rep.html Lee Nevitt this one is not about me.... its about US..... please sign the petition.... lets help change the way it is.... to the way we want it to be... http://www.gopetition.com/petitions/ensure-the-media-state-type-1-or-type-2-when-making-rep.html

2011-04-26T23:48:00.003+01:00

king-rep.html

Lee Nevitt
this one is not about me.... its about US..... please sign the petition.... lets help change the way it is.... to the way we want it to be...

http://www.gopetition.com/petitions/ensure-the-media-state-type-1-or-type-2-when-making-rep.html

Ensure that the media state type 1 or type 2 when making reports about Diabetes

2011-04-22T14:23:00.000+01:00

Ensure that the media state type 1 or type 2 when making reports about Diabetes

and so it begins....

2011-04-21T09:23:00.000+01:00

If you share my views in how the media report DIABETES the please click and sign the petition..... i want to make this clear.... this is not a fight against type 1 and type 2 diabetes, .... i just want the facts to be true when reporting on this awful disease.... if they are reporting that having a gastric band can cure DIABETES then i want them to say TYPE 2 DIABETES.... if its about pump and insulin therapy then i want them to say TYPE 1 DIABETES....

i also know that there are other types.... L.A.D.A , gestational .... but its media reporting on TYPE 1 and TYPE 2 that i want to challenge.....

please pass the link on to as many people as you know,,,,, YOU are the only way this will work.. otherwise its just another Lee failed mission.....

thanks for looking.....

please sign my petiton

2011-04-20T22:54:00.002+01:00

http://www.gopetition.com/petitions/ensure-the-media-state-type-1-or-type-2-when-making-rep.html

diabetes..... type 1 or type 2......

2011-04-19T20:57:00.000+01:00

let me start by saying i do NOT want to start a war between type 1 diabetics and type 2..... they are both nasty horrible diseases to deal with.... but.... they are different..... and i just want there to be a distinction in the media when it is talked about or reported in the news.... are you mixed race.... white... black..... the list goes on ..... but to me there is a difference.... and the same way you should think about what you say before you say it .... should be the same with me.... i am type 1 ... i am on a pump... and i cant help it..... or i am type 2 i am on tablets and i am dealing with it... i know my wording is not the best in the world.... but i do think it is important....

so if i am rich and i can stop the press from talking about my bad ways by super injunctions in the media....

then why cant we do the same and make them talk about us in the way we want........

tough day....

2011-04-13T03:48:00.000+01:00

its been one of those days.....

for the life of me i do not understand what has been going on with my sugars...

todays readings were.. 5.3 .. had 2 slices of brown toast and a coffee....
fa..
8, 14.3, 12.8, 13.1, 5.4, 11, 8.8, 3.9, 4.6, 15.9, 20.8, and now 7.5 ...

13 tests today.... why?.... cause i have felt funny all day... you know the tinny kinda nasty taste you get in your mouth...when they are high well had that....

now i am up 3.30 with really bad feet.... only cure is to sit up.... so dead on the sofa ... and not understanding any of it.... i thought my sugars were high and that was why they were bad,.. but no....
so tired.,.. just want to sleep.... but cant...

tough day....

another year another eye test........

2011-04-04T20:28:00.000+01:00

great news... last yrs eye results have improved.... but was able to have a chat with the optician
about retinopathy...
so.... make sure you get checked every yr at least...
the quicker the diagnosis the better.... and pretty much curable...
the tech now is amazing.. and pretty much kills of any issues you may have....

so no matter what your doing.. its only once a year... get them checked... or you wont be reading my blog!!!! now what more incentive do you need lol...

be well....

lee

accu-check mobile tester

2011-03-31T19:19:00.000+01:00

accu-check mobile tester

2011-03-31T19:12:00.000+01:00

Blood Glucose Meter | Blood Sugar Meters | Diabetes meter |Accu-Chek Mobile

2011-03-31T18:01:00.000+01:00

Blood Glucose Meter | Blood Sugar Meters | Diabetes meter |Accu-Chek Mobile

pain is a jigsaw

2011-03-13T20:11:00.000Z

blurry day...

2011-02-24T12:10:00.000Z

who not the daddy.....

2011-02-20T22:30:00.000Z

i was always quiet an active guy... never had any problems with erections...... never.... then.. one day i noticed.... that it wasnt playing game lol.... it didnt keep it hard like it used to... you knwo after a few beers.... it doesnt act like it should... well... mine was doing that without booze.... so it was coming to a point when i thought it was me... i had thrush... was very very sore... you men and women who have had it... and with type one i guess you have... its very sore... its all about yeast and stuff i dont know... but very sore.... well combined with the ed i thought my winky was having issues.....
not being graphic but...... it would not stay or get up at all.... there was not joy.......
i tried the blue pill........... nooo joy...... i gave up for along time as all you have heard of was viagra... but that was not the only rememdey.... there are alot more.... i am on caverjet.... which is where you inject into the bottom of your ahem... when you want you to the do.... its not he niceset thhings to do.... oh excuse me a mo while i inject my winky which may or may not work to well... be a man....

gosh it has been hard... but i am very lucky to be with a girl that understands the whole issue....

hi... my name is lee and i have type 1 diabetes......

2011-02-20T22:12:00.000Z

i was 31 and was diagnosed with type 1 Diabetes....it is hard to explain the pain and suffering before so i wil try and explain it since....
diabetes is one thing neuropathy is another... so i want to talk about one... before the other....

i wake up every single day..... every day..there is no day off... and i put a littlr needle in my finger... before i drink coffee shower... have breaky... or even do anything ahem else.......
i eat... or drink... and test again and see how it is....
i calculate what i have eaten to what my sugars are and enter a number in my insulin pump...
and although i have been taught... i hope for teh best.... is it too much is it too little,... will i hypo...(too much).... or hyper(too little)....... to me they they are both the same....
hyper.... sick... dizzy.... tired.... (is it me or can you actually feel your blood thicken)...
and that is a very brief description

hypo
pass out.... dizzy, starving..... angry,.... ermmmm its so hard to explain... but does ebing possessed make sense?????

oh then i start to think about the day.... i have forgot what its like to eat a breaky go to work and not think about anything else other than what i will be doing after work...

in short.. you wake... and well tbh you dont sleep without thinking of TYPE 1 Diabetes... i wake several times through every single night.... every single day.... and will be for the rest of my life...

so next time someone says "oh that means you cant have chocolate"... well i guess i will nod n agree as i always do and say haha..... its a bad isnt it...

as i go and eat a bar of choc that has the carb values on the packet so i can CARB COUNT...... and be a NORMAL person...

oh btw.. this was breakfast covered......... i still have the rest of the day....

and oh yes there is the other thing called neuropathy the talk about.... so to all your government know it alls who want to box people into catergories..... well... erm,..... it aint that easy.....
tbc....................

rant not over... just begun......
lee

the unpredicable

2011-02-12T21:11:00.000Z

well... its be sooo good recently.... been talking about work and all that jazz.... and went to see the docs.. of all is going so well missy doc.... then what..... bad bad bad feet.... i mean crying stage... then next day.... bad bad stomach day,,,, i mean.... sitting here watching telly and the brain saying lee eeeeeee lets go out.... but the body saying noo oooooooooo stay here... my point is..... the hardest thing is the unpredictable stuff..... i can be cool one day and the next.. be in pain.. feet.... legs..... stomach... oh n by he way.. imagine everytime you eat you have an electric shock in your checks...... tbc......
hope your well....

i am for the mo.....

oh the pain

2011-02-08T16:57:00.000Z

i find it really hard to explain the pain.....
just cause i do not cry n scream does not mean i am not in pain
after suffering with extreme pain for 3 years now its not about a pain free day its about how strong the pain is.... if that makes sense...
so i am never without pain... but the levels just increase or decrease and it something your body HAS to get used to....
today was a day of well i want to cut my feet off days...... and those of you who understand know... i was in asda.. and had to lay on the floor as my feet were so bad i could not even stand anymore... let alone walk... and pushing the trolley.. if i was not with JO i would have just left the trolley and left... ....
now as i write this,... is am fine n dandy.... but 3 hours ago...................
well give me a saw... and leave me alone..... and it would have been a diff story

just cause you cant see my pain does not mean i am not crying inside with agony.......

hypo hypo hypo

2011-01-20T09:58:00.000Z

seems to be hypo week... had one at college... had kept the condition quiet.... but had to tell teh tutor about it as i wasnt looking too good.... i had been nice to be Lee... not the guy with diabetes for a while... ah well...
oh and the 1st time i leave my lucazade in the bike and i get the hypo... i always carry it around with me!!...
then through the day... i had another one...
then at night i had one...actually make that 2..
and now,, just had another one... although all been mild ones... not the bad bad ones... but still knocks you off balance....
oh and its stopped raining....
just bloody freezing now!!!!!...

o that was 2010... has given me confidence to do things i never thought i would be able to do again after falling ill.....so much more to do... so many more people to meet... so much more awareness to raise... so many more laffs to have...

2011-01-07T09:35:00.000Z

well it started off a bit pants in hospital in January so not a great start but it motivated me to do something with myself and keep busy....
So the Challenge was set.... to raise awareness off Diabetes and Neuropathy by doing a wheel chair ride from sandbanks to southbourne...
Baby Nayan was born.... i can still here the screams of Sonj now... bless her umplanned home birth of nephew number 3...
New york!!! amazing...
Documentary Screening... defined my year... opened so many doors and have made contact with so many amazing people...
The challenge was amazing went better than i could ever have imagined... all the family there... and so many friends came to support... and many more from whom i had only taled to on the internet.. truely humbling and such an amazing experience... became friends with Angela... my partner in crime and a beautiful amazing person.. raised over 1500 in total i think.. but the pinacle was getting on teh Local BBC News... my Goal was achieved... as well as local radio and the local press and other various magazines through the help and support of diabetes uk press team
won an award from RBS through the event and was able to give an extra £100 to teh local children's diabetic ward in Poole....
My Motorbike came.....OH My....... life changing.....
Thanks to my bestest friend Jo i started a photography course.... the best thing i have done for myself for along time....
october.. booooooooo bad month... got broke into .... laptop and camera nicked... pinky and daisy killed by foxes.... saved fluffy....
ROXY!!!!!!!!!!!! my kitten arrived....she is so beautiful...;)
Xmas was great with Jo n the kids.... Toy story and hello kitty were the only things to see...

so that was 2010... has given me confidence to do things i never thought i would be able to do again after falling ill.....so much more to do... so many more people to meet... so much more awareness to raise... so many more laffs to have...

heres to 2011...

yo yo

2010-12-20T16:26:00.000Z

3 hypos yesterday.... well i suppose it was my own fault really.. i woke with them to high... so i adjusted... to much... hypos number 1.... then treated that... too much... too high... compensated for that which too much correction.... then later on... didnt do my sums... and put too much in on my rice that o had....
they forget to mention that you need a maths degree when you carb count... well that and the fact i am a brummie dont help much!!1lol

oh a positive note... i have a new addition to the family.. her name is ROXY and she is a 5 month old cross persion/moggy and is beautiful .. i have been wanting a cat for a while and Jo`s mate needed to get rid of her ... so as a xmas prezzie Jo got her for meeee... yes yes i know animals are for life not just for xmas... but anyone who knows me know i am Mr animal man.... and she has bought an extra sparkle to the flat... fluffy is now getting used to her... rather than running around the flat and hiding behind the telly when he 1st looked at her... they had their 1st kiss last night.,... then ROXY gave him a slap around teh face .."how very dare you, what kind of woman do you think i am "... then turns and puts her bum in his face... and fluffy just sat there and looked at me ... i just said "WOMEN" hahaha
who would have thought 2 animals would bring so much fun!!! .. here is to many more comedy moments...

i wake in the morning...

2010-11-17T16:00:00.000Z

i wake in the morning not knowing how i will be
will it be my stomach or my legs today we will see
will i be able to walk around just free
or sit in doors and watch TV
i wonder what the day will hold
and sit a wonder was it may soul i sold
but i wont let this blip get me down
as in my mind i go to town
and i dance and sing the night away
and so i live to fight another day......

depression ... stress.. the invisible thing....

2010-11-04T01:28:00.000Z

i have written about this before.... i am no doctor and no expert.. but i can only talk about what i have experienced and what i have seen...
depression and stress are conditions that are very difficult to understand... very much like having nerve pain... it exists.... but its hard to treat.. and hard to explain.. and everyone deals with it in their own way... some have drugs.... some dont... some get angry... some go quiet... there is noo right or wrong way... but.. this is know... ignore it and it will consume you and it will affect you and everyone around you... so find your way... dont be afraid to talk about it... do`nt be afraid to ask for help.... if you break your leg do you get it sorted... yes and over time it will heal... if you dont will heal wrong and be crocked and painful for the rest of your life.....
from someone who used to clam up.. and try and deal with things himself.. from being too proud to ask for help... to burying my head in the sand for along time... the thing i did was be open about it all and learn how to talk about it all... weather it be my "man Issues"... or temper.. or not being able to cope with the pain....
i mean i am talking to myself now... this is how i deal with it ... we are all different.... but no matter how you deal with it... you are not alone in this...
i have said this for a while now... "DONT SUFFER IN SILENCE"
you are not alone....

october.... what a month so far....

2010-10-25T00:16:00.000+01:00

well i havent written for what seems ages now... so i thought i would give you a little insight as to why and what has been going on in the land of lee....
well at the mo.. i havent been feeling to well... got some sort of bug.. so its affecting my stomach... bit up in down really.... one min i am coolio then i wanna lay down... had the heart rate increase tonight which feels like its popping outta the chest .. which can be a bit scary... anyway...
well beginging of the month the flat was broken into and my laptop and my camera was stolen... my 2 life lines!!... gutted... although the insurance covered it... i was feeling a little on edge for a few days... as they came in while i was asleep... which was kinda good in a way as i normally wake up a bit during the night... so glad i didnt bump into anyone....
the following thursday.. i found dasiy one of my rabbits had been killed by a fox.... and then tried to sort the other 2 out... couldnt get them in teh pen... so was trying to check on them as often as i could throug the night.... about 9.30 i heard a screaming... one of teh rabbits had been attacked... well at the time i thought it was both of them.. until fluffy ran past me.... so i through a chair towards where i could here the noise coming from.... to try n scare whatever it was from attacking pinky... after a couple of atempts and running in to get a torch i managed to get fluffy and put him inside teh flat.... went back out to hear pinky still screaming but i couldnt get to her... it sounded like she was under the shed... the scream stop... and i knew there was nothin i could do.... so i went back to sort fluffy out.... he is now living in teh flat... and is back to normal after being very quiet for a couple of days... he is now lording ot up aorund teh flat... and has taken to my arm chair which he watches telly from now lol... but i need to toilet train him again!!!!!!!!!!...
also today i went out and checkedf the bike to find that the skull head dust caps i had got have been nicked to... so overall october.... apart from my bday... Which was lovely.... Jo got me a necklace,, and a braclet... and a cake and the kids gave me a card.. which was lovely xx sonj gpt fluffy a new cage for me and mom n dad got me these amazing new boots.... i have been hunting for ages now for something other than my croc typr thing to wear.. my feet can normally only take being in something other than those for a couple of hours and i have to take em off... but these new babies are amazing soooooo comfy keeps my feet warm and it doesnt feel like i have them on... ahh teh little things that you take for granted...

got my new camera now and laptop as you can see...loving the photogaphy course now as... learning so much.... although all the work i did on it was wass on the laptop which was stolen... so gotta do that all over.... but hey ... could have been worse xx

RBS Community Award

2010-09-22T06:09:00.000+01:00

I was entered for a community award by my old work mates at RBS in Bromley.... and won..;)....the prize was £100 to a charity of my choice.... so i choose poole hospital kids diabetic department.... it will help towards their parties and any events they may do to.... wanted it to go where it may be better off than to a large charity and be swallowed up.....

chuffed....

i love apples....

2010-09-09T21:25:00.000+01:00

2010-09-04T15:52:00.000+01:00

whats on your mind....

2010-09-04T15:51:00.000+01:00

i have always said that if your mind aint the right place then the rest wont work.... since the challenge i have been a bit low... not having a focus.. which has affected many areas of my life.. relationships and my body.... its been staring me in the face for a while but i havent noticed it... just losing interest in alot of things and feeling down... reason.. well i have been very very bored and felt like i had no purpose.. see the illness is not just a physical thing it also alot to do with your mental attitude and for the past few months i have let my inablility to work take over and not done anything about it.. i was taking some photos the other day and had forgottten how much o love it... the buzz i get from taking a great photo and sharing them takes me to where i want to be... like in what i said all along in the documentary really... so i am going to get off my backside and do something about it... and give myself something to proud of... and more of a reason to get up in the morning...
so i hope you enjoy looking at the photos as much as i love taking them.....

feathered angel

2010-09-04T15:43:00.001+01:00

doing what i love......

2010-09-04T15:43:00.000+01:00

to carb or not to carb...

2010-08-26T11:57:00.002+01:00

i have tried many ways to control my diabetes recently.... a low carb diet was the way forward to me for a while... and it worked... but recently as my stomach has bee more tolerant to certain foods i have found myself eating more carbs.. ad my sugars have been more out ot control...i guess that it does come down to carb counting.. but this is not a perfect art..as every food is different in how it affects you.....i know each to their own..... but what i have found is less carbs there is less room for error... less calculations... less spikes.. less insulin... less hypos.. less hassle....
but this is me.... and you are you.....

The Hospital... Diabetes

2010-08-18T00:31:00.001+01:00

i have mixed emotions about it really... i think that yes.. they didnt show the difference between type 1 and 2.... yes some words were edited badly... yes the doctor came across in a poor light...
BUT...
it did point out the complications of poorly controlled diabetes.. which is something close to my heart... so if there is any sort of positive that has come from the programme... then i believe it put a face to the complications and how severe and real they can be... maybe the title should have been complications of DIABETES as this happens to both type 1 and 2....
Diabetes Uk them selves are at fault sometimes at not showing the difference in their marketing between the different types of diabetes... remember the measuring tapes recently....
there will always be something wrong and someone upset...

what a lovely comment.....;)

2010-08-17T21:43:00.000+01:00

Your story is an inspiration to diabetics everywhere, and to be honest it deserves more views and recognition. I do sometimes find having diabetes challenging, but with the related condition, you really are an inspiration, as it shows to us diabetics who do not have any of the complications, how grateful we should be

My life with Diabetes From a different angle

2010-08-17T21:42:00.000+01:00

we will see......

2010-08-17T20:50:00.002+01:00

have really said much about how its going.... other rant my video rants... well its been tough... i wont lie... dealing with the pain recently has been hard... a few early morning wake ups with the gremlins attacking me... my stomach has been playing up... i cant go to the toilet just once... i have to keep going and canyt hold it.. so a 4 oclock visit means 3 more.. maybe every half hour..... then there is the sweats .. some nights i have to change 2 vests.. i have to wear them just to soak it up!!1.... oooo how attractive...
oh then there is the diabetes..... sugars have been high.... which to me is as bad if not worse than a hypo... i really do try and keep them level... i do check at least 5 times per day if not more..... the other day i was checking every half hour as they were in the 20s..... and were not coming down with the insulin... oh it was about midnight as well.... so another sleepness night... and as you know... too much insulin and you go hypo.... and its a catch 22 really..... been able to take some great pics though..... really helps me take my mind off it all.... and everyones feedback is always a boost.... wish i could do more with them sometimes... but as in most art related things its not what you know but who.. and being in the right place at the right time...

we will see......

things going on..

2010-08-17T20:44:00.002+01:00

Had an email to help out with The Race for equity ... its for everyone and anyone to attend... SUNDAY 3RD of October.... Bournemouth to Boscombe Pier.... run/walk/wheelchair ... anything really... the event will also be swum by Steve McCarthy ... who is a blind swimmer who will also at a later date be swimming the channel.... i will have more details to follow....

Also attending a meeting in September about how the new "white Paper" will affect us as patients and the NHS in general.... its apart of teh NHS board meetings i go to.... maybe another one of "those" meetings ... but hey maybe one day it will be worth while.. and i truly will make a difference xx

no more sativex

2010-08-10T15:33:00.003+01:00

had a letter from my consultant saying that my pain killer... sativex is no longer avaiable as its too expensive... and still no licensed... so i will be trying to find another one now... have been on tramadol and pregablin.. and gabapentin.... and paractamol.. and amatripyline...

help

2010-08-05T14:15:00.000+01:00

new photoblog name

2010-08-02T00:36:00.001+01:00

http://clayton1180-lees.blogspot.com/

had to change the name forgot to pay for the old one oppsss..

the beast......

2010-07-18T21:54:00.003+01:00

hey lay on the bed.... woken buy his skin being peeled off from the knee down... he lay there useless he was being tortured not able to do anything... they werent asking him questions or giving a reason for this torture but the pain did not stop....then the fire began.... burning his feet.... there was nothin he could do.......he couldnt see his tormentors but if he could there would be the most gruesome terrifying spine chilling beast doing this for fun.....
his tormentors then went away...... and relief came... but only for a moment.... as it began all over again... the worst thing was that he knew what was coming...but this time he was prepared... i had realised that to fight it would be impossible..... so i lay and took the pain.... took a deep breathe and thought of the sea crashing against the rocks and a beautiful summer evening.... My beautiful Jo had her arms around me.....and the pain slowly began to pass... and the monster disappeared as quick as he came....
Until next time Mr Bogey man.... we will be waiting........

i woke up on sat morning.... horrible pain in my feet...

Facebook | Lee Nevitt

2010-07-08T20:29:00.000+01:00

Facebook | Lee Nevitt

high high high high!!!!!.......

2010-07-05T16:23:00.003+01:00

Alot of talk is about HYPOS.. low sugar..... but to me HIGH sugars are just as bad... if not worse.... last sunday... in the 20`s.. and today again... nt sure why.. bubbles in the pump i guess.... i started to feel a bit odd so took my bloods...22.... so i put some insulin in.... wnet out thinking all will be cool.... but 2o mins later... still 22.. not good... tummy started to feel funny.. bit sicky... wengt home... about 15 mins later... 26!!!!... had to inject... then came the funny turns... hard to explain really... sicky... dizzy... even find it hard to talk.... just have to sit and ride the storm... it does pass.. eventually... now just gotta watch i dont go to low.... not a moan.. just a fact..... been on a bit of break from it all really over the past couple of weeks.... will get back in the stride again soon.....

Spinal Injury ward

2010-06-25T11:22:00.002+01:00

through this i have met a truly inspirational lady .. Lindsay Chapman... i met through sending an email asking for a wheelchair to the local sports centre... they put me in contact with local charity called DOTs spoke to lindsay and we hit it off from day one.. she is paraplegic ...from the chest up.... her aim amongst many other things is to develop a wheelchair sports team of some sort.. i am going to a meeting today with her to see what we can do... i went to the ward yesterday to help out and meet some of the patients there.... i wasnt feeling great to be honest sugars are all over the place with this heat.. but .... it kinda put things in perspective meeting and talking to the guys and girls and their families... hopefully do alot more with them and see if we can get this sports team going........

if you can help.. let me know...;

The challenge...

2010-06-25T11:12:00.002+01:00

well i have taken a bit of a rest from it all the past week... the day was more than i could have ever imagined it to be....meeting everyone that i had spoken to over the past few months really touched me...and as for meeting my little hero Claudia... well she was every bit as sparkly as i had imagined and more... so much energy and life.... the kids def stole to the show on the day... collecting money on the way.. so so polite in asking nd saying thankyou to everyone who donated.... i think they raised over 300 on teh day... which in little hand held collection buckets is amazing.... my sister decked out the beach hut at the finish and painted everyones face blue... teh family really pulled together Matt walked with me... and took the mazing photos... Mom..(or ET) as Phil called her on the day was on my scooter.. dad was at the end.. Jo was there with a kiss for me...all my friends from Bromley came all the way to see me... i am such a lucky lucky guy.... it really has given me such a boost and real real zest for life and doing so much more... the bbc coverage... JDRF want to work with me... Diabetes Uk came down inteh form of their fundraising director... Andy james.... really lovely man who seemed to be on teh same wavelength as us all.... will be seeing him again... Oh got on fire radio AGAIN lol... that was fab and the local paper covered it too... so the aim was to raise awareness ... and i do believe it was JOB DONE....for that event anyway... here is to the next one....

Diabetes Challenge SET ME FREE

2010-06-22T01:13:00.000+01:00

the challenge

2010-06-21T11:35:00.000+01:00

bbc news diabetes challenge

2010-06-20T23:45:00.000+01:00

Sugar levels...

2010-06-16T11:46:00.002+01:00

well started ok yesterday... changed the pump... all seemed ok.... but was at the shops and started to feel a bit funny.... checked my blood.. 12.. so i corrected thinking it was a bubble.... began to feel worse.. checked again... 16..hmmmmm.,.. not good why are they going up and not coming down... i had not eaten anything..... i hd started to make my why back... lucky i was on my scooter.... got home felt awful.... checked... they were 19.... hard to explain how it makes you feel... but sicky.. erm... dizzy.... very very tired.... i knew there was a problem with the pump change as this had happened before... i injected using the pen.. and chanhged the pump again.... i pulled out the other one... and yep then canular had bent.. which stops the insulin form getting in the body..... it all corrected quite quick after and felt ok.. but did have 2 hypos after... which i kinda expected as you never know hopw much insulin to put in and how long it stays in your system... etc etc..... feeling good today... but as i have said before... teh pump is not 100% ALWAYS HAVE A PEN HANDT!!!!...i have learned my lesson before....

L.A.D.A

2010-06-15T00:04:00.002+01:00

This is what i had... or didn`t know i had.. hence why i m here now lol... i went at least 5 years with seeing a doc or anything...SILLY boy yes yes i know... but when i say get checked out it can happen to anyone... what harm will it do...

What is the difference between type 2 diabetes, type 1 diabetes and LADA?

Type 2 diabetes - occurs when the body no longer reacts to the insulin it makes. The person has 'insulin resistance' that means the person still makes insulin but the body is not responding properly. The glucose stays in the blood. Some people develop type 2 diabetes if they are overweight and have low levels of physical activity, often with high blood pressure and high cholesterol. People who have a family member with type 2 diabetes and/or who are non-white (Asian or African) are more likely to develop type 2 diabetes.

Type 1 diabetes - occurs when the body attacks its own insulin producing cells. The bodies own immune system attacks and destroys the cells making insulin and this means the body no longer has any insulin. People with type 1 diabetes are insulin depleted. They no longer make insulin. This means they need to inject insulin. It is thought people develop type 1 diabetes because they have certain genes and perhaps because they have been exposed to a trigger (such as a virus). Often people who develop type 1 diabetes are young (children or young adults), slim and do not have high blood pressure or high cholesterol.

LADA - stands for Latent Autoimmune Diabetes in Adults. It is a type 1 diabetes, which means the body attacks its own insulin producing cells. People with LADA can be diagnosed by having a blood test for antibodies (the chemicals involved in attacking the insulin making cells). People with LADA have a slowly progressing form of type 1 diabetes. This means they do not need insulin when they are diagnosed but will probably need insulin in the future. How soon they will be insulin dependent depends on the level of antibody they have in their blood. Higher levels of antibodies suggest a faster progression to insulin. People with low levels of antibodies are very similar to type 2 diabetes patients. This means they are more likely to be over weight and have some insulin resistance. They are likely to benefit from tablets that act on insulin resistance. People with very high antibody levels are similar to type 1 diabetes. This means they are likely to have acute symptoms (thirst, unexplained weight loss, frequent urination, dry mouth) and are less likely to be overweight. They are likely to need insulin treatment soon after diagnosis

5 days to go....

2010-06-14T18:05:00.000+01:00

Demarco`s words

2010-06-12T23:16:00.000+01:00

Demarcos Words....

2010-06-12T23:07:00.000+01:00

Demarco's thoughts about pain.
9 July 2009. 12.30am.
Pain:8/10.

LAVA- (purplish red) occurs when lying down. HARDEST to cope with of all sensations. Impossible to sleep while this sensation is present. Can be painful AND uncomfortsble.

CRYSTAL- (skin tone, sparkling grey) 8 out of 10 pain level, comes in waves and big blasts. This pain can occur in shoulders, sometimes in wrists, fingers and feet.

ROCK SOLID- (fluro yellow, pink swirls) uncomfortable but managable. Feet and legs feel "like a statue," and only occurs at night.

HAMMER- (black metal) takes the longest to go away. This sensation feels like repeated slamming above and below the knee, as well as feet. Hammer feels like getting needle injections repeatedly until feet feel numb.

STIFF- (light purple)-makes muscles feel weakened, like legs have no strength.

NUMB- (light blue, purplish grey, white, black, ivory)

WEAK- (many shades of red)

MACHINE GUN- (green; every "bullet" a different colour that get brighter)-exacerbates the other sensations. Anxiety and fear inducing. Pain intensifies with each passing second. Most frightening of all of the sensations.

GENERAL COMMENTS: Night equal fear/pain.
I have more pain/discomfort in my right leg.
Bedclothes touching legs is painful.
Cutting legs open with a knife would be better than these sensations.
Machine gun, combined with lava, stiff and crystal is very painful and frightening. Causes panic and anxiety.
Knees have "lava" sensation as well as feet.
Morning can feel like calm waves after a fierce storm all night.
If I wake up after I've gone to sleep and feel pain, I force myself to go back to sleep so that I
don't have to deal with it.
No tablets that Mum gives me help any of these sensations.
I daydream about lego, making new friends and fun things when I'm in pain to try and distract myself.
Sometimes I bash and grab at my feet and legs in an attempt to get the pain out. It doesn't help,
but it makes me feel less pain while I'm doing it.
I'm not seeing Dr Cotterill again.
I don't like to talk about my pain with doctors, only feel comfortable talking to Mum.
When doctors pretend that they don't believe my pain is real, it really hurts me.
I believe my pain is spreading.
Painstop helps. and sometimes Naproxen.
I want to find an answer so that I can get on with my life. I don't mind having pain just as long as I know why and so that I can continue to live,
At the moment, I feel worse than the only person in the world who has diabetes, because if doctors don't believe me, how possibly can I get a friend to believe me?
My mum looks tired.
I hate that I have these aches and pains in my knuckles, wrists, knees, fingers.
It makes me angry when doctors tell me that I can't jump on my trampoline.
I don't mind what exercises I have to do, what tests I have to have, what medication I have to swallow, I just want to feel like me again.
I'm lost at the moment. It feels a bit like when you tell someone that you have type 1 diabetes, and they say, "Oh, my grandmother has that, she just takes tablets and pricks her finger a few types a week." It's not the same at all. Pain isn't a competition.
Whatever is wrong with me, I'm not going to let it change or destroy me, I just need the right doctor to fight for me,
I feel sicker Diabetes wise, I feel sluggish and tired and have no energy-and that's exactly the way I fell if I have had a hyperglyaemic attack.
Diabetes didn't used to bother me. Now I feel sick from it, and sick from the pain.
I can't do the things I like anymore, because I have not much energy. I don't like food as much as I used to either.
I get temperatures at night.
It's hard for me to concentrate on my schoolwork, when last year I got best marks.
I have rung Kids Help Line twice to speak to them about how bad the doctors treat Mum and me and also with my pain. My Mum wrote the number down in special book in case I wanted to vent to someone else besides her.
My pain at night-time is so bad that it's almost impossible to distract myself from it-I listen to CDS, my MP3, my Mum reads me books in accents, we do meditations, relaxation techniques, but all i can see are big hammers pounding away at my legs, lava oozing from my feet, bullets shooting into my feet.
I have seen 5 specialists, and in soime way, they have all made me feel like I am looking for attention by talking about my pain. One man asked me if I was having trouble being teased, or if having my Dad not live with us upset me. I knew what he meant. No, my pain is real. Im not trying to cover it up to hide other problems.
My Mum and me are very close, she knows just by looking at me if I am low and nned a snack, or if Im starting to have enough of my pain.
A doctor said that I am too young to take the medication that helps this pain, so therefore, the pain mustnt be real. I stuck up for myself when I heard that.
I cant go to sleep until sometimes 3am in the morning(which means neither can Mum,) because the pain is so strong.
When I wake up, I have no energy.
My blood sugar levels go very high when I am in pain, and I get tired of drinking, going to the toilet, drinking, going to the toilet all night long.

Concluded at 1.10am. Demarco appeared ready to sleep, but his pain was still too high. He finally went to sleep at 3am.

Diabetes Photo/ Cycle/ Awareness Projects, Part 1

2010-06-10T15:15:00.000+01:00

Diabetes Photo/ Cycle/ Awareness Projects, Part 1

A very courageous Mother wants to share here story...

2010-06-09T18:44:00.001+01:00

I wish I had known how to use Facebook a year ago. I wish I had known you a year ago. Last July 25th, my 21 year old son died of ketoacidosis. He had been type 1 since he was a baby, 8 months old. No problems until he was 17, when he started to suffer from depression. He was given antidepressants, at 19 he was prescribed cymbalta 120mg(look that one up, he should have started off at 30mg).It changed him completely, but thankfully he realised this for himself,and came off them.
He was never admitted as a child to hospital, but in the four years before he died, he was admitted 9 times with DKA. I begged the Mental Health Team and the Diabetes team to keep him in for longer, to support him more, but they refused every time. Thankfully for justice, I kept all the paperwork, and there is now a police investigation. We were supposed to have his inquest a couple of weeks ago, but there was no statement from anyone in the Diabetes team. Something a bit wrong with that when his cause of death was directly down to his diabetes.
I am sorry you have learnt in such a hard way about diabetes problems, but congratulate you on all the work and support you are giving to others. My husband and my elder son also have type 1(my elder son also has Downs Syndrome, and his behaviour sometimes complicates the Diabetes needs), so I watch all diabetes issues with interest, but can'd find the energy to really be interested in life. I am so angry that Rhys was let down by the people who should have helped him.

Dear Lee,
Sorry I didn't get back to you yesterday.
Yes, of course you can tell Rhys's story if you think it will help.
Rhys used to take the Diabetes in his stride when he was small. Never had a day off school except for diabetic appointments, until he was about 14, very responsible for himself.
He went to school adventure camps, Diabetes UK holidays, he belonged to a group for brothers and sisters of children with special needs(as his brother has Downs Syndrome), and they went youth hostelling, and several adventure holidays. Only once was there ever a problem with his Diabetes, and that was when he was about 17.
Right until he died,if he was up in the mornings before us, he fed our two dogs and made me tea,he was a really caring person all his life.
Swimming, canoeing, horseriding, paintballing etc, he loved them all.
He just needed support to get through the awful depression, that caused him to harm himself through diet.
You can tell his story wherever you think it may help.

The pump

2010-06-08T15:22:00.000+01:00

Man problems......

2010-06-08T08:29:00.002+01:00

The blog for me has always been an honest way of sharing the reality of my issues.. and one of those is not being able to hold an erection.... so if you dont wanna know about my "man problem" then turn your eyes now......................
I havent been able to keep it up.. without a some help for 3 or so years now... and i am sure i am not the only man to read this that has the same problem as its a part of diabetes... but more so because i have neuropathy too....i tried the Blue pill(viagra) didnt work for me and another one....in the end i was given an drug called Caverjet... which i have to inject into the bottom of my weee willy winky when i want to play chess lol.... which i am sure as you can imagine isnt the sexiest of things to do at the best of times... and does not always work.... when it does...ahem..it does...and well... yes... but it doesnt always take.... you can inject it in the wrong place or whatever.... i dont knowi aint a doctor..... but as a man.. and all you men know what i mean... your winky is you life lol..... and if he aint working properly it does make you feel less of a man..... but i do have to smile about it though... otherwise i would cry.. alot lol.... so if this motivates you men to keep on top of your diabetes.. then great... think of your winky next time you miss an injection or decide that you are not going to bother about your diabetes, so if its not the numb feet/legs..pain like you have never felt before .....constipation/diahorria... uncontrolable sweats.. dizzyness...then think of the WILLY... !!!!!!!!!!!!!!!!!and bext time you are in the heat of passion... do you want to stop... mix a solution... draw the needle... inject your willy.. and then hope for it to take.......

another day.,,,,,, another fight......

2010-06-08T08:20:00.002+01:00

i wake sometimes with a spring in my step.... and sometimes i just wake and wonder why...i have had emails from Diabetes Uk which i am dealing with..... i better watch what i say though as last time i put something on here... the post was thrown back at me by a member of staff..... ooooooooo......sometimes my GOB says things that dont come out the way its meant too....will i ever learn....
Anyway on a slighlty brighter note lol... the challenge is next week.... havei trained enough....nooooo.... do i care ....noooooooo lol.. its not a race.... phil is dressing in drag... i cant wait to see that lol.... gotta see what i am gonna wear yet lol....
quite a few people coming down to support us.. am really looking forward to meeting Claudia though.... no doubt a tear or ten will be shed somewhere along the way ...;)

3 years on......

2010-06-07T00:34:00.002+01:00

Its been quite the rollercoaster..... 3 years of frustration....HELL...i really do finally feel at peace.. and when i say that.. i mean the fact i dont feel alone now.. and by that i dont mean i have been alone.. as my family have been amazing... with my moods... ups and downs and have always been there.... i mean with the fact that i dont feel that i am the only person with this that feels like i do...the documentary has opened so many doors for me and introduced me to some of the most amazing inspirational people i have ever met/spoken to.... its hard to put into words how i feel.. but i have the bounce back in my step... the other day i had a hypo.. went on facebook and got talking to Bec.. her sugars were high ... which to me is just asa bad... we had a bit of banter... took my mind off it... and got me through it.. the depression factor to it being 3am in the morning and me feeling sorry for myself went.. i was not alone... the challenge is coming soon and the support i have received around that has been ...well it has brought a tear to my eye... more than once!...
I have also found a life long friend in Angela Allison... She has helped me in more ways than she will ever know... the wheelchair for the challenge has been down to her and Donald her husband who i owe more than one beer to.... but the understanding...every post.. every email... every chat we have.. its like me talking to the mirror... what she does daily with 5 children.. it amazes me... and puts it all in perspective... we can all take a lesson out of her book... she has started a blog.. if you havent read it yet... do so...smiles and cries guaranteed....

Looking at Angela has also made me realise how much i owe my own Mom to as well.... i have said it before but if it werent for my Mom visiting me everyday, twice a day in hopsital .... well i really dont know what would have happened... sometimes i think i took that for granted as she is my Mom and thats what Moms do.... but not all Moms would have done that... and continue to show me support in ALL that i do... no matter how daft i can be sometimes...

And then there is Jo.......i adore you... your smile... your beauty... your wit....every day is a happy day...(put the crystal ball away you numpty) xxx;)

And to everyone else... every single comment ,, every single email.... every link shared motivates me.... and makes me get up in the morning.. hoping to make a difference to everyone with diabetes now and for the future...(well you gotta aim high i say).....

feeling good.....

2010-06-05T15:45:00.000+01:00

dont understand.....

2010-06-01T09:41:00.001+01:00

new video....

Cancer & Bio-Detection Dogs at DFS Crufts 2010

2010-05-31T03:56:00.000+01:00

3.00 am hypo.....

2010-05-31T02:54:00.002+01:00

greeeeeeeeeeeaaaaaattt as tony the tiger or whatever the name of that thing from the frosties advert....its ok.. i have an excuse i am having a "hypo".... went to bed... tossed around and felt my heart racing a bit... kinda like a nudge saying.."DONT SLEEP" i wont let you!!!... so had to get up.... checked my sugars and... whoo hooo 2.9.... why oh why oh why didnt i check em earlier.....;(.... 3 am is not a good time to eat some sugar!!!!!!.... so tired but cant sleep..... now is not a good time to be alone.... now is time for a cuddle me thinks....;(...Big Sigh.....or is that the smallest violin in the world i can hear...;()

And the reason why.........

2010-05-30T15:16:00.001+01:00

Why are Claudia and i doing this...there needs to be more support for all ages.. and types of diabetes... we want to show that system needs to change... but also the reality of diabetes and its complications...but also how pulling together WE.. no matter small we may be can make a difference.... just because its the way it has always been does not mean its the way is should be.....DONT SUFFER IN SILENCE....

JDRF

2010-05-28T18:16:00.003+01:00

I have just had a fantastic email from a Nicki at The Juvenile Diabetes Research Foundation ..(JDRF)... i had heard some great things about them but had never actually spoken to anyone... i am very impressed with how they come across as a "doing" foundation and they seem very people orientated... needless to say i will be working with them in the future..... very motivated about them...
I sent a link to the Documentary and within a hour it had been watched.. and feedback in a very personal way and also passed to the main office... and the point of the documentary was also understood...
This is going to be the start of something great....

VOTE FOR CLAUDIA

2010-05-27T19:03:00.002+01:00

Folks... please use the link and vote for claudia .. she will be able to help rasie awareness of TYPE 1 diabetes.. she is so special.... it does not take long at all....
thanka guys.,. it will make a difference...

rough day....

2010-05-26T17:39:00.002+01:00

sugars have been really high today... domt know why... only had cereal this morning.. hve corrected insulin all day... think i will change the pump.. there may be an air bubble or kink i dont know...
the whole chair thing has stressed me out a bit i think... didnt really sleep last night... so tired... my feet have been doing the usual unpredictable one minute ok then horrible pain.... i was with Jo yesterday and all ws cool... had a coffee outside and then boom... nearly cried with pain... then as quick as it comes... it goes.... so hard to explain... and i hate moaning... i know it will be fine tomorrow.. it always is... i have learned this... but somedays this is really tough....
Jo is around later so i know it will be Ok.....
But i hate being like this.... i really do.... think i am gonna watch a movie... or maybe play modern warfare lol.....

wheelchair

2010-05-26T13:53:00.002+01:00

This is the type i need..

http://www.google.co.uk/search?sourceid=navclient&ie=UTF-8&rlz=1T4SKPB_enGB358GB358&q=sports+wheelchair

i have contacted various organisations to either sponser a chair, hire one out for me, or even buy so i can donate onto someone else if need be.. although i could prob keep it to do more fundraisers.

the chair i have is not built to do anything like this, its kinda like running a marathon in ski boots, you will get there in the end but it will take forever and not very comfortable. I cant afford to buy one for myself otherwise i would as they cost upto £1500.. the event is on June 19th...

Press release

2010-05-26T13:38:00.000+01:00

Southbourne man with diabetes in awareness-raising
wheelchair ride from Hengistbury to Sandbanks

Southbourne man Lee Nevitt, 35, who has Type 1 diabetes and nerve damage complications, has challenged himself to ride 20km from Hengistbury Head to Sandbanks in his wheelchair on Saturday 19 June to raise awareness of diabetes and help kick start a desperately-needed local support group for others with the condition.

Lee was diagnosed with a rare form of Type 1 diabetes in May 2007 that developed over a period of four years. Lee resisted going to the doctors during this time out of embarrassment and a denial to accept he was unwell.

Type 1 diabetes is a life-long autoimmune condition which is treated with daily insulin injections, diet and physical activity. Unlike Type 2 diabetes, it is not linked to an unhealthy lifestyle or obesity. As a result of his diabetes being left undiagnosed for so long, Lee developed severe neuropathy – a painful complication of diabetes that affects the nerves and prevents Lee from walking long distances.

Since being diagnosed Lee has been unable to work and his life has changed completely. He has, however, fought to remain positive and now works proactively alongside Diabetes UK in raising awareness of diabetes.

Lee’s ride coincides with Diabetes UK’s Diabetes Week (13 to 19 June 2010) and he hopes to raise £1,000 for the charity as well as raise awareness of diabetes and its complications.

“I’m hoping the event will attract a lot of support; I’ve written to all of the local schools asking them to get involved and I’m also holding a coffee morning to discuss how we can start up a support group for others living with the condition in the area,” said Lee.

“I have called my Diabetes Challenge ‘Don’t suffer in silence’ as I want to highlight the complications of diabetes which are often not obvious for people to see, but they are a reality and people need to be more aware of them.

“I gave the Challenge this name as I want to say to young people who live with diabetes not to hide away but talk about their condition. I want them to know that there are other people like them, people they can talk to and share experiences with.

“My overall message to young people who think they may be ill is ‘Don’t be embarrassed, go to the doctor.’ It is so much better to be checked out than leave it to get worse,” said Lee.

“My long term goal is to create and maintain a Diabetes UK Support group for people with diabetes in the Bournemouth area so they can come together and support one another”, he said.

Zoë Steer, of Diabetes UK in the South West said, “We are so grateful to Lee for all his hard word and support for Diabetes UK. He is an inspiration to others who live with diabetes. We hope the local people will join together with Lee and support him with his challenge to raise vital funds for Diabetes UK.

“Diabetes Challenge is a cutting edge website that brings Diabetes UK supporters together in a new way. It allows groups of people to take on new and exciting challenges, and to track each other’s progress using social networking sites like Facebook and Twitter. Challenge yourself or someone you know at www.diabeteschallenge.org.uk ”

Sponsor Lee at www.diabeteschallenge.org.uk/challenge/leenevitt-dontsufferinsilence

Hypo

2010-05-26T04:56:00.002+01:00

Had a hypo this morning... read 2.0 .... they are weird hypos are... sometimes they make you feel like your gonna die on higher readings.... some days they hardly affects you....
I posed the question the other day on a fab forum i am on at the mo... diabatessupport.co.uk
this is what was said.....please click the click to read how everyone describes their hypos... if your not diabetic then maybe it will give you an insight... if you are then maybe it will show that you are not alone.....

http://www.diabetessupport.co.uk/boards/showthread.php?t=8655

Diabetes Uk TOP STORY

2010-05-19T10:51:00.001+01:00

we made the top story on Diabetes Uk main website...

SOOOOOOOOOOOOOOOOO CHUFFED!!

wheelchair

2010-05-19T10:40:00.003+01:00

Busy Busy boy at the mo...

I need a proper sports wheelchair... the support so far to try and get one has be amazing... am on the case today...
also need to...
sort posters
leaflets
get beach hut
community centre
whos coming and jobs
fancy dress for the day..??
copies of dvd to post....

oh and train...

hmmmmmm

busy boy..;) but i love every minute.. WE are making a difference.... WE ALL ARE!!....

take your insulin

2010-05-16T23:41:00.000+01:00

Claudia Tate Raising awareness of TYPE 1

2010-05-16T18:49:00.000+01:00

Stomach

2010-05-15T00:07:00.003+01:00

I am ok now.... but the past 4 hours have been.. well..pants... the stomach cramp came to visit... and didnt wanna leave until about 10 mins ago.... after a visit to the...ahem....without being graphic... you cant force anything as it makes it worse... its a bit like rollercoaster.. pain pain.. like i wanna scream.. then..ooo i am fine... then....ooooooooo scream.... then fine.... glad i wasnt out though as it would have ruined my evening....unpredictable... as i have said time n time again.... oh now the feet gremlins have started... they must have felt left out....Oh Joy..... but tomorrow is another day...
and it could be worse.....

Diabetic Depression

2010-05-13T23:34:00.003+01:00

I have spoken to alot of fellow junkies about this... and you what i happens... its a part of the condition .. like taking insulin... like testing your blood... its gonna happen... book it in.... tells your friends and family about it... then... move on... dont fight it or ignore it... it really is a part of the illness.. just cause you cant measure it... don`t mean it dont happen....
Not that i get it of course.....;)

Our lives begin to end the day we become silent about things that matter."

2010-05-13T10:36:00.001+01:00

Saw this quote and i think it just about sums it all up..

Our lives begin to end the day we become silent about things that matter

Blown away

2010-05-10T22:04:00.002+01:00

I have to say... i am completely blown away by all the comments i have received about the documentary ..... for once i am speechless.... but to everyone who has taken the time to view it.... dont give up... dont give in... dont suffer in silence...you are NEVER alone.....xxxxxxxxxxxxxxxxxx

From a different angle

2010-05-10T16:43:00.001+01:00

Hypos..........

2010-05-09T20:55:00.003+01:00

as i was so excited and nervous about the showing i couldnt really eat... ans the forgot to as the butterflies set in ... i ended up having a salad... at about 11pm!!!.. after a few beers to might i add....
I started to feel a bit funny sweating alot.... checked my sugars and yes.. 2.3 ... not good... and it crept up on me too.//.
i wouldnt say there are good and bad hypos ... but there are different types i think anyway...;)
This was a bad one.... hard to explain really.... but it does feel like someone else has taken over your body.. and although in your head you know everything will be ok... logic does not come into play... you dont just need sugar.... you crave it!!..you expect the people around you to know what to do... they can read your mind cant they!!!!as someone has told me "never asume" lol... when is enough what is too much... they do try and give you guidelines of what to eat.. but everyone is different.. and there are different types of hypos....sometimes it will go quick.. some times not... sometimes four gluco tabs is enough... sometimes 8.. then you have to be prepared for the "hypo hangover" ( i stole that from someone else)... your sugars will then go sky high.... and kinda screws things up for the next 12 hours.. well does me anyway..well sometimes....lol...

i am lucky enough to have people around me that will put up with my moods..which at the best of times i am a pain in the ass..
Love you Jo..;)

From a different angle..... the screening..

2010-05-09T20:45:00.002+01:00

well... what can i say.. the evening was more than i could have dreamed of... you will have to see it... and make your own mind up.. but i shed a tear or 2 as did my beautiful Jo and i believe My best mate Phil and his gorgeous new friend Jan.... the fact that the girls found my story interesting enough to spend the past 10 months doing it./. it really has helped me see things in a different light... i was gonna say from different angle lol....
I am a very happy chappy at the moment... just need to get some hard training done for the challenge... the next big thing is the dress down day that RBS insurance in Bromley are organising .... that will raise so much awareness... again if one person gets checked.. or in the case of type 2.. watch their diet... or even if someone has another condition ... i dont wanna sound like one of those.. cheesy.. i am doing it for the people guys lol... as thats not me....i need this...

And now the end is near.....;)

2010-05-07T20:32:00.002+01:00

This time tomorrow i will have seen the documentry... Hmmmm nervous excited.. Peeing my pants!!!!!..;~)
But i have My beautiful Jo and Phil with me to hold my hand lol...
My brother has just been down which has been great to see him and catch off... he would give you the shirt off his back if he could.... we have had our ups and down like all brothers i guess... but i do love him...
Dad seems to be suffering bad at the Mo... i know how he feels..... the pain killers aren`t working and anyone who has had sleep deprevation knows that is torture to...Give him break!!!...
But again its not just dad.. it affects everyone around you too and Mom has done so much for everyone else over the past few yrs... but thats Mom....

if you want a copy of the dvd then email me nevittlee@yahoo.com ....

Juat going to pee my pants!! lol